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Preemptive Kidney Transplant
I am schedule to have a preemptive transplant in just under a month. Currently I am very tired and sleep a lot. I am nausious all the time. My GFR is at 13 but I have not done any dialyisis. Can anyone share with me tips and tricks you wish you knew going into the surgery and how recovery was? Do
I am schedule to have a preemptive transplant in just under a month. Currently I am very tired and sleep a lot. I am nausious all the time. My GFR is at 13 but I have not done any dialyisis. Can anyone share with me tips and tricks you wish you knew going into the surgery and how recovery was? Do
LRob0223
in
Kidney Transplant
1 year ago
Newly diagnosed- fusiform anuersym post kidney transplant
I am 36 and had a kidney transplant almost 1.5 years ago from polycystic kidney disease. I found out about a month ago I have a brain aneurysm. My uncle passed away from a ruptured brain aneurysm. I am not well researched in this, but I am trying to learn as much as I can so I can make wise decisions
I am 36 and had a kidney transplant almost 1.5 years ago from polycystic kidney disease. I found out about a month ago I have a brain aneurysm. My uncle passed away from a ruptured brain aneurysm. I am not well researched in this, but I am trying to learn as much as I can so I can make wise decisions
PKDpostTRANSPLANT
in
Brain Aneurysm Support
1 year ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
6 months ago
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saving my dad
Hi all! My dad was recently diagnosed with Pulmonary Fibrosis. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of pulmonary fibrosis. He had a lung biopsy that came back inconclusive. He relies on full time oxygen and coughs
Hi all! My dad was recently diagnosed with Pulmonary Fibrosis. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of pulmonary fibrosis. He had a lung biopsy that came back inconclusive. He relies on full time oxygen and coughs
Timslungs
in
Lung Conditions Community Forum
1 year ago
Guidance for RLS
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
PinkTLC
in
Restless Legs Syndrome
1 year ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
6 months ago
Living with glaucoma
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
LondonStadium
in
Glaucoma UK
1 year ago
elevate ALT post transplant
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Bantam2
in
British Liver Trust
1 year ago
Good sats - so why so breathless?
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
Timberman
in
Lung Conditions Community Forum
6 months ago
Dad has stage 4 cirrhosis
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Lplplp14
in
British Liver Trust
1 year ago
Colon cancer as secondary cancer
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
angelikab
in
CLL Support
1 year ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
7 months ago
Preparing myself for a full hysterectomy, bowel resection and stents in bladder......
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
NMPW
in
Endometriosis UK
1 year ago
Liver transplant advice - missing IVC vein.
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
RAAN88
in
British Liver Trust
1 year ago
Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
1 year ago
Kidney Transplant
Had a KT last January 2023 still battling fatigue and tiredness wondering if anyone else has these problems after 6 months.
Had a KT last January 2023 still battling fatigue and tiredness wondering if anyone else has these problems after 6 months.
Zbiguy
in
Kidney Disease
1 year ago
Liver Transplant Kings College
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Missrogerson1
in
British Liver Trust
1 year ago
recent kidney transplant
June 27, 2023 Just 10 weeks ago I had a living kidney donor transplant. Looking for advice as far as lab values when they’re not normal or things that sound concerning such as a rise in antibody numbers. I wondered how they treated that and how difficult it was to get things stabilized. I appreciate
June 27, 2023 Just 10 weeks ago I had a living kidney donor transplant. Looking for advice as far as lab values when they’re not normal or things that sound concerning such as a rise in antibody numbers. I wondered how they treated that and how difficult it was to get things stabilized. I appreciate
Tankjsl
in
Kidney Transplant
1 year ago
Tortuous colon
At my last colonoscopy (at age 60) the doc told me, upon awakening, that I had a "tortuous" colon. This was a surprise to me as I've had 3 or 4 previous colonoscopies in my life and have never been told that before. I have suffered with bloat, discomfort, gas, and other issues throughout my life, though
At my last colonoscopy (at age 60) the doc told me, upon awakening, that I had a "tortuous" colon. This was a surprise to me as I've had 3 or 4 previous colonoscopies in my life and have never been told that before. I have suffered with bloat, discomfort, gas, and other issues throughout my life, though
Best_me
in
IBS Network
1 year ago
Life After Colectomy/Colon Resection Surgery
Hello, Could anyone please share about their experience with a colon resection surgery? Changes in urgency or incontinence or pain? What about eating? Can you eat seeds or nutshell, etc.? How long to heal? Thanks.
Hello, Could anyone please share about their experience with a colon resection surgery? Changes in urgency or incontinence or pain? What about eating? Can you eat seeds or nutshell, etc.? How long to heal? Thanks.
Gorsundar
in
Colon Cancer Connected
1 year ago
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