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Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
Driving after transplant
Question for kidney transplant patients How long before you was able to drive again?
Question for kidney transplant patients How long before you was able to drive again?
transplantwarrier
in
Kidney Transplant
2 years ago
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Lung transplant second opinion update.
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
Brain secondaries
Hi I fell recently. Found myself on the floor having face planted the carpet. Apparently I now have secondaries in the brain. Pretty unusual for ovarian cancer. Anyone else had any experience? Obviously I am on the way out but wonder how long I’ve got. Palliative team are organising package of care to
Hi I fell recently. Found myself on the floor having face planted the carpet. Apparently I now have secondaries in the brain. Pretty unusual for ovarian cancer. Anyone else had any experience? Obviously I am on the way out but wonder how long I’ve got. Palliative team are organising package of care to
PhillipandBettykid
in
My Ovacome
2 years ago
PSA monitor indicated with hx of colon cancer?
Male age 46 with recent discovery of adenocarcinoma arising in Tubulovillous adenoma, G3 differentiation, Tumor budding score (Bd2) imtermediate, tumor extension into the submucosa (SM1 level) Pathologicaal staging at this time is p T1, NX. His great grandfather died from colon cancer, mother has
Male age 46 with recent discovery of adenocarcinoma arising in Tubulovillous adenoma, G3 differentiation, Tumor budding score (Bd2) imtermediate, tumor extension into the submucosa (SM1 level) Pathologicaal staging at this time is p T1, NX. His great grandfather died from colon cancer, mother has
MotherK
in
Colon Cancer Connected
2 years ago
update
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Bazinga89
in
British Liver Trust
2 years ago
My son has his first appointment with Vanderbilt Hepatologist this week, anything I need to be aware of?
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
Bloomwithgrace
in
Living with Fatty Liver and NASH
2 years ago
How long
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Lippy42
in
British Liver Trust
2 years ago
Any young adults with kidney transplant?
Would like to exchange experience and how did you cope/adjust with life
Would like to exchange experience and how did you cope/adjust with life
vision22
in
Kidney Transplant
2 years ago
Constipation!
Another post from me! I've been struggling with constipation for a good 6 months now, I'm getting worried that there is something wrong. Im trying to eat a gut friendly diet and am looking for digestive bitters and other ways to support my gut (if you know any, please let me know!) If you know of any
Another post from me! I've been struggling with constipation for a good 6 months now, I'm getting worried that there is something wrong. Im trying to eat a gut friendly diet and am looking for digestive bitters and other ways to support my gut (if you know any, please let me know!) If you know of any
Annieza
in
Thyroid UK
2 years ago
Questions about post transplant surgery JP drain
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Grammy820
in
Kidney Transplant
2 years ago
Update
Morning everyone my hubby went for his appointment with gastroenterologist yesterday after having mri escoptomy and ecg for his liver disease she said in simple terms his liver is "knackered " she is now writing to the liver transplant team in Birmingham. So we know if it goes further then ste will undergo
Morning everyone my hubby went for his appointment with gastroenterologist yesterday after having mri escoptomy and ecg for his liver disease she said in simple terms his liver is "knackered " she is now writing to the liver transplant team in Birmingham. So we know if it goes further then ste will undergo
Lippy42
in
British Liver Trust
2 years ago
An Unusual False-Positive Uptake of Radioiodine Caused by Breast Implants
Posting this simply to let everyone know! If the issue applies, make sure you discuss properly with anyone who wants to give you radioactive iodine. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
An
Posting this simply to let everyone know! If the issue applies, make sure you discuss properly with anyone who wants to give you radioactive iodine. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
An
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Colonoscopy yesterday
Hi all. I'm 54 years old and had my colonoscopy yesterday when I was diagnosed with bowel cancer. I had my CT scan today and waiting to find out if it has spread. My biggest fear is needing a stoma bad after surgery. Help, I'm panicking!
Hi all. I'm 54 years old and had my colonoscopy yesterday when I was diagnosed with bowel cancer. I had my CT scan today and waiting to find out if it has spread. My biggest fear is needing a stoma bad after surgery. Help, I'm panicking!
ChrissiLea
in
Colon Cancer Connected
2 years ago
Kidney Teansplant and CMV
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
Sister9555
in
Kidney Transplant
2 years ago
Blood in stool here and there
Hi all have blood in stool here and there. I've had an ridoculosly itchy rectum for 6 years done stool tests dr say prutis ani and I have to live with it. Now blood last 2 bowel movements. I'm worried. I've always have bleeding here there and a week ago I went to hospital with unbearable pain which
Hi all have blood in stool here and there. I've had an ridoculosly itchy rectum for 6 years done stool tests dr say prutis ani and I have to live with it. Now blood last 2 bowel movements. I'm worried. I've always have bleeding here there and a week ago I went to hospital with unbearable pain which
Contra21
in
Colon Cancer Connected
2 years ago
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
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