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Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
4 months ago
What could cause such dramatic weight gain
I have currently been on .1 mg Synthroid and 5 mcg Cytomel for three months, and while the blue lips, freezing cold and fatigue are gone, my legs are super swollen and hard, my "weight" is up 20 pounds in two months (unexplained by diet / lifestyle). Nutrients of importance are almost optimal and still
I have currently been on .1 mg Synthroid and 5 mcg Cytomel for three months, and while the blue lips, freezing cold and fatigue are gone, my legs are super swollen and hard, my "weight" is up 20 pounds in two months (unexplained by diet / lifestyle). Nutrients of importance are almost optimal and still
Joyya
in
Thyroid UK
4 months ago
So my sister has just found that she has haemochromatosis...
I've nagged her to follow up on her high ferritin results for the last year or so, though GP seemed disinterested with it above 700 so I sent her to give blood which bought it down to 400. Since then we have successfully got her GP to acknowledge her Hypothyroidism and prescribe T4 and I got her to
I've nagged her to follow up on her high ferritin results for the last year or so, though GP seemed disinterested with it above 700 so I sent her to give blood which bought it down to 400. Since then we have successfully got her GP to acknowledge her Hypothyroidism and prescribe T4 and I got her to
TiggerMe
in
Thyroid UK
3 months ago
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Blood in urine
I noticed urine colour changes 4 years ago ( Went dark orange if I did nt drink much water or alcohol ) if I drink say 5 pints of water or alcohol a day my urine is stew yellow to clear , as soon as I only drink about 2 pints a day it goes back to dark sort of orange , then 2 days ago after not drinking
I noticed urine colour changes 4 years ago ( Went dark orange if I did nt drink much water or alcohol ) if I drink say 5 pints of water or alcohol a day my urine is stew yellow to clear , as soon as I only drink about 2 pints a day it goes back to dark sort of orange , then 2 days ago after not drinking
Pulsar25
in
British Liver Trust
4 months ago
Lanzoprazole and side effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
Hello, I am over 2 years past Ivor Lewis oesophagectomy and have been taking Lanzoprazole 15mg once a day, then Gavison at night. I’ve found that my folate and ferritin are low , probably caused by ppi use and wonder if anyone has managed to come off them. I know they have lots of potential bad effects
PopandMo
in
Oesophageal & Gastric Cancer
4 months ago
Help! Can't find a pharmacy that stocks Roma T3!
I've been ringing around pharmacies in Stoke-on-Trent and no one stocks Roma Pharmaceuticals T3, nor can they order it from their wholesalers!Are there any NHS online pharmacies that stock them? If there aren't any, I'm back to ordering Mexican Cynomel. Is there anyone that has recently ordered from
I've been ringing around pharmacies in Stoke-on-Trent and no one stocks Roma Pharmaceuticals T3, nor can they order it from their wholesalers!Are there any NHS online pharmacies that stock them? If there aren't any, I'm back to ordering Mexican Cynomel. Is there anyone that has recently ordered from
Lalacat
in
Thyroid UK
4 months ago
Thank you ( re iron and ferritin / plus Mercola )
Thanks to the community here for your e mails and genuine advice plus also the heads up re Mercola ! ( It is hard these days to know what is good or bad, truth or lies ! ). And Sue as ever you are very helpful in these matters - I will follow your guidance. Many thanks and I am glad to belong to
Thanks to the community here for your e mails and genuine advice plus also the heads up re Mercola ! ( It is hard these days to know what is good or bad, truth or lies ! ). And Sue as ever you are very helpful in these matters - I will follow your guidance. Many thanks and I am glad to belong to
Summer194
in
Restless Legs Syndrome
4 months ago
results
I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
I was advised to ring if not heard about Allele burden results in 2 weeks. just had a call a week after test . Allele burden 5. Which is good… We discussed my concern. About elevated. LDH . Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow
Mostew
in
MPN Voice
4 months ago
Not at the patients demand!
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
I have to share this anecdote. It makes me laugh, cry and despair in equal measure. After 8 crappy years with thyroid symptoms getting worse I put myself on T3 in November. On day 5 I woke up and said the words "I feel better" before my conscious had even engaged my brain. 4/5 months later I can sit
CapnM
in
Thyroid UK
4 months ago
Daughter, still really not great and cannot get through to medics
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to arrange repeat bloods, usually children are booked into walk in centre next door fairly quickly , but booking myself that isn't an option. So they
Polo22
in
Pernicious Anaemia Society
4 months ago
Intermittent fasting affecting thyroid values
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
For the last few months (around 4), I’ve been doing intermittent fasting, because I’ve read about the benefits of taking a break from eating. I eat for about 8 hours and fast for around 16 hours. My latest thyroid test results have shown a slight decrease in both FT4 and FT3. I’ve read somewhere that
Alex_p
in
Thyroid UK
4 months ago
Newly diagnosed
Hello, I would like some help as I am new to all of this and feeling a little overwhelmed. I am a 32 year old female (66kg) I have had high thyroid antibodies for years and had a baby 8 months ago which has tipped my body into being hypothyroid. So I assume I have hashimotos although this hasn’t been
Hello, I would like some help as I am new to all of this and feeling a little overwhelmed. I am a 32 year old female (66kg) I have had high thyroid antibodies for years and had a baby 8 months ago which has tipped my body into being hypothyroid. So I assume I have hashimotos although this hasn’t been
Newtoros
in
Thyroid UK
2 months ago
Hillcross thyroxine
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
I have a note on the chemists file not to dispense Teva thyroxine. I recently got a prescription filled and I have started feeling extremely unwell with headaches, stomach upsets and feeling lightheaded. The only difference has been this change, when I have checked the box the underside of the pill
TVOReason
in
Thyroid UK
4 months ago
thyroid glandulars
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Does anyone use thyroid glandulars for optimal effects instead of levothyroxin and T3?
Miss81
in
Thyroid UK
4 months ago
Small thyroid gland question......
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
What does it mean if your Free Thyroxine is low (10.8 pmol/L - 12 - 22 R ) and your Thyroid is small ? My Dr is telling me he is unable to except my recent private blood tests which is annoying as I sent bloods of to MediChecks only this morning to check my Thyroid Antibodies which are normally
Jillymo
in
Thyroid UK
2 months ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
1 month ago
New Rheumatology Referral - hope it comes through quickly!
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain & fatigue without infection/ inflammation. This was after seeing a rheumatologist who did a thorough examination, in-depth interview and blood/urine tests
Purple_Badgers
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
T3 medication lowering FT4 - causing worsening of symptoms
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
When taking T3 medication (plus T4) it drops your FT4. Has anyone found that this drop in FT4 made them feel worse ie feeling more depressed and fatigue/energy even worse (or have you read about this happening to anyone)? Did you have to increase your T4 medication to get your FT4 up higher in the
PinkSkittles
in
Thyroid UK
4 months ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
1 month ago
T3 and taking supplements
Hello you clever people! I'm sure this question has been answered before but since started taking combo of T4/T3 in Dec 23 just wondering when best to take my supplements. I used D3/K2 better You spray+also take B complex, magnesium, selenium, zinc+cod Liver oil. I take T3 with Levo@7am then T3 at 2pm
Hello you clever people! I'm sure this question has been answered before but since started taking combo of T4/T3 in Dec 23 just wondering when best to take my supplements. I used D3/K2 better You spray+also take B complex, magnesium, selenium, zinc+cod Liver oil. I take T3 with Levo@7am then T3 at 2pm
Lottyplum
in
Thyroid UK
4 months ago
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