Experiences with

Stem cell and bone marrow transplants

This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and

Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7

A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,

Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have

Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George

Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or

found this on my computer in box today you have probably seen it too but putting it on here hopefully

I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.

Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so

I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put

hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?

I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in

I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said

As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note

So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean

Hello everyone….. can I ask if there is anyone on this forum who has had a single/double lung transplant at the age limit, or above of 65 years?

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Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but

Hi All Am getting concerned about my husband - he had a liver transplant in 2017 due to NASH cirrhosis and suffers from COPD, Asthma and Diabetes Type 2. He has now tested positive for Covid for 60 days and has had 1 x anti viral medication from St Thomas, 4 x antibiotics, 3 x steroids and remains

Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for