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Stem cell and bone marrow transplants
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Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
1 year ago
I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
1 year ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
1 year ago
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What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
1 year ago
5 Presents that Make Life with a Kidney Transplant Easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
JackieJ_NKF
Partner
in
Kidney Transplant
1 year ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
1 year ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
AndrewT
in
Vasculitis UK
1 year ago
Covid Self Tests, For Vulnerable Folk.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
AndrewT
in
Kidney Transplant
1 year ago
Haemochromatosis and my liver
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
HydroBee
in
British Liver Trust
1 year ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
1 year ago
A brief update post Venetoclax+Rituximab - treatment number 4
My final option was Venetoclax + Rituximab which is standard treatment for relapsed CLL in the UK and consolidation with a bone marrow/
stem
cell
transplant
was discussed, depending on how my CLL responded. I recently had my 6 month assessment of MRD and the results are now in.
My final option was Venetoclax + Rituximab which is standard treatment for relapsed CLL in the UK and consolidation with a bone marrow/
stem
cell
transplant
was discussed, depending on how my CLL responded. I recently had my 6 month assessment of MRD and the results are now in.
Jm954
Administrator
in
CLL Support
2 years ago
Do natural supplements work to reduce high cholesterol?
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
Pr0jection
in
PMRGCAuk
1 year ago
A giant cell arteritis suffer
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
BM16
in
PMRGCAuk
1 year ago
Seeking feedback for a project
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
cl123
in
Kidney Disease
1 year ago
Post transplant
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Lippy42
in
British Liver Trust
2 years ago
4 of 5 treatments for covid in immunocompromised being removed in NHS
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
Harvist
in
CLL Support
2 years ago
Any help out there? I have CMML Leukaemia.
I just wondered if anyone can help me, it is a very rare type and I am finding it so difficult to find anyone who knows if there is any treatment for it, I know the only cure would be a
stem
cell
transplant
....as it is with all Leukaemia.
I just wondered if anyone can help me, it is a very rare type and I am finding it so difficult to find anyone who knows if there is any treatment for it, I know the only cure would be a
stem
cell
transplant
....as it is with all Leukaemia.
yvonden
in
Leukaemia CARE
2 years ago
liver transplant
we got the call on November 14 at 11:30 pm And my husband had his liver transplant at 3 am The surgery took 6 hours then he stayed 3 days in ICU today he is in regular room . Alhamdulilah.
we got the call on November 14 at 11:30 pm And my husband had his liver transplant at 3 am The surgery took 6 hours then he stayed 3 days in ICU today he is in regular room . Alhamdulilah.
Mysa1981
in
PBC Foundation
2 years ago
Kidney biopsy for elevated creatinine
My 68 yr old husband had a kidney transplant 7 weeks ago. We are at the hospital now getting a biopsy due to his rising creatinine levels. I have been so worried that his body is rejecting the new kidney, but after reading these informative posts, I am hopeful and less nervous.
My 68 yr old husband had a kidney transplant 7 weeks ago. We are at the hospital now getting a biopsy due to his rising creatinine levels. I have been so worried that his body is rejecting the new kidney, but after reading these informative posts, I am hopeful and less nervous.
sukki2022
in
Kidney Disease
2 years ago
APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
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