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Sodium iodide
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Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
1 year ago
Low Blood Pressure.
i have very different problems concerning my A-Fib compared to most of you. So will go in to a bit of history of my latest health fiasco. I am 77 and have had low blood pressure a long as I can remember. I developed A-Fib about 7 years ago. Therefore I can’t take the Beta blockers because they
i have very different problems concerning my A-Fib compared to most of you. So will go in to a bit of history of my latest health fiasco. I am 77 and have had low blood pressure a long as I can remember. I developed A-Fib about 7 years ago. Therefore I can’t take the Beta blockers because they
Bankviewgal
in
AF Association
1 year ago
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Virus affecting IBS-D
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
I recently had a mild virus (headache, stomach pains and bad taste in mouth), which made me feel very tired. However, I was still able to go about my daily life whilst taking paracetamol to keep me going. The virus also affected my stomach causing loose bowel movements and occasional diarrhoea after
laurajn087
in
IBS Network
10 months ago
Besremi Update 15 Months
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Elizka
in
MPN Voice
1 year ago
Iron: Not Just a Passive Bystander in AITD (repeat)
A new paper discussing that very common issue - iron. I've only glanced at it so please comment freely. [i]
Iron: Not Just a Passive Bystander in AITD
[/i] [i]by Michał Szklarz[/i] [i]Katarzyna Gontarz-Nowak[/i] [i]Wojciech Matuszewski[/i] [i]Elżbieta Bandurska-Stankiewicz[/i] [i]Clinic
A new paper discussing that very common issue - iron. I've only glanced at it so please comment freely. [i]
Iron: Not Just a Passive Bystander in AITD
[/i] [i]by Michał Szklarz[/i] [i]Katarzyna Gontarz-Nowak[/i] [i]Wojciech Matuszewski[/i] [i]Elżbieta Bandurska-Stankiewicz[/i] [i]Clinic
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Amiodarone
I just wanted to clear up such negative responses to amiodarone. What is the mortality rate for amiodarone? In unadjusted analysis, amiodarone recipients had a slightly higher risk of death compared to non-recipients in the full cohort (87 vs 73 deaths per 1,000 person-years; P<0.001) but not in the
I just wanted to clear up such negative responses to amiodarone. What is the mortality rate for amiodarone? In unadjusted analysis, amiodarone recipients had a slightly higher risk of death compared to non-recipients in the full cohort (87 vs 73 deaths per 1,000 person-years; P<0.001) but not in the
kocoach
in
Atrial Fibrillation Support
1 year ago
Laxido - diarrhoea
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
hi there, I was suffering with constipation so my doctor prescribed Laxido. The label from the pharmacy said take one twice a day generally but if constipated you can take 6 in 1 hour. I took 5 in 1 hour last Saturday. Since then, I have loose stools/diarrhoea. I have bloating and cramps also. I thought
LMEB_92
in
IBS Network
11 months ago
Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Kwenda
in
CLL Support
10 months ago
Don't know What's happening to me!!
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
JanboC
in
PMRGCAuk
1 year ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
8 months ago
Ectopics from thyroid?
Hi everyone, I wanted to ask , I had rai 2013 and a year after started experiencing ectopic beats. Took a hold of my life. They come amd go , hearts tests all clear. Does anyone else get them and think they are from not having a thyroid? Getting a dose right is near impossible , and drs say.no. connection
Hi everyone, I wanted to ask , I had rai 2013 and a year after started experiencing ectopic beats. Took a hold of my life. They come amd go , hearts tests all clear. Does anyone else get them and think they are from not having a thyroid? Getting a dose right is near impossible , and drs say.no. connection
Contra21
in
Thyroid UK
10 months ago
finding Answers
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
LadyHash
in
IBS Network
11 months ago
update
apologies for the vague post.. I was diagnosed as over active thyroid I was put in carbimazole at first which worked however then i became unwell and it dropped my iron levels and white blood cell count. I was then put in propylthiouracil 100mg daily then I had RAI in march this year. I have been
apologies for the vague post.. I was diagnosed as over active thyroid I was put in carbimazole at first which worked however then i became unwell and it dropped my iron levels and white blood cell count. I was then put in propylthiouracil 100mg daily then I had RAI in march this year. I have been
Rubydoo23
in
Thyroid UK
10 months ago
Normal bloods
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Mayadill
in
PMRGCAuk
1 year ago
Latest blood results
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Meerkat1234
in
Thyroid UK
1 year ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
6 months ago
contrast dye
Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT scan on my lungs with contrast dye. I suffer with many allergies and wondered if anyone on here has had an adverse reaction to this iodine based dye? Many thanks 😊
Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT scan on my lungs with contrast dye. I suffer with many allergies and wondered if anyone on here has had an adverse reaction to this iodine based dye? Many thanks 😊
Barbs52
in
LUPUS UK
1 year ago
Provenge
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
I'm at the 5-year mark on Lupron only (except for moderate demos man). All-time low PSA was 0.5 in 4/2021. This year 1.01, .98, .97 (two months ago). PSA up and down over the years. Axumin PET scheduled for January, last 9/2021. At least three bone Mets, two in vertebrae, one inside hip socket. Am I
dhccpa
in
Advanced Prostate Cancer
8 months ago
BTF RAI Study
This study sponsored by the BTF looks like it will ve very useful https://www.btf-thyroid.org/news/2023-btf-research-award-winner?fbclid=iwar3enrjb1xoxe5l10tf2ap64qbpav6pchgch4nlafezvsgfjgncrdp9mdu0 . A lot of thyroid research is fairly useless so it's good to see a study that will be useful whatever
This study sponsored by the BTF looks like it will ve very useful https://www.btf-thyroid.org/news/2023-btf-research-award-winner?fbclid=iwar3enrjb1xoxe5l10tf2ap64qbpav6pchgch4nlafezvsgfjgncrdp9mdu0 . A lot of thyroid research is fairly useless so it's good to see a study that will be useful whatever
jimh111
in
Thyroid UK
10 months ago
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