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Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
10 months ago
Vacation from ADT
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
gsun
in
Advanced Prostate Cancer
10 months ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
10 months ago
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Life Changing
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Old_Hall
in
PSP Association
1 year ago
Has anyone tried Hyperbaric oxygen therapy?
I've been going 2 to 3 times per week for four months, and it's made a massive difference in my energy levels šā
I've been going 2 to 3 times per week for four months, and it's made a massive difference in my energy levels šā
HealthCoachLupus
in
LUPUS UK
1 year ago
Genomic testing
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
runtrails
in
Advanced Prostate Cancer
10 months ago
Questions about progesterone and prostate cancer
My onco continues to resist prescribing low dose E2 to help minimize some of my ADT SEs. Following my last appointment he suggested progesterone as an alternative. - Has anybody here had success with using progesterone while on ADT? - Any reasons to steer clear of progesterone? Thanks
My onco continues to resist prescribing low dose E2 to help minimize some of my ADT SEs. Following my last appointment he suggested progesterone as an alternative. - Has anybody here had success with using progesterone while on ADT? - Any reasons to steer clear of progesterone? Thanks
Carlosbach
in
Advanced Prostate Cancer
10 months ago
family with OCD
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
I am 47 and have had OCD MY entire life. It's not mostly just my thoughts. My son is 18 and struggles when religious OCD. My daughter is 21 and her OCD has exploded over the past 4-5 years. She has been diagnosed with OCPD. She had been hospitalized 14 times for suicidal ideation or attempts. She
jcozy
in
My OCD Community
1 year ago
Zolodex and HRT
hi there, my diagnosis is very new and Iāve just had my first zolodex injection this afternoon. I was also given HRT patches containing oestrogen which Iāve put on. But Iām confused as the zolodex surely stoped oestrogen production so why have I been put on patches that give it back? Surely it will counteract
hi there, my diagnosis is very new and Iāve just had my first zolodex injection this afternoon. I was also given HRT patches containing oestrogen which Iāve put on. But Iām confused as the zolodex surely stoped oestrogen production so why have I been put on patches that give it back? Surely it will counteract
Chronsandadenomysois
in
Adenomyosis Advice Association
10 months ago
How to convince your GP a suppressed TSH is ok?
For years Iāve had a suppressed TSH following a trial of T3 probably 5 years ago which didnāt work and I havenāt taken it for around 4 years (need to check my records for exact dates). My GP has always been fine with it, and even the rubbish NHS endo agreed it would take time to recover - or as I know
For years Iāve had a suppressed TSH following a trial of T3 probably 5 years ago which didnāt work and I havenāt taken it for around 4 years (need to check my records for exact dates). My GP has always been fine with it, and even the rubbish NHS endo agreed it would take time to recover - or as I know
CornishChick
in
Thyroid UK
10 months ago
Low cortisol but within normal nhs range
I have had 2 blood cortisol tests at 9am 1st one was 133 nmol/L and the 2nd one was 233 nmol/L . I asked to have a short synacten test to see if my pituitary is failing ( hypopituitarism) , as one of my big symptoms is low motivation, tiredness, hypothyroidism and zero libido for years despite being
I have had 2 blood cortisol tests at 9am 1st one was 133 nmol/L and the 2nd one was 233 nmol/L . I asked to have a short synacten test to see if my pituitary is failing ( hypopituitarism) , as one of my big symptoms is low motivation, tiredness, hypothyroidism and zero libido for years despite being
minus
in
Thyroid UK
10 months ago
CT and Bone Scan 2 weeks after PSMA PET?
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
sixmongoos
in
Advanced Prostate Cancer
10 months ago
Post-ADT, does one's ability to maintain weight get better?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
Derf4223
in
Advanced Prostate Cancer
10 months ago
Clinical Trial Considerations??
Iāve been presented with a clinical trial and Iām open to feedback. Background: Iām 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4ās. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
Iāve been presented with a clinical trial and Iām open to feedback. Background: Iām 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4ās. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
10 months ago
Hashimotos?
I have had elevated TSH for about 10 years and my GP did not seem very keen to do anything. I got a monitor my health test on the 12/9/23 and advanced thyroid check with Medichecks on the 11/10/23. The results are below and I would really appreciate any support. I have booked an appointment with one
I have had elevated TSH for about 10 years and my GP did not seem very keen to do anything. I got a monitor my health test on the 12/9/23 and advanced thyroid check with Medichecks on the 11/10/23. The results are below and I would really appreciate any support. I have booked an appointment with one
Susanmcg
in
Thyroid UK
10 months ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 āThis is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,ā said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 āThis is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,ā said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
10 months ago
advice please
hi everyone . Hereās my story so far .. havenāt been ārightā since May 2021 . First symptoms were hair loss and tiredness. I contacted the GP who did my bloods and said my thyroid was slightly low and wanted to recheck in 8 weeks T4 = 10.4 and TSH 0-8 So they rechecked in july 22 and said again
hi everyone . Hereās my story so far .. havenāt been ārightā since May 2021 . First symptoms were hair loss and tiredness. I contacted the GP who did my bloods and said my thyroid was slightly low and wanted to recheck in 8 weeks T4 = 10.4 and TSH 0-8 So they rechecked in july 22 and said again
Jacksondog
in
Thyroid UK
10 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
10 months ago
High-Dose Transdermal Estradiol as ADT
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Horse12888
in
Advanced Prostate Cancer
10 months ago
Question re:periods
Hello everyone, Up until I started Levo in May this year I was having regular periods every 4 weeks. I think it was my own cycle rather than just an hrt āwithdrawal bleedā from my hrt, as the periods were very heavy each time and lasted about 7 days. I had spells of missing a couple of periods here
Hello everyone, Up until I started Levo in May this year I was having regular periods every 4 weeks. I think it was my own cycle rather than just an hrt āwithdrawal bleedā from my hrt, as the periods were very heavy each time and lasted about 7 days. I had spells of missing a couple of periods here
JoJoloveschocolate
in
Thyroid UK
10 months ago
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