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Finding consensus on treatment and side effects
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
Willie51
in
Prostate Cancer And Gay Men
2 months ago
FND and hormones
Hiya everyone, I was diagnosed with FND in 2021, my symptoms started in 2018 after many stressful life events. I’ve noticed my symptoms get worse just before my period. I’m perimenopausal so I started HRT (oestrogen gel and progesterone oral capsules). The progesterone seemed to cause a massive relapse
Hiya everyone, I was diagnosed with FND in 2021, my symptoms started in 2018 after many stressful life events. I’ve noticed my symptoms get worse just before my period. I’m perimenopausal so I started HRT (oestrogen gel and progesterone oral capsules). The progesterone seemed to cause a massive relapse
Xani24
in
Functional Neurological Disorder - FND Hope
2 months ago
Tibolone or sequential hrt?
I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong
I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong
Mindfullness4791
in
Endometriosis UK
2 months ago
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intermittent ADT+Abiraterone
Six months ago I ended a 12 month holiday from my ADT + abiraterone. (In this post, I’m not asking for evaluations of the advisability of intermittency.) In making the decision to do the intermittency, my MO, among other things, said that the fact that I was on abiraterone was a positive factor for
Six months ago I ended a 12 month holiday from my ADT + abiraterone. (In this post, I’m not asking for evaluations of the advisability of intermittency.) In making the decision to do the intermittency, my MO, among other things, said that the fact that I was on abiraterone was a positive factor for
Catskills
in
Advanced Prostate Cancer
2 months ago
I owe you an update
Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last October, 2023. I had a biopsy in November and confirmed an aggressive stage 5, Gleason 9 in 6 of 12 cores prostate cancer. A series of scans did not detect involvement beyond the prostate. My PSA was 9 at that time. I began
Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last October, 2023. I had a biopsy in November and confirmed an aggressive stage 5, Gleason 9 in 6 of 12 cores prostate cancer. A series of scans did not detect involvement beyond the prostate. My PSA was 9 at that time. I began
Worked_the_World
in
Advanced Prostate Cancer
2 months ago
catheter for urinary retention
Does anyone have advice or tips on getting a catheter removed? My husband had it inserted due to urinary retention. The oncologist said his prostrate is full of cancer and pressing on the urethra. He has started adt with casodex and lupron. Soon to add zytiga. He also takes flomax. He’s tried twice
Does anyone have advice or tips on getting a catheter removed? My husband had it inserted due to urinary retention. The oncologist said his prostrate is full of cancer and pressing on the urethra. He has started adt with casodex and lupron. Soon to add zytiga. He also takes flomax. He’s tried twice
debbied1215
in
Advanced Prostate Cancer
2 months ago
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with mHSPC - July 17, 2024
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with metastatic hormone-sensitive prostate cancer (mHSPC) July 17, 2024 Phase III ARANOTE trial met primary endpoint, significantly increasing radiological progression-free survival (rPFS) with NUBEQA
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with metastatic hormone-sensitive prostate cancer (mHSPC) July 17, 2024 Phase III ARANOTE trial met primary endpoint, significantly increasing radiological progression-free survival (rPFS) with NUBEQA
cujoe
in
Fight Prostate Cancer
2 months ago
breast pain
I’m currently off work, waiting on spine surgery since last October, but the last few months I’ve been getting pain in my left boob. I don’t know if it to do with my back, or if it’s manopause, HRT. Some days it’s quite bad, then another day nothing. But it’s there, more than it’s not. I don’t want
I’m currently off work, waiting on spine surgery since last October, but the last few months I’ve been getting pain in my left boob. I don’t know if it to do with my back, or if it’s manopause, HRT. Some days it’s quite bad, then another day nothing. But it’s there, more than it’s not. I don’t want
Red448
in
Women's Health
3 months ago
Looking for support in supporting my husband
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time I am posting to this group. In October 2023 my husband noticed more frequent use of the bathroom. He had his PSA tested in January which was
Smmac15
in
Advanced Prostate Cancer
3 months ago
Back home & overthinking
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain. So I decided not to to with the emergency
Faylen34
in
Endometriosis UK
3 months ago
Is this decision right for me
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
old64horn
in
Advanced Prostate Cancer
3 months ago
Most recent laparoscopy came back negative, feel so invalidated and down, please help
Hello all, I'm quite late to the party but after my most recent laparoscopy yesterday, I feel very deflated and invalidated. I'm sorry for the long post but here is my story so far... From age 15 (I'm 32 now) I had terrible period pain, to the point I was bedridden some days and missing school, which
Hello all, I'm quite late to the party but after my most recent laparoscopy yesterday, I feel very deflated and invalidated. I'm sorry for the long post but here is my story so far... From age 15 (I'm 32 now) I had terrible period pain, to the point I was bedridden some days and missing school, which
rach3110
in
Endometriosis UK
3 months ago
ED, ADT and Orgasm
I've been on Lupron for prostate cancer and am in my 4th of 6 months. I finished radiation therapy a month ago. I'm able to get a really good erection from 100 mg of Viagra but require direct stimulation. Before ADT, I could get hard just *thinking* about sex. Several guys have told me I'm lucky I
I've been on Lupron for prostate cancer and am in my 4th of 6 months. I finished radiation therapy a month ago. I'm able to get a really good erection from 100 mg of Viagra but require direct stimulation. Before ADT, I could get hard just *thinking* about sex. Several guys have told me I'm lucky I
PrettyUnhappyGuy
in
Erectile Dysfunction Support
3 months ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
3 months ago
Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Partner
in
Anxiety and Depression Support
3 months ago
Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Administrator
in
PTSD Support
3 months ago
Ask the Authors Q & A: The Complete Guide to Overcoming Health Anxiety
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
Join us for a Live Free Q & A on Tuesday August 6th at 12 pm ET with the authors of The Complete Guide to Overcoming Health Anxiety: How to Live Life to the Fullest...Because You're Not Dead (Yet). Josh Spitalnick, PhD, and Michael Stier, LCPC, leveraged their 30+ years of combined clinical experiences
ADAATeamRachel
Partner
in
Major Depressive Disorder (MDD) Support
3 months ago
Introduction and help navigating our NHS for Thyroid hormone replacement. Tips and support needed as it's a very tricky business.
Hi everyone. Been on my autoimmune thyroid journey for a few years now, was on 125mcg teva for a while, this dose almost suppressed the tsh, lowest was 0.003, it did however rise to 0.03. Gp reduced dose to 100mcg and TSH has now risen to 2.1. However (my bio gives loads of symptoms) I'm feeling steadily
Hi everyone. Been on my autoimmune thyroid journey for a few years now, was on 125mcg teva for a while, this dose almost suppressed the tsh, lowest was 0.003, it did however rise to 0.03. Gp reduced dose to 100mcg and TSH has now risen to 2.1. However (my bio gives loads of symptoms) I'm feeling steadily
Curlywurly70
in
Thyroid UK
3 months ago
My recent Hysteroscopy
Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it done, I assure you I was in the best hands and very well looked after. My gynaecologist is absolutely lovely and I am very lucky. She and the
Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it done, I assure you I was in the best hands and very well looked after. My gynaecologist is absolutely lovely and I am very lucky. She and the
pickles36
in
Endometriosis UK
3 months ago
A bit shell shocked by Hysterectomy recommendation
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
Charlamine2023
in
Endometriosis UK
3 months ago
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