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anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
11 months ago
What clinic trials have been successful?
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
Docker53
in
Advanced Prostate Cancer
6 days ago
Final lap?
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
Four years on and grateful for that. Enzalutamide stopped working earlier in the year. PSA doubling. Lesion in spine led to pathological fracture and some pressure on the spinal cord. Radiation to spine and pain relieved. Docetaxel started but discontinued due to severe allergic reaction. Nothing for
FortyWinks
in
Advanced Prostate Cancer
16 days ago
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Dramatic change to palliative from treatable after 6 and a half years
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
konichiwa12
in
Advanced Prostate Cancer
25 days ago
Next treatment?
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
Docker53
in
Advanced Prostate Cancer
26 days ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
7 months ago
Ketogenic/Paleo diet
I have been following a ketogenic diet with very little dairy. It is very low carb and I've lost weight and generally feel better on it. However, a recent blood test showed that I have a low sodium level. Whilst I do season food I don't eat any processed food, so no crisps, savoury snacks etc. that
I have been following a ketogenic diet with very little dairy. It is very low carb and I've lost weight and generally feel better on it. However, a recent blood test showed that I have a low sodium level. Whilst I do season food I don't eat any processed food, so no crisps, savoury snacks etc. that
Miserere
in
PMRGCAuk
1 year ago
Over range copper and zinc
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
Noelnoel
in
Thyroid UK
1 year ago
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels in patients with thyroid tumors
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Unexplained lack of PMR pains!
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Hi, about 2weeks ago I broke my ankle , kitchen cabinet fell on it !! I had some good advice from Pmrpro . since then.I've had a few complications, constipation, low sodium and potassium but they seem to have been sorted out . My question is that my Pmr pains all seem to have gone away .! Do you think
Comben
in
PMRGCAuk
1 year ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
2 months ago
Ferritin and Haemoglobin levels
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
NLondon43
in
Advanced Prostate Cancer
2 months ago
What TSH level is too low on NDT + low sodium
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Hi All, I switched to NDT 6 weeks ago and have been dialing in my dose. I take Erfa NDT. I raised it up to 1 3/4 tablets, and have just tested my thyroid. I've read a lot of discussions here about NDT and TSH and from what I understand, from this big study when TSH gets lower than 0.3, it increases
Juliet_22
in
Thyroid UK
1 year ago
IBS (d) worse on holiday
Husband & I decided to have a few days break after new year & booked 3 nights in a hotel. Fine the first day & then off I went. First movement normal & then becoming more liquid plus clear mucus, nausea, cramps & burping. Thank god for Imodium & Buscopan. I did not eat foolishly, don’t drink or smoke
Husband & I decided to have a few days break after new year & booked 3 nights in a hotel. Fine the first day & then off I went. First movement normal & then becoming more liquid plus clear mucus, nausea, cramps & burping. Thank god for Imodium & Buscopan. I did not eat foolishly, don’t drink or smoke
maccafan1954
in
IBS Network
7 months ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
8 months ago
Change of diet
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Hidden
in
Pelvic Radiation Disease Association
8 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Night sweats
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Birdlady2021
in
MPN Voice
1 year ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
4 months ago
iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
1 year ago
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