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Stopping Orgovyx after six months
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
gsun
in
Advanced Prostate Cancer
3 months ago
Flare treatment
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Body_bonkers
in
PMRGCAuk
3 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
3 months ago
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Internet Myths about Red Meat
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
3 months ago
Help with my test results please
Hi All I would like help with my latest blood tests results PLEASE and guidance of what to do next ??? I have Autoimmune Hashimotos 27 years ! So to keep this short I’ve recently ( past 3 months ) changed from Armour Thyroid ( took for 5 years ) to Tirosint ( I’m lactose intolerant ) previous
Hi All I would like help with my latest blood tests results PLEASE and guidance of what to do next ??? I have Autoimmune Hashimotos 27 years ! So to keep this short I’ve recently ( past 3 months ) changed from Armour Thyroid ( took for 5 years ) to Tirosint ( I’m lactose intolerant ) previous
joskie
in
Thyroid UK
3 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
3 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
3 months ago
Help with results please 🙏
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Hi, been Hashimotos/hypothyroid about 10 years. Was always on 225mg. Since perimenopause they've dropped me to 150 which I was reluctant but had to do. Stayed like this for 3 years but new Dr, new results - she wants to drop me again. Trying to balance HRT to help all pain and symptoms. Scared of how
Julesb02
in
Thyroid UK
3 months ago
Latest GP appointment
I had a facevto face appointment with a GP on Monday. This was a new GP so thought I stood a chance if levo increase . No the case, I asked nicely, I quoted a few things, I asked for a trail on a increase, she wouldn't budge, she quoted that to have to much levo could make me unwell and they have to
I had a facevto face appointment with a GP on Monday. This was a new GP so thought I stood a chance if levo increase . No the case, I asked nicely, I quoted a few things, I asked for a trail on a increase, she wouldn't budge, she quoted that to have to much levo could make me unwell and they have to
Dawney63
in
Thyroid UK
3 months ago
Is this something that needs investigating/Or Thoughts on cause?
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Milky99
in
Women's Health
6 months ago
some great news….
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
MotherofBarbearians
in
Parents of Children with Kidney Disease
9 months ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
3 months ago
Advice Needed Please
Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it and I’m wondering what experiences people have have with this treatment. I can’t seem to make up my mind and the stress of worrying about it all
Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it and I’m wondering what experiences people have have with this treatment. I can’t seem to make up my mind and the stress of worrying about it all
Laulou87
in
Endometriosis UK
3 months ago
Bad conversion on levo t4 to t3
Hi everyone, I posted a few weeks ago. But looking back wondered if it could be vaginal hrt cream (estradoil) or terbinefene . Anyone got any thoughts sont see endo for another two weeks. Hypo symptoms.
Hi everyone, I posted a few weeks ago. But looking back wondered if it could be vaginal hrt cream (estradoil) or terbinefene . Anyone got any thoughts sont see endo for another two weeks. Hypo symptoms.
Ganggywaller
in
Thyroid UK
3 months ago
QoL Tall Trees and PSA Update
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
dockam
in
Advanced Prostate Cancer
3 months ago
Breast lump
I am post menopause and have been taking HRT for 20years due to severe hot flushes! 6 months ago I felt a pea sized lump behind my nipple didn't worry too much then the lump started to get bigger. Went to GP who fast tracked me to Breast clinic with suspected Cancerous lump. I had my appointment yesterday
I am post menopause and have been taking HRT for 20years due to severe hot flushes! 6 months ago I felt a pea sized lump behind my nipple didn't worry too much then the lump started to get bigger. Went to GP who fast tracked me to Breast clinic with suspected Cancerous lump. I had my appointment yesterday
tamari
in
Women's Health
3 months ago
Stage 4 A Prostate cancer
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
SherryKahn
in
Advanced Prostate Cancer
3 months ago
xtandi plus talzenna
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Apd66
in
Advanced Prostate Cancer
3 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
8 months ago
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