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iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
1 year ago
Diazepam Stomach Cramps
I’ve had numerous attempts at getting off Diazepam with sometimes a couple of years clean . Anyway this year I started taking them again. I had gone up to 40mg a day. I had considered that a low amount , one of my episodes I was taking a lot more than that. At 40mg I started a very slow taper dropping
I’ve had numerous attempts at getting off Diazepam with sometimes a couple of years clean . Anyway this year I started taking them again. I had gone up to 40mg a day. I had considered that a low amount , one of my episodes I was taking a lot more than that. At 40mg I started a very slow taper dropping
dexter92
in
Anxiety and Depression Support
10 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
1 year ago
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Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
AndreaBabyC
in
Kidney Disease
1 year ago
Radium-223 and [177Lu]Lu-PSMA
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
westjl2
in
Advanced Prostate Cancer
7 months ago
ketchup
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
catsup
in
Advanced Prostate Cancer
7 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
7 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
7 months ago
Has anyone been using TUDCA or Restore Gold? Have you seen slowing or halting of progression of symptoms?
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
kathy775
in
Cure Parkinson's
1 year ago
loperamide
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
Finefornow
in
IBS Network
10 months ago
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
7 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
1 year ago
Light headed.
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
benmaise
in
AF Association
1 year ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
7 months ago
repeat blood test re U&E's
hiya, i received a phone call regarding my blood test (from yesterday) and I have been told the dr needs to repeat my U&E's but no explanation. can anyone give me a reason why they are asking for this plz Urea and electrolytes Serum sodium level 129 mmol/L [133.0 - 146.0]; Below low reference limit
hiya, i received a phone call regarding my blood test (from yesterday) and I have been told the dr needs to repeat my U&E's but no explanation. can anyone give me a reason why they are asking for this plz Urea and electrolytes Serum sodium level 129 mmol/L [133.0 - 146.0]; Below low reference limit
sussie666
in
Thyroid UK
1 year ago
sodium update
I have just rung my Gp re. Hyponatremia Test .. Receptionist said Dr. Has seen results of sodium test and sees no reason for further tests as ‘ I have been borderline for YEARS’. I asked when first test was done . Seems it was only last year. May 22. 134. Sep22. 133. July 23. 130.
I have just rung my Gp re. Hyponatremia Test .. Receptionist said Dr. Has seen results of sodium test and sees no reason for further tests as ‘ I have been borderline for YEARS’. I asked when first test was done . Seems it was only last year. May 22. 134. Sep22. 133. July 23. 130.
Mostew
in
MPN Voice
1 year ago
Alcohol - I Did a Silly Thing
Yesterday to celebrate my daughters 50th birthday, my son in law chartered a beautiful boat for the afternoon - 3hrs. It was wonderful and from the time we left the harbour the four of us were plied with nice things to eat and wine. Now I'd already had a drink before boarding the boat and my wine consumption
Yesterday to celebrate my daughters 50th birthday, my son in law chartered a beautiful boat for the afternoon - 3hrs. It was wonderful and from the time we left the harbour the four of us were plied with nice things to eat and wine. Now I'd already had a drink before boarding the boat and my wine consumption
jeanjeannie50
in
Atrial Fibrillation Support
1 year ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
10 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
10 months ago
9 year old is so fed up
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Mumanddad1
in
ERIC
1 year ago
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