In December I ordered my meds online as usual, then requested to have access to more of my records online. I didn't expect much.
Today I went on to order more meds and make a general "I'm getting skinnier" GP appt (14 Feb is earliest) . I pressed various online options to see if I had more acess to my own information. I do.
What do I see? Systemic Sclerosis. From the date of entry it looks like it comes after my last appt from the connective tissue disorder clinic. Yes, that's my primary diagnosis, so now I know what my Raynaud's is secondary to. I'm so gumswizzled that nobody thought to mention this in passing it's making me very hot under my thermals. Anger may be a Raynaud's reliever today. At my earliest rheumy appts I did see on my blood tests that there were markers there for Systemic Sclerosis but that's all. I thought the markers weren't significant enough.
I might be on the wrong forum now but I think my malar rash gives me a free pass.
I'm writing all this before fully processing how I feel. Then I'll take a good look at the blood tests. Then I'll calm down by taking my own advice to others that the label doesn't matter as long as you get treatment. 😢