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Update #6 Clear Decks
Hi all 👋 Continuing on from my previous post here - https://healthunlocked.com/thyroiduk/posts/149372691/update-5-back-to-front I am officially bareback… 😬 but don’t worry, it’s not for long. Phase 1 of the plan now begins! It’s taken me about 5/6 weeks, but I have weaned down slowly from 2.5 grains
Hi all 👋 Continuing on from my previous post here - https://healthunlocked.com/thyroiduk/posts/149372691/update-5-back-to-front I am officially bareback… 😬 but don’t worry, it’s not for long. Phase 1 of the plan now begins! It’s taken me about 5/6 weeks, but I have weaned down slowly from 2.5 grains
Hidden
in
Thyroid UK
1 year ago
Dry Mouth & the Advanced PC Patient (for those on Pluvicto or meds or ICI, where a side effect is dry mouth) - A Guide
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
rsgdmd
in
Advanced Prostate Cancer
1 year ago
Need More Energy
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
epfj3333
in
Advanced Prostate Cancer
1 year ago
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Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
Dose increase and RT3
Hello. I have followed along with this site for about a year. I have collected quite a bit of knowledge and so appreciate all that has been shared through this site. I have Hashimoto's (TPO is currently around 300 and I do not have TGab antibodies). Vitamin D, B12 and iron are all looking good. Still
Hello. I have followed along with this site for about a year. I have collected quite a bit of knowledge and so appreciate all that has been shared through this site. I have Hashimoto's (TPO is currently around 300 and I do not have TGab antibodies). Vitamin D, B12 and iron are all looking good. Still
BlueGreenHealer
in
Thyroid UK
1 year ago
Has anybody noticed a change to Armour at all this year?Just wanting to rule out different possibilities to why I feel worse than usual.
I have had alot of additional tough stressors this year ,but my FT4 and FT3 have dropped despite a gradual dose increase. I am going through the list of possibilities suggested on this forum, but thought I also should ask the question has Armour changed this year, ie perhaps a filler? I understand '
I have had alot of additional tough stressors this year ,but my FT4 and FT3 have dropped despite a gradual dose increase. I am going through the list of possibilities suggested on this forum, but thought I also should ask the question has Armour changed this year, ie perhaps a filler? I understand '
Gillybean1
in
Thyroid UK
1 year ago
adrenal testing on the nhs?
is it worth trying? or are they going to only check for complete adrenal failure if i asked them? i have a feeling they will probably test what i ask since i've never had problems regarding specific tests before, but i would really just like to know what i should be checking. i'm losing LOTS of hair
is it worth trying? or are they going to only check for complete adrenal failure if i asked them? i have a feeling they will probably test what i ask since i've never had problems regarding specific tests before, but i would really just like to know what i should be checking. i'm losing LOTS of hair
ColdBanana
in
Thyroid UK
1 year ago
SBRT without ADT
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
ArmyCW5Retired
in
Advanced Prostate Cancer
1 year ago
Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
ctflatlander
in
Advanced Prostate Cancer
1 year ago
New to this site - Thyroid levels in range but still experiencing symptoms of underactive thyroid
Hi, I was diagnosed with under active thyroid around 5 years ago, and I’m taking 100 mg of Levothyroxine daily ( I take this around 6 in the morning at least 2 hours before coffee or breakfast) I do not take any other medication. my symptoms have never gone away ( tiredness, lethargic, brain fog, muscle
Hi, I was diagnosed with under active thyroid around 5 years ago, and I’m taking 100 mg of Levothyroxine daily ( I take this around 6 in the morning at least 2 hours before coffee or breakfast) I do not take any other medication. my symptoms have never gone away ( tiredness, lethargic, brain fog, muscle
Bluecat77
in
Thyroid UK
1 year ago
DI 02 effects beyond thyroid
I am one of the many who don’t get on with Levothyroxine. When I got up to the maximum dose without feeling better my consultant tried liothyronine which made me feel instantly livelier, but I had nasty side effects so ended up on NDT. I have to be at or slightly above top of the range to feel good and
I am one of the many who don’t get on with Levothyroxine. When I got up to the maximum dose without feeling better my consultant tried liothyronine which made me feel instantly livelier, but I had nasty side effects so ended up on NDT. I have to be at or slightly above top of the range to feel good and
Ruthi
in
Thyroid UK
1 year ago
Joining here on Mother’s Day
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
side effects of Tamoxifen
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
Declining psa #4
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Nfler
in
Advanced Prostate Cancer
1 year ago
New hot flash drug approved
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
Does Sertaline (Zoloft) affect NDT ?
Hi , on NDT and my bloods are in range . I’ve been going though a lot of personal issues lately and have tried beta blockers for anxiety attacks but not working so the doctor has recommended Sertaline . I’ve never taken before and want to find out if it interferes with NDT or thyroid or anything? Can
Hi , on NDT and my bloods are in range . I’ve been going though a lot of personal issues lately and have tried beta blockers for anxiety attacks but not working so the doctor has recommended Sertaline . I’ve never taken before and want to find out if it interferes with NDT or thyroid or anything? Can
Blackpanther46
in
Thyroid UK
1 year ago
My brother has advanced prostate cancer
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
rasher1
in
Advanced Prostate Cancer
1 year ago
ART UCSF Recurrent Prostate Cancer Case Histories, 2021 Prostate Cancer Conference
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Newly diagnosed with N1M1a
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
My father (68 yr old) is newly diagnosed with Gleason 8 in March and his PSMA PET result just came back with N1M1a (details in bio page). Before the PSMA PET, RO's plan is the whole pelvis with IMRT followed by a prostate only boost based on CTScan and clear bone scan and stated that his treatment
qidao23
in
Advanced Prostate Cancer
1 year ago
So frustrated that endo told me my hypo symptoms are social, emotional and psychological
After 11 months I finally saw an endocrinology registrar to go over my blood test results and symptoms. I am on 150mcg thyroxine and 40mcg of liothyronine, after 7 years on NDT which I came off in January 2021 to return to the 'NHS way' of T4-only therapy (the price of NDT was becoming prohibitive plus
After 11 months I finally saw an endocrinology registrar to go over my blood test results and symptoms. I am on 150mcg thyroxine and 40mcg of liothyronine, after 7 years on NDT which I came off in January 2021 to return to the 'NHS way' of T4-only therapy (the price of NDT was becoming prohibitive plus
Reefseeker
in
Thyroid UK
1 year ago
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