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introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
Has anyone had Covid post-transplant?
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
Djangosmom
in
Kidney Transplant
2 years ago
Long story but about to have transplant assessment but really suffering with ascities, odeama and looking for advice re drains
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Elvishaslefttheroom
in
British Liver Trust
2 years ago
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Anyone with gastroparesis?
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hidden
in
Kidney Transplant
2 years ago
Fact of the day 2nd January
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
Valentina98
in
British Heart Foundation
2 years ago
post lung transplant
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Staph infection from IV
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Beachvibe
in
Kidney Transplant Patient Support
2 years ago
Scared
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
Kikidee08
in
British Liver Trust
2 years ago
Does this look concerning?
Hi, 30 yo M here. Recently I've been having stomach aches that feel like sharp pains in my lower belly, most commonly on one side, along with unusual fatigue and sleepiness. I've also noticed small black dots in my stool, but I'm not sure if they're the kind that people talk about when they refer to
Hi, 30 yo M here. Recently I've been having stomach aches that feel like sharp pains in my lower belly, most commonly on one side, along with unusual fatigue and sleepiness. I've also noticed small black dots in my stool, but I'm not sure if they're the kind that people talk about when they refer to
RandoLakes101
in
Colon Cancer Connected
2 years ago
Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
2 years ago
I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
2 years ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
5 Presents that Make Life with a Kidney Transplant Easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
Blood in stool
I have experiencing "blood in stool" for quite awhile now. 2 to 3 years now.I have been ignoring it for so long because I don't have access to better health care here in my Country. Sometimes it goes off, then comes back and continues for days. I read about Colon Cancer and I see it's one of its symptoms
I have experiencing "blood in stool" for quite awhile now. 2 to 3 years now.I have been ignoring it for so long because I don't have access to better health care here in my Country. Sometimes it goes off, then comes back and continues for days. I read about Colon Cancer and I see it's one of its symptoms
GOLDSTEIN
in
Colon Cancer Connected
2 years ago
FDA Approves Cell Therapy for Patients with Blood Cancers to Reduce Risk of Infection Following Stem Cell Transplantation- Released 4/17/23
Today [4/17/23], the U.S. Food and Drug Administration approved Omisirge (omidubicel-onlv), a substantially modified allogeneic (donor) cord blood-based cell therapy to quicken the recovery of neutrophils (a subset of white blood cells) in the body and reduce the risk of infection. The product is intended
Today [4/17/23], the U.S. Food and Drug Administration approved Omisirge (omidubicel-onlv), a substantially modified allogeneic (donor) cord blood-based cell therapy to quicken the recovery of neutrophils (a subset of white blood cells) in the body and reduce the risk of infection. The product is intended
PhysAssist
in
MPN Voice
1 year ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
1 year ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
1 year ago
Lots of Mucus in stool
Hi All, For the past month I have had more than usual mucus in my stool. My stool is firm and comes in "balls" not smooth. I try to drink as much water as possible. I also have a dull pain/unfcomfortable feeling sometimes, just below the right rib cage. Blood work turned out great, no issues. No blood
Hi All, For the past month I have had more than usual mucus in my stool. My stool is firm and comes in "balls" not smooth. I try to drink as much water as possible. I also have a dull pain/unfcomfortable feeling sometimes, just below the right rib cage. Blood work turned out great, no issues. No blood
Lefty4562
in
Colon Cancer Connected
2 years ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
AndrewT
in
Vasculitis UK
2 years ago
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