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Systemic sclerosis
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Reoccurring, extremely painful sore throat.
I’m so sorry, I have rambled on quite a bit 🙈 I just wanted to know if this could be in anyway connected to the
systemic
sclerosis
? Thanks for reading my ramble 🙈😊
I’m so sorry, I have rambled on quite a bit 🙈 I just wanted to know if this could be in anyway connected to the
systemic
sclerosis
? Thanks for reading my ramble 🙈😊
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Holiday insurance
I have
systemic
sclerosis
, Sjögren's and raynauds.
I have
systemic
sclerosis
, Sjögren's and raynauds.
maur60
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
This thing called systemic sclerosis!
Hi everybody, just logged on to the sruk site, and read all the posts. It truly is amazing that most of the posts mention lots of the irritating things that i am experiencing, for eg, feeling tired! pain in joints! itchy skin! etc etc!! Isn"t this condition amazing!! keeps throwing these odd symptoms
Hi everybody, just logged on to the sruk site, and read all the posts. It truly is amazing that most of the posts mention lots of the irritating things that i am experiencing, for eg, feeling tired! pain in joints! itchy skin! etc etc!! Isn"t this condition amazing!! keeps throwing these odd symptoms
fairy56
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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Systemic sclerosis and cramp
I have been recently been diagnosed with
systemic
sclerosis
and secondary raynauds but currently am fit and active. However the last couple of weeks I get cramp in either the bottom of thigh muscle at the back near my knee or in my calf at the top near my knee, weather running or swimming.
I have been recently been diagnosed with
systemic
sclerosis
and secondary raynauds but currently am fit and active. However the last couple of weeks I get cramp in either the bottom of thigh muscle at the back near my knee or in my calf at the top near my knee, weather running or swimming.
Sylviaherring
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Fatigue
I have
systemic
sclerosis
and raynauds. I kno it’s been cold this week and my fingers are really bad but I have felt so tired this week. Usually I like to go out somewhere most days but this past week I haven’t had the energy to go out and spend half the day in bed.
I have
systemic
sclerosis
and raynauds. I kno it’s been cold this week and my fingers are really bad but I have felt so tired this week. Usually I like to go out somewhere most days but this past week I haven’t had the energy to go out and spend half the day in bed.
Pennypetra
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
LINX reflux management, does it work
Has anyone with
systemic
sclerosis
tried the LINX reflux management system. I take PPI's and avoid acidic and fatty foods but it's still a nightmare.
Has anyone with
systemic
sclerosis
tried the LINX reflux management system. I take PPI's and avoid acidic and fatty foods but it's still a nightmare.
maur60
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Worried
Hi I have had limited
systemic
sclerosis
and so overlaps for a few years. I’m under a local rheumatologist and the royal free. I’ve never had any difficulty with Gi issues and had an all clear barium swallow.
Hi I have had limited
systemic
sclerosis
and so overlaps for a few years. I’m under a local rheumatologist and the royal free. I’ve never had any difficulty with Gi issues and had an all clear barium swallow.
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
My first broken heart 💔
I’m waiting to see Dr John Pauling who is a
systemic
sclerosis
specialist based in Bath! My rheumatologist and Dr John Pauling have arranged a few things (one being Holter Monitoring) before my visit with him! Slight delay in my appointment because I am Welsh !!
I’m waiting to see Dr John Pauling who is a
systemic
sclerosis
specialist based in Bath! My rheumatologist and Dr John Pauling have arranged a few things (one being Holter Monitoring) before my visit with him! Slight delay in my appointment because I am Welsh !!
JazPont
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Hi I am Seaside88
I am 64 and I suffer with a long list of conditions including Crest, Limited
Systemic
Sclerosis
, my Raynaud's is severe and I also have had ME and Fibromyalgia for over 20 years. I have a number of other chronic conditions and I take a whole load of medication for them.
I am 64 and I suffer with a long list of conditions including Crest, Limited
Systemic
Sclerosis
, my Raynaud's is severe and I also have had ME and Fibromyalgia for over 20 years. I have a number of other chronic conditions and I take a whole load of medication for them.
Seaside88
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Whaaaaat?
Systemic
Sclerosis
. From the date of entry it looks like it comes after my last appt from the connective tissue disorder clinic. Yes, that's my primary diagnosis, so now I know what my Raynaud's is secondary to.
Systemic
Sclerosis
. From the date of entry it looks like it comes after my last appt from the connective tissue disorder clinic. Yes, that's my primary diagnosis, so now I know what my Raynaud's is secondary to.
Lupiknits
in
LUPUS UK
7 years ago
Mucositis
I have
Systemic
Sclerosis
(no skin involvement- all internal), I also have Sjogrens. After almost 3 years of a permanently sore mouth I have a diagnosis of Mucositis - I do NOT have cancer nor have I had chemotherapy or radiotherapy.
I have
Systemic
Sclerosis
(no skin involvement- all internal), I also have Sjogrens. After almost 3 years of a permanently sore mouth I have a diagnosis of Mucositis - I do NOT have cancer nor have I had chemotherapy or radiotherapy.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
hip pain in systemic sclerosis
I was diagnosed with
systemic
sclerosis
and secondary raynaurds in December ( a week before Christmas) however, luckily very early.
I was diagnosed with
systemic
sclerosis
and secondary raynaurds in December ( a week before Christmas) however, luckily very early.
Sylviaherring
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Happy new year
Thank you to everyone who helped me with my questions when I found out I Had
systemic
sclerosis
Sam x
Thank you to everyone who helped me with my questions when I found out I Had
systemic
sclerosis
Sam x
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
General prognosis years after diagnosis.
Doctors always thought it might have been primary even though bloods always came back slightly positive for ANA’s, but after testing positive for the anti centromere antibody in Feb 2017 they now think I have Limited cutaneous
systemic
sclerosis
, other symptoms include broken blood vessels on face and
Doctors always thought it might have been primary even though bloods always came back slightly positive for ANA’s, but after testing positive for the anti centromere antibody in Feb 2017 they now think I have Limited cutaneous
systemic
sclerosis
, other symptoms include broken blood vessels on face and
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Vertical splitting nail problem.
I have
Systemic
Sclerosis
and am on lots of medications ..mycophenolate, clopidogrel etc. so wonder if it is the meds I have to take or if it is the scleroderma to blame.
I have
Systemic
Sclerosis
and am on lots of medications ..mycophenolate, clopidogrel etc. so wonder if it is the meds I have to take or if it is the scleroderma to blame.
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Research: Non-celiac Gluten Sensitivity and Rheumatic Diseases [plus other autoimmune diseases and fibromyalgia]
They did a long term study over a number of years in regards to non-coeliac gluten sensitivity (NCGS) on a larger group of those with fibromyalgia and some smaller case studies on those with spondyloarthritis and other autoimmune conditions including rheumatoid arthritis,
systemic
sclerosis
, Raynaud's
They did a long term study over a number of years in regards to non-coeliac gluten sensitivity (NCGS) on a larger group of those with fibromyalgia and some smaller case studies on those with spondyloarthritis and other autoimmune conditions including rheumatoid arthritis,
systemic
sclerosis
, Raynaud's
Saggyuk
in
Thyroid UK
7 years ago
Winter work clothes for the office
Hello, I have limited
systemic
sclerosis
and suffer quite badly with Raynaud's phenomenon. I usually work from home but will be going into head office for a week-long project at the end of January, and am looking to put some outfits together that look professional and keep me warm.
Hello, I have limited
systemic
sclerosis
and suffer quite badly with Raynaud's phenomenon. I usually work from home but will be going into head office for a week-long project at the end of January, and am looking to put some outfits together that look professional and keep me warm.
quebec
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
First Rheumatology appointment since positive test.
Doctor thinks I have early onset limited cutaneous
systemic
sclerosis
, although, many other symptoms such as broken blood vessels on my face have been there for at least a year and are worsening 😫 and also, more recently heartburn.
Doctor thinks I have early onset limited cutaneous
systemic
sclerosis
, although, many other symptoms such as broken blood vessels on my face have been there for at least a year and are worsening 😫 and also, more recently heartburn.
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Next line of treatment for chronic ITP - Revolade being considered. Sorry for long post.
I already have cataracts developing and am treated for dry eyes, secondary to limited cutaneous
systemic
sclerosis
(autoimmune).
I already have cataracts developing and am treated for dry eyes, secondary to limited cutaneous
systemic
sclerosis
(autoimmune).
LynnCox
in
ITP Support Association
7 years ago
Diagnosed yesterday!
Yesterday i was diagnosed with
Systemic
Sclerosis
/Scleroderma. I have suffered from Raynaud's for years. Can anyone advise on their experiences in relation to continuing working or medical retirement?
Yesterday i was diagnosed with
Systemic
Sclerosis
/Scleroderma. I have suffered from Raynaud's for years. Can anyone advise on their experiences in relation to continuing working or medical retirement?
Chrisey35
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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