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Mostew profile image
8 Replies

I was advised to ring if not heard about Allele burden results in 2 weeks.

just had a call a week after test .

Allele burden 5. Which is good…

We discussed my concern. About elevated. LDH .

Seems the my chart lay out causes alarm with lots of patients as it appears to be highest result (yellow arearather than have a red area to show proper range .

I feel blessed to have such wonderful care from Guys .

Oh forgot to give update on sleeping and the sensation in my calf I posted about a few months ago. It dissapeared , hopefully. Never to be seen again !

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Mostew profile image
Mostew
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8 Replies
Spanelmad profile image
Spanelmad

All really good news😁

PhysAssist profile image
PhysAssist

Hi Mostew,

Congratulations!

It's all sounding good.

PA

hunter5582 profile image
hunter5582

That sounds like good news across the board. Glad to hear that things are going so well.

Wishing you continued success.

EPguy profile image
EPguy

We share that VAF=5% and at least some high LDH tests.

Is this your first VAF result?

You're on HU for ET, is that right?

I had some bad leg cramps also last year, also gone. Plenty other stuff has arrived to replace it.

Mostew profile image
Mostew in reply toEPguy

Thought id responded to above .. Yes it is rirat A. B Test they suggest every year to re do.

Some arrivels we can do without ,!!

Best wishes to you

lizzziep profile image
lizzziep

Good news!

Janis12 profile image
Janis12

That all sounds good, takes the anxiety out of it all. Best wishes.

Bluetop profile image
Bluetop

Good news all round!

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