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It's back.
First, the good news: The results of my 1 year post surgery colonoscopy show no colon cancer. Unfortunately, the results of my 1 year post surgery contrasting CT scan show that the ovarian cancer has recurred. I’m somewhere between relieved and sad because now the waiting is over, but I can't find
First, the good news: The results of my 1 year post surgery colonoscopy show no colon cancer. Unfortunately, the results of my 1 year post surgery contrasting CT scan show that the ovarian cancer has recurred. I’m somewhere between relieved and sad because now the waiting is over, but I can't find
CynD
in
My Ovacome
6 years ago
Sickle Cell NewsWeek
SickleCellNewsWeek He did not pay a cent for the bone marrow transplant that cured him of SCD. Anyone can access the opportunity! http://bit.ly/2R1wmda Lawyer, actress, song-writer, singer, broadcaster Tosin Abisona Bucknor (1981-2018) on passion for SCD awareness – ‘I believed I wouldn’t live to 21
SickleCellNewsWeek He did not pay a cent for the bone marrow transplant that cured him of SCD. Anyone can access the opportunity! http://bit.ly/2R1wmda Lawyer, actress, song-writer, singer, broadcaster Tosin Abisona Bucknor (1981-2018) on passion for SCD awareness – ‘I believed I wouldn’t live to 21
sicklecellnews
in
Sickle Cell Society
6 years ago
SCD and Keto
Hi, has anyone tried keto diet to help with sickle cell crisis? My niece has SCD has been in the hospital for months. She had to Withdraw from college also. The pain is relentless this time. I’m just thinking outside the box. She is on so much pain meds she can barely keep her eyes open. This can’t
Hi, has anyone tried keto diet to help with sickle cell crisis? My niece has SCD has been in the hospital for months. She had to Withdraw from college also. The pain is relentless this time. I’m just thinking outside the box. She is on so much pain meds she can barely keep her eyes open. This can’t
Suzyannb
in
Sickle Cell Society
6 years ago
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Sickle Cell News Week
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
SickleCellNewsWeek Cecilia Tiwaah Abrefa recalls waking up one day to find she could not lift her limbs or sit unaided – it took six years to get back to (a semblance of) normal http://bit.ly/2KasXpR High altitudes are proven crises-triggers. Yet Kevin is adamant he wants to be a FIGHTER PILOT. He
sicklecellnews
in
Sickle Cell Society
6 years ago
After NHL and BMT
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Hi, I’m a caregiver of my husband with NHL ALCL Alk+ and Leptomenges. Took 9 weeks, multiple hospitals and doctors to diagnose summer 2017. He had 5 rounds of CHOEP and then experienced horrible headaches and a seizure which resulted in leptomeneges diagnosis and new course of chemo. After scans with
Onedayatatime2
in
Non Hodgkin's Lymphoma Friends
6 years ago
Need info on raising red cell count
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Hello I have been here on and off for about a year. I know you are all going through your individual health issues and I hope and pray you find the answers you are looking for. I joined because my brother was diagnosed with CLl q11 a little over three years ago. He is 55 years old and had been in great
Lorray
in
CLL Support
6 years ago
GCA and black outs?
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Devonspinner
in
PMRGCAuk
6 years ago
cll w/ a twist - Stem cell
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
chemosuxs
in
CLL Support
6 years ago
Is hair loss a given?
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
WileyFrench
in
MPN Voice
6 years ago
SICKLE CELL NEWSWEEK
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
sicklecellnews
in
Sickle Cell Society
6 years ago
SickleCellNewsWeek
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
sicklecellnews
in
Sickle Cell Society
6 years ago
I'm new here! This is my Story...
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Actuallyclaire
in
MPN Voice
6 years ago
Hip pain
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
kellyOd
in
Melanoma Caregivers
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
Flu jab & getting ready for winter
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
HEALING FOR SICKLE CELL DISEASE
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
sepremesicklecell
in
Sickle Cell Society
6 years ago
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Simon96
in
MPN Voice
6 years ago
Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
Mandymoos8
in
Pernicious Anaemia Society
6 years ago
Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
lankisterguy
Volunteer
in
CLL Support
6 years ago
sickle cell news - oct-deec 2018 edition
1.Sickle Cell Trait (SCT): the good, the bad, the deadly 2.SCT not always advantageous or benign 3.SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD 4.SCT: former NFL player James Clarke Ryan nearly nearly knocked out by Sickle Cell Trait, turns activist impatient
1.Sickle Cell Trait (SCT): the good, the bad, the deadly 2.SCT not always advantageous or benign 3.SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD 4.SCT: former NFL player James Clarke Ryan nearly nearly knocked out by Sickle Cell Trait, turns activist impatient
sicklecellnews
in
Sickle Cell Society
6 years ago
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