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Thank you
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
Mgtd
in
Advanced Prostate Cancer
1 month ago
False positives
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
Purple-Bike
in
Advanced Prostate Cancer
1 month ago
Anyone find cold plunge or sauna helpful?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
PuraVida2024
in
Advanced Prostate Cancer
1 month ago
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"Deluxe Treatment" Anything else?
Hi all this is my first post. I have just entered my story in my profile. I was diagnosed and treated in 2021 and had immediate recurrence with stage 4 Olig Metastatic in 1 pelvic node and left hip. Had an excellent response to triplet therapy and was very happy with my treatment plan as I new next to
Hi all this is my first post. I have just entered my story in my profile. I was diagnosed and treated in 2021 and had immediate recurrence with stage 4 Olig Metastatic in 1 pelvic node and left hip. Had an excellent response to triplet therapy and was very happy with my treatment plan as I new next to
InqPers
in
Advanced Prostate Cancer
1 month ago
ALT and AST levels
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Quarky
in
Advanced Prostate Cancer
1 month ago
diagnosed yesterday with Cystoce
For a while I have been suffering with bladder issues, always feeling I needed to go but can never fulfill emptying bladder so constantly in and out of bathroom. After an internal examination Consultant confirmed cervix looked healthy and that I had a prolapsed bladder which was also pushing down on
For a while I have been suffering with bladder issues, always feeling I needed to go but can never fulfill emptying bladder so constantly in and out of bathroom. After an internal examination Consultant confirmed cervix looked healthy and that I had a prolapsed bladder which was also pushing down on
JayceeJC
in
Pelvic Pain Support Network
1 month ago
intraductal carcinoma
My husband's biopsy was reread by MSK and one of the cores said the following, "Focally suspicious for intraductal carcinoma (separate core)." He has been diagnosed with stage 4A prostate cancer with one pelvic lymph node involvement that I have written about here. Moving ahead with ADT then internal
My husband's biopsy was reread by MSK and one of the cores said the following, "Focally suspicious for intraductal carcinoma (separate core)." He has been diagnosed with stage 4A prostate cancer with one pelvic lymph node involvement that I have written about here. Moving ahead with ADT then internal
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Recommended Reading
I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
I know this forum is primarily for those with advanced PCA, yet I regularly see posts by those who've only recently discovered the disease and are not in such adavanced stages, being treated only with 1st-generation ADT. Thus, as a nearly 20-year survivor of PCa (first discovered in 2005) and 10-year
bluesnjazz
in
Advanced Prostate Cancer
1 month ago
Anyone felt as if drunk while on Relugovix?
After 13 months of ADT vacation, I've gone back on ADT last week. This time I am on Relugovix (Orgovyx) instead of Lupron. Since I exercise pretty much everyday, even upping my training a little more on the cardio side of late, I think I am doing not too bad against the fatigue from the ADT. Then
After 13 months of ADT vacation, I've gone back on ADT last week. This time I am on Relugovix (Orgovyx) instead of Lupron. Since I exercise pretty much everyday, even upping my training a little more on the cardio side of late, I think I am doing not too bad against the fatigue from the ADT. Then
Mascouche
in
Advanced Prostate Cancer
1 month ago
Spine metastasis
My father in law is 78 year old male with PCA with what appears to be a single spine metastasis. Gleason 7 ( 4+3) We have an appointment coming up with the radiation oncologist . Is this something they would get a PSMA TEST for to confirm and also would he just receive ADT with radiation to primary site
My father in law is 78 year old male with PCA with what appears to be a single spine metastasis. Gleason 7 ( 4+3) We have an appointment coming up with the radiation oncologist . Is this something they would get a PSMA TEST for to confirm and also would he just receive ADT with radiation to primary site
Telegraph2022
in
Advanced Prostate Cancer
6 months ago
Provenge immunotherapy
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
dhccpa
in
Advanced Prostate Cancer
1 month ago
Difficulty walking. Would pred boost help.
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Hello. I haven’t posted lately. I have been diligently tapering .5 mg every 5 to 6 weeks, previously on 9 years of pred with flare and set backs along the way including Avascular necrosis, osteoarthritis DDD to name a few. I am waiting for pain clinic spine injections and a referral to my back Dr. because
Nightingales
in
PMRGCAuk
1 month ago
early new diagnosed low volume metastatic disease and treatment comparisons
https://www.urologytimes.com/view/meta-analysis-indicates-benefit-of-combination-treatment-approach-in-mhspc Recently discussed here was whether low volume metastatic state was a thing, and whether metastatic directed treatment is proven science yet and this interview just came out highlighting a meta
https://www.urologytimes.com/view/meta-analysis-indicates-benefit-of-combination-treatment-approach-in-mhspc Recently discussed here was whether low volume metastatic state was a thing, and whether metastatic directed treatment is proven science yet and this interview just came out highlighting a meta
street-air
in
Advanced Prostate Cancer
1 month ago
The Existence of the Oligometastatic State in Prostate Cancer (and other cancers)
Members of the FPC Forum: I submit to you that either I am a Prophet/Visionary, or I am a Fool, but I state clearly... and emphatically...that the oligometastatic state exists in Prostate Cancer and other cancers as well..I believe that if we were to sum it up as an equation, that it would be something
Members of the FPC Forum: I submit to you that either I am a Prophet/Visionary, or I am a Fool, but I state clearly... and emphatically...that the oligometastatic state exists in Prostate Cancer and other cancers as well..I believe that if we were to sum it up as an equation, that it would be something
NPfisherman
in
Fight Prostate Cancer
1 month ago
Dexa scan report showing osteoporosis
Did a baseline Dexa scan report for dad who is 83 and with bone mets. Some areas like femur say osteoporosis. He does have mets there. Have started his ADT from today with relugolix. Worried about this dexa report. Would love to hear any inputs from those who had a similar situation.
Did a baseline Dexa scan report for dad who is 83 and with bone mets. Some areas like femur say osteoporosis. He does have mets there. Have started his ADT from today with relugolix. Worried about this dexa report. Would love to hear any inputs from those who had a similar situation.
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
1 month ago
Letrozole alone after a year of chemo
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Shumawy
in
SHARE Metastatic Breast Cancer
1 month ago
53, Bleeding on HRT and history of Endo
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
I am 53, post menopausal and been on combined continuous HRT (patches and pills, 75mg patches, 100mg pills) for nearly two years with no problem, my menopause symptoms were HORRENDOUS and the HRT solved them almost overnight…. then a month ago I started heavy bleeding and it hasn’t stopped since, every
Brambledoggy
in
Endometriosis UK
1 month ago
Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
1 month ago
primary ovarian insufficiency
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
Hello, Can anyone help me? I am 37 and still having my period. I am worried that the hrt will mess up my cycle as it is 28 days and my cycle is 25, so it will be out of balance with the patches befer long. is that bad? I dont know. I just want the best chance, and information I have just
JasmineLuianna
in
Fertility Network UK
1 month ago
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