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Chronic rls
hi Sue Hoping you’ll remember me. I’m Judith & live in uk I’m 74. my rls specialist In London increased my pregabalin by 100mg. I’m now on 200 mg am, 100 mg late afternoon & 200 mg b4 bedtime, so 500mg daily. I also take thyroxine, cocodamol if needed during the day. The Neurologist at the neurology
hi Sue Hoping you’ll remember me. I’m Judith & live in uk I’m 74. my rls specialist In London increased my pregabalin by 100mg. I’m now on 200 mg am, 100 mg late afternoon & 200 mg b4 bedtime, so 500mg daily. I also take thyroxine, cocodamol if needed during the day. The Neurologist at the neurology
Marmot2
in
Restless Legs Syndrome
1 month ago
change of meds.
so I’ve been on levo for 15 years and have hashimotos . Around 3 years ago I was added t3 too. I still feel awful and would like my GP to change my levo to a different brand maybe? As all my symptoms seem to be inline with my levo and the side effects. Has anyone had success with this ? I would really
so I’ve been on levo for 15 years and have hashimotos . Around 3 years ago I was added t3 too. I still feel awful and would like my GP to change my levo to a different brand maybe? As all my symptoms seem to be inline with my levo and the side effects. Has anyone had success with this ? I would really
Alixleo24
in
Thyroid UK
1 month ago
Thyroid results
Hi. I have been struggling with chronic fatigue and joint pain for almost 12 months. I have had Thyroid tested and all normal according to GP. I'm in surgical menopause and taking Testosterone, Oestrogen and Progesterone and all my levels are good for those so I'm wondering if it could be thyroid related
Hi. I have been struggling with chronic fatigue and joint pain for almost 12 months. I have had Thyroid tested and all normal according to GP. I'm in surgical menopause and taking Testosterone, Oestrogen and Progesterone and all my levels are good for those so I'm wondering if it could be thyroid related
RedOne1
in
Thyroid UK
6 months ago
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Really high TSH
Hi I had a recent blood test and my TSH has come back at 8.7, this is the highest I've ever had. The docs called me on Thursday and when I said I'm on 200mcg Levo they said they needed to get me in for a review. I'm going today at 10.30am. TSH attached T4 is 15.3 (11-22.6) T3 is 4.2 (3.5-6.5) Any
Hi I had a recent blood test and my TSH has come back at 8.7, this is the highest I've ever had. The docs called me on Thursday and when I said I'm on 200mcg Levo they said they needed to get me in for a review. I'm going today at 10.30am. TSH attached T4 is 15.3 (11-22.6) T3 is 4.2 (3.5-6.5) Any
Pumpkin04
in
Thyroid UK
3 months ago
Direct measurement of T3 likely vital say researchers
This may have already been shared but I just came across an article about a new study that has stated that "It is important to note that the more typically measured biomarkers for thyroid function (T4 and TSH) are poorly linked to free T3 levels," Lawton and colleagues wrote. The ratio of TSH:T4 explained
This may have already been shared but I just came across an article about a new study that has stated that "It is important to note that the more typically measured biomarkers for thyroid function (T4 and TSH) are poorly linked to free T3 levels," Lawton and colleagues wrote. The ratio of TSH:T4 explained
FAB-jellybean
in
Thyroid UK
5 months ago
New research. Linking Amiodarone inhibiting levothyroxine just published.
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
waveylines
in
Thyroid UK
1 month ago
How to share MPs response on Healthunlocked.
I recently write to my MP about the cost of T3. He posed two questions to the Govt. and I think people here might like to see them but I'm not sure how to share them. Any hints gratefully received as I really do no want to type them.
I recently write to my MP about the cost of T3. He posed two questions to the Govt. and I think people here might like to see them but I'm not sure how to share them. Any hints gratefully received as I really do no want to type them.
mstp
in
Thyroid UK
1 month ago
Best Private Endo and/or Private Thyroid Practitioner
I've been having T4 treatment for Hypothyroidism on NHS for a while, and I'm still feeling terrible. I have private health insurance coverage though, and I haven't used it. Also have low testosterone which I've been successfully treated for. Could someone PM me the best Endo on the private list?
I've been having T4 treatment for Hypothyroidism on NHS for a while, and I'm still feeling terrible. I have private health insurance coverage though, and I haven't used it. Also have low testosterone which I've been successfully treated for. Could someone PM me the best Endo on the private list?
Cushie29
in
Thyroid UK
1 month ago
Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
1 month ago
T4 too high
Forgot to mention: I am 63 years old and take 125µg of thyroid hormone (T4 only).
Forgot to mention: I am 63 years old and take 125µg of thyroid hormone (T4 only).
ITHY
in
Thyroid UK
1 month ago
Can someone please recommend where I can buy…
Hi Folks, I need to source some T3 urgently. The normal place I can get it from is out of stock. Can anyone please PM me with any suggestions of reliable suppliers. Sorry, I am not up to doing detailed explanations at the moment. Thanks and best.
Hi Folks, I need to source some T3 urgently. The normal place I can get it from is out of stock. Can anyone please PM me with any suggestions of reliable suppliers. Sorry, I am not up to doing detailed explanations at the moment. Thanks and best.
lindygiles
in
Thyroid UK
1 month ago
Should I reduce T3?
Endo ( reluctantly) agreed 5mg increase of T3 🥳 currently take 125mg T4 & 10mg T3. When i began introducing T3 originally I was advised by 'The Knowledgable Ones' here 👍to reduce T4 before introducing T3. Which worked out very nicely 'Thank you All' Do I need to do that again with these results
Endo ( reluctantly) agreed 5mg increase of T3 🥳 currently take 125mg T4 & 10mg T3. When i began introducing T3 originally I was advised by 'The Knowledgable Ones' here 👍to reduce T4 before introducing T3. Which worked out very nicely 'Thank you All' Do I need to do that again with these results
Klawd
in
Thyroid UK
1 month ago
High dose Turmeric and links to low ferritin
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
Buddy195
Administrator
in
Thyroid UK
1 month ago
Leukocytes, protein and blood.
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Vqueen
in
Vasculitis UK
1 month ago
Liver Beef Glandular pills for iron?
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
JaggySr
in
Restless Legs Syndrome
1 month ago
understanding recent blood test
hello everyone My doctor has recently changed my thyroxine dosage to 125mg and 100mg on alternate days, based on these blood test results. Any advice would be appreciated as I always feel I could feel better and very thin hair. Blood test was before 9:00am and before meds. Serum TSH LEVEL 0.08mlU
hello everyone My doctor has recently changed my thyroxine dosage to 125mg and 100mg on alternate days, based on these blood test results. Any advice would be appreciated as I always feel I could feel better and very thin hair. Blood test was before 9:00am and before meds. Serum TSH LEVEL 0.08mlU
sunnyday7
in
Thyroid UK
6 months ago
Appointment with a new consultant 🎉🎉🎉🥳🥳🥳🥳
Cant quite believe it, but I have another appointment to see a different consultant. I think when I saw the last one who was pants , they hadn’t cancelled this one, so I’m seeing this as a good omen……especially as it’s on Friday 13th ( was originally on the day the consultants were on strike) . I am
Cant quite believe it, but I have another appointment to see a different consultant. I think when I saw the last one who was pants , they hadn’t cancelled this one, so I’m seeing this as a good omen……especially as it’s on Friday 13th ( was originally on the day the consultants were on strike) . I am
Rowing2
in
Thyroid UK
9 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Has anyone tried Neovos for an MMA urine test please?
Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them about current testing. Meanwhile these came up as offering a b12 urine test for £63,which is for MMA considerably cheaper than others available
Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them about current testing. Meanwhile these came up as offering a b12 urine test for £63,which is for MMA considerably cheaper than others available
Jo5454
in
Pernicious Anaemia Society
1 month ago
Can thyroid tap or pulse?
Hi, I have been having a number of issues which I thought were low thyroid related, or B12 deficient, both bloods currently look fine thought, apart from my thyroid peroxidase antibodies which have risen from 468KIUL to 502KIUL (range 0-34). What I would like to know is, can thyroid tap or pulse? I
Hi, I have been having a number of issues which I thought were low thyroid related, or B12 deficient, both bloods currently look fine thought, apart from my thyroid peroxidase antibodies which have risen from 468KIUL to 502KIUL (range 0-34). What I would like to know is, can thyroid tap or pulse? I
Ian232
in
Thyroid UK
8 months ago
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