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Tocilizumab
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Reducing tocilizumab injections
I was told to try to take my
tocilizumab
injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections.
I was told to try to take my
tocilizumab
injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections.
christine2715
in
PMRGCAuk
5 years ago
Tocilizumab infusions
But i'm not sure if
Tocilizumab
will feel the same, as it is a shorter infusion I'm told with less side affects.
But i'm not sure if
Tocilizumab
will feel the same, as it is a shorter infusion I'm told with less side affects.
Savannahseger
in
NRAS
5 years ago
Tocilizumab(Actemra) withdrawn
I am due to inject tomorrow and only discovered my Actemra had been withdrawn due to funding 5 days ago after I had been told they had no prescription for me. So I have no injections and no warning. I was on the drug trial and categorically told the one year rule would not apply to me. NICE have only
I am due to inject tomorrow and only discovered my Actemra had been withdrawn due to funding 5 days ago after I had been told they had no prescription for me. So I have no injections and no warning. I was on the drug trial and categorically told the one year rule would not apply to me. NICE have only
christine2715
in
PMRGCAuk
5 years ago
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Rheumy appointment
Well folks was at my appointment yesterday with specialist nurse and am changing over from Amgevita to
Tocilizumab
and weekly injections instead off fortnightly ones , staying on mtx 20mgs but my consultants trying to keep me on injections instead off the infusions as I travel a couple off hours for
Well folks was at my appointment yesterday with specialist nurse and am changing over from Amgevita to
Tocilizumab
and weekly injections instead off fortnightly ones , staying on mtx 20mgs but my consultants trying to keep me on injections instead off the infusions as I travel a couple off hours for
rab1874
in
NRAS
5 years ago
new here/temporal arteritis/extreme fatigue
My RA has been quite well controlled the past couple of years on etanercept and leflunomide but since temporal arteritis diagnosis in march these were stopped and am now on prednisolone and
tocilizumab
.
My RA has been quite well controlled the past couple of years on etanercept and leflunomide but since temporal arteritis diagnosis in march these were stopped and am now on prednisolone and
tocilizumab
.
Teekay2
in
Vasculitis UK
5 years ago
'at my wits end' kinda day.
Ive now been on
tocilizumab
for 3 months to no avail. i know biologics are just a trial and error waiting game but my mental health is starting to suffer from being ok for a week after steroids and then the fluid comes back and i cant walk again.
Ive now been on
tocilizumab
for 3 months to no avail. i know biologics are just a trial and error waiting game but my mental health is starting to suffer from being ok for a week after steroids and then the fluid comes back and i cant walk again.
Amylau
in
NRAS
5 years ago
Thyroid eye disease (TED) symptoms, diagnosis and treatment options.
Novel biologicals, such as teprotumumab and
tocilizumab
are under investigation. Rehabilitative surgery (orbital decompression, squint surgery, eyelid surgery) is often required. 3.
Novel biologicals, such as teprotumumab and
tocilizumab
are under investigation. Rehabilitative surgery (orbital decompression, squint surgery, eyelid surgery) is often required. 3.
ling
in
Thyroid UK
5 years ago
Changing to tocilizumab
It didn't work after more than three months so now I'm going to be changing to the unpronounceable
tocilizumab
. Anyone had good results with this?
It didn't work after more than three months so now I'm going to be changing to the unpronounceable
tocilizumab
. Anyone had good results with this?
attatel
in
NRAS
5 years ago
Jak - kinase inhibitor
I've been given two options to think about -
Tocilizumab
(injection or infusion) and Jak - Kinase Inhibitors (pills). Can anybody who has experience with either drug please let me know how you get on with them?
I've been given two options to think about -
Tocilizumab
(injection or infusion) and Jak - Kinase Inhibitors (pills). Can anybody who has experience with either drug please let me know how you get on with them?
Savannahseger
in
NRAS
5 years ago
Update on tocilizumab not working.
Hi there, I recently posted that I had been on weekly injections of
tocilizumab
but had got no relief after many weeks. After 12 weeks when I was still in a lot of pain and had noticed absolutely no improvement, my rheumatologist changed me to monthly infusions.
Hi there, I recently posted that I had been on weekly injections of
tocilizumab
but had got no relief after many weeks. After 12 weeks when I was still in a lot of pain and had noticed absolutely no improvement, my rheumatologist changed me to monthly infusions.
Sassifrass
in
NRAS
5 years ago
stop/start MTX problems?
First because although it's not so crucial to drug longevity with
tocilizumab
, which I am now on, it still may help to keep the biologic working longer. This wasn't quantified so it seemed quite vague although fair enough.
First because although it's not so crucial to drug longevity with
tocilizumab
, which I am now on, it still may help to keep the biologic working longer. This wasn't quantified so it seemed quite vague although fair enough.
roseyx
in
NRAS
5 years ago
Biologics and Lung Disease
Shortly after starting Actemra (
tocilizumab
) I noticed shortness of breath. I was told that I had genetic COPD but I have since read articles that Biologics could be the cause
Shortly after starting Actemra (
tocilizumab
) I noticed shortness of breath. I was told that I had genetic COPD but I have since read articles that Biologics could be the cause
SufferingOnHumira
in
NRAS
5 years ago
More on Cytokine Release Syndrome toxicities associated with CAR-T-cell therapy.
.,
tocilizumab
) appear to reduce the rates of severe CRS. Jackie
.,
tocilizumab
) appear to reduce the rates of severe CRS. Jackie
Jm954
Administrator
in
CLL Support
5 years ago
Tocilizumab
Hi After relapsing with Giant Cell I have been prescribed the above.Looking at the possible side effects am a bit concerned.Anyone have any experience of this treatment?
Hi After relapsing with Giant Cell I have been prescribed the above.Looking at the possible side effects am a bit concerned.Anyone have any experience of this treatment?
Roxy47
in
PMRGCAuk
5 years ago
Tocilizumab
Been on Bengali injections for several months with prednisalone thought the biological was working as I felt really well then had to taper off the steroids and back came the joint pain and swelling trying me on the
tocilizumab
has anyone else been on this biological ?
Been on Bengali injections for several months with prednisalone thought the biological was working as I felt really well then had to taper off the steroids and back came the joint pain and swelling trying me on the
tocilizumab
has anyone else been on this biological ?
Susiequest
in
NRAS
5 years ago
Travelling with RoActemra (Tocilizumab)
Hi -does anyone have any experience with travelling with RoActemra (
Tocilizumab
) . I need to be able to keep it at 2 - 8 degrees C for approximately 8-10 hours (to airport on plane etc.) before getting somewhere with a fridge. Any ideas would be great thanks
Hi -does anyone have any experience with travelling with RoActemra (
Tocilizumab
) . I need to be able to keep it at 2 - 8 degrees C for approximately 8-10 hours (to airport on plane etc.) before getting somewhere with a fridge. Any ideas would be great thanks
TTCC
in
NRAS
5 years ago
Weight gain
Just wanted to ask if anyone has experienced an issue with weight gain on
Tocilizumab
? 🧐
Just wanted to ask if anyone has experienced an issue with weight gain on
Tocilizumab
? 🧐
Roostermum
in
NRAS
5 years ago
Can I cope?
I have GCA and PMR and the GCA is much better thanks to Actemra (
tocilizumab
) injections. I have recently reduced to one every four weeks. On the last day before the injection the right side of my scalp and temple was really sore to the touch.Luckily was gone by morning and I am fine now.
I have GCA and PMR and the GCA is much better thanks to Actemra (
tocilizumab
) injections. I have recently reduced to one every four weeks. On the last day before the injection the right side of my scalp and temple was really sore to the touch.Luckily was gone by morning and I am fine now.
christine2715
in
PMRGCAuk
5 years ago
GCA and Actemra.
Hello all, I have been on Actemra (
tocilizumab
) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one injection per week, self injecting and am just starting one every 4 weeks.
Hello all, I have been on Actemra (
tocilizumab
) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one injection per week, self injecting and am just starting one every 4 weeks.
christine2715
in
PMRGCAuk
5 years ago
Can you lower ALT enzyme?
My
tocilizumab
infusions keep pushing my ALT high. Am off for a liver scan. However, I wondered if there is anything I can do to help it lower.
My
tocilizumab
infusions keep pushing my ALT high. Am off for a liver scan. However, I wondered if there is anything I can do to help it lower.
Sheepish
in
British Liver Trust
5 years ago
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