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First Post about AIHA
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
PCBnPBC
in
CLL Support
3 years ago
Exercise post lung transplant
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hidden
in
Lung Conditions Community Forum
3 years ago
Liver transplant assessment query.
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
British Liver Trust
3 years ago
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Liver transplant assessment query
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
Power2Save Transplant Community
3 years ago
The Global Colon Cancer Association's 2021 Virtual Congress is on April 27 & 28!
The 2021 event features 63 speakers from 13 countries, including presentations from colorectal cancer patients, survivors, and caregivers who share their experiences and offer advice to the community, as well as representatives from patient advocacy organizations around the globe sharing research results
The 2021 event features 63 speakers from 13 countries, including presentations from colorectal cancer patients, survivors, and caregivers who share their experiences and offer advice to the community, as well as representatives from patient advocacy organizations around the globe sharing research results
Nicole_GCCA
Administrator
in
Colon Cancer Connected
3 years ago
Can we regenerate damaged organs in the lab?
I responded to someone’s question earlier about the need for liver transplants in the future. While looking at some videos online, I came across this one entitled “Can we regenerate damaged organs in the lab?”. I felt this video story which was put up recently (Feb 21) was just too good a story to warrant
I responded to someone’s question earlier about the need for liver transplants in the future. While looking at some videos online, I came across this one entitled “Can we regenerate damaged organs in the lab?”. I felt this video story which was put up recently (Feb 21) was just too good a story to warrant
Richard-Allen
in
British Liver Trust
3 years ago
Is it common for CLL patients to undergo hematopoietic stem cell transplantation (HSCT) as treatment?
Hi guys! My husband was looking around for information and he found about this, we were wondering if this is a common treatment? Thank you very much!
Hi guys! My husband was looking around for information and he found about this, we were wondering if this is a common treatment? Thank you very much!
krikri1989ho
in
CLL Support
3 years ago
liver transplant
Hello, I am new here. I'm wondering at what point do the specialist decide to put you forward for a liver transplant? I am now in a position where we are being told it is too late as my mum would not survive the surgery and she is too weak. she went in for a regular drain of the ascites fluid and
Hello, I am new here. I'm wondering at what point do the specialist decide to put you forward for a liver transplant? I am now in a position where we are being told it is too late as my mum would not survive the surgery and she is too weak. she went in for a regular drain of the ascites fluid and
tink01
in
British Liver Trust
3 years ago
Abnormal CBC reports after 1st dose of covid vaccine. Immature Granulocytes is 0.40bil/L and 7.1%.
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
Vk12
in
Kidney Transplant
3 years ago
Hair Loss & Anniversary.
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
Hidden
in
Kidney Transplant
3 years ago
Really struggling
Hi all I'm 22 and have been suffering with ibs like symptoms for a year. Been referred to a gastroenterologist have had an endoscopy which came back fine. Due for a colonoscopy but there is a huge wait. I just cant stop googling things and reading stories on bowel cancer and how signs are so similar
Hi all I'm 22 and have been suffering with ibs like symptoms for a year. Been referred to a gastroenterologist have had an endoscopy which came back fine. Due for a colonoscopy but there is a huge wait. I just cant stop googling things and reading stories on bowel cancer and how signs are so similar
Ibs_1
in
IBS Network
3 years ago
Vaccine efficacy for COPD and immune compromised people
Hi everyone. Have any of you had any discussions with your medical team with respect to the efficacy of the Covid vaccines for people with compromised immune systems and COPD. I have COPD as well as having a stem cell transplant due to multiple myeloma. I have been in remission for 8 years but it is
Hi everyone. Have any of you had any discussions with your medical team with respect to the efficacy of the Covid vaccines for people with compromised immune systems and COPD. I have COPD as well as having a stem cell transplant due to multiple myeloma. I have been in remission for 8 years but it is
macnsyl
in
Lung Conditions Community Forum
3 years ago
Renal Osteodystrophy and weight loss with loss of muscle mass
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
PcTrucker
in
Kidney Transplant
3 years ago
Blood in stool and toilet paper
I have had bloody stools the last two weeks and I’m very worried I have been using preparation h and it does seem to help stop the bleeding that shows up on the toilet paper after each bowle movement and in the stool I have scheduled a colonoscopy and I’m very worried about it
I have had bloody stools the last two weeks and I’m very worried I have been using preparation h and it does seem to help stop the bleeding that shows up on the toilet paper after each bowle movement and in the stool I have scheduled a colonoscopy and I’m very worried about it
Airtrip
in
Colon Cancer Connected
3 years ago
Multi-drug resistant infection spreading globally among cystic fibrosis patients.
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
2greys
in
Lung Conditions Community Forum
3 years ago
Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Colonoscopy and concerning symptoms
Hi all I've posted on here a few times in the past. My problems began while I was pregnant. I noticed blood spots in my underwear and some googling sent me down a dark hole. I'm now 6 months postpartum and my problems persist: incomplete evacuation, frequent bowel movements. No obvious blood in stool
Hi all I've posted on here a few times in the past. My problems began while I was pregnant. I noticed blood spots in my underwear and some googling sent me down a dark hole. I'm now 6 months postpartum and my problems persist: incomplete evacuation, frequent bowel movements. No obvious blood in stool
Mommy_of_2
in
Colon Cancer Connected
3 years ago
John Hopkins Medicine organ transplant/covid vaccine study results in mid March2021:few if any antibodies made
Curious if your transplant clinic or nephrologist contacted you about getting the covid vaccine. My spouse was told to get the Pfizer if he could get his hands on it where we live and he did and had both shots without problems. Mid March 2021 a study from John Hopkins medicine came out showing volunteers
Curious if your transplant clinic or nephrologist contacted you about getting the covid vaccine. My spouse was told to get the Pfizer if he could get his hands on it where we live and he did and had both shots without problems. Mid March 2021 a study from John Hopkins medicine came out showing volunteers
Gardner-NY
in
Kidney Transplant
3 years ago
scared appreciate any help
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Denied Transplant due to Calcification. Need help.
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
Helpingfriend
in
Kidney Transplant
3 years ago
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