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Sjogren-Larsson syndrome
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Does anyone else have Hot Feet with RLS?
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
TwitchyFeet50
in
Restless Legs Syndrome
4 years ago
Body odor from thiamine hydrochloride?
Hi, I am newly diagnosed with PD and have not started with any medication yet. But I take a daily "coctail" of: B1 Thiamine hydrochloride powder 2 ml (close to 1 g) NAC powder 1,5 g l-citrulline 1 g Glutathione 200 mg Mannitol 4 ml Creatine occationally My spouse is complaining about my new body
Hi, I am newly diagnosed with PD and have not started with any medication yet. But I take a daily "coctail" of: B1 Thiamine hydrochloride powder 2 ml (close to 1 g) NAC powder 1,5 g l-citrulline 1 g Glutathione 200 mg Mannitol 4 ml Creatine occationally My spouse is complaining about my new body
Mimer
in
Cure Parkinson's
4 years ago
Just when your getting somewhere
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
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NRAS
4 years ago
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Restless Legs in Pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
TanjaRLS
in
Restless Legs Syndrome
4 years ago
8 days late
5 years ago i was on the nuvaring as well took it out in May and was pregnant by the begining of August. every test i took back then came out negative. finally after 2 months of not having a period, i decided to test and had a bfp. went to the Dr and was 9 weeks pregnant with twins. My twins were born
5 years ago i was on the nuvaring as well took it out in May and was pregnant by the begining of August. every test i took back then came out negative. finally after 2 months of not having a period, i decided to test and had a bfp. went to the Dr and was 9 weeks pregnant with twins. My twins were born
flogrc25
in
Pregnancy and Parenting Support
4 years ago
Would you still have a withdrawal bleed if you got pregnant?
So I’ve come off the pill I was just wondering if you would still have the withdrawal bleed if you became pregnant in the weeks before your first period
So I’ve come off the pill I was just wondering if you would still have the withdrawal bleed if you became pregnant in the weeks before your first period
Lauren95
in
Pregnancy and Parenting Support
4 years ago
Champix
Not sure if this is the right sight for my question but am wondering if anyone had tried Champix (Varenicline) to give up smkking. I did 19 months ago and had a bad experience. 19 months later and still struggling to get my life back. Even counselling has not helped. Can't get onto any antidepressants
Not sure if this is the right sight for my question but am wondering if anyone had tried Champix (Varenicline) to give up smkking. I did 19 months ago and had a bad experience. 19 months later and still struggling to get my life back. Even counselling has not helped. Can't get onto any antidepressants
Raffi3
in
Thyroid UK
4 years ago
5mg prednisone for life?
My sister and brother, in their 80's have had PMR for ten or more years, having gone thru flareups and even one had a 2 years remission but both are now on 5mg pred for life, which their rheumy (same for both) has permitted. I got pmr less than 2 years ago, started at 20mg and after several flarups,
My sister and brother, in their 80's have had PMR for ten or more years, having gone thru flareups and even one had a 2 years remission but both are now on 5mg pred for life, which their rheumy (same for both) has permitted. I got pmr less than 2 years ago, started at 20mg and after several flarups,
izzyart
in
PMRGCAuk
4 years ago
Elocon 0.1%
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Montysmum1
in
LUPUS UK
4 years ago
FeSo4 and Mg and Requip
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
Yamama
in
Restless Legs Syndrome
4 years ago
Anomaly
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Heatherlss
in
Restless Legs Syndrome
4 years ago
Any ideas of changing patterns of RLS symptoms
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Debsamuels
in
Restless Legs Syndrome
4 years ago
Miscarriage
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
Hayet
in
Fertility Network UK
4 years ago
YouTube video at drug / pain clinic
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
Shumbah
in
Restless Legs Syndrome
4 years ago
Early I'll health retirement
Hi, I am going to see my rheumatologist tomorrow and asking him to back me up for ill health retirement. I am worried that he may disagree and want me to try other drugs first although I've tried almost all of them already. In a nutshell I'm 37 work in the NHS as a nurse (currently off sick). I have
Hi, I am going to see my rheumatologist tomorrow and asking him to back me up for ill health retirement. I am worried that he may disagree and want me to try other drugs first although I've tried almost all of them already. In a nutshell I'm 37 work in the NHS as a nurse (currently off sick). I have
Autumnwillow
in
LUPUS UK
4 years ago
Early ill health retirement
Hi I am going to see my rheumatology consultant tomorrow and going to be asking him to fight my case for early retirement. I am so worried that he may disagree and want me try other drugs although I've really tried them all already. In a nutshell I'm 37 years old, working as a nurse (currently off sick
Hi I am going to see my rheumatology consultant tomorrow and going to be asking him to fight my case for early retirement. I am so worried that he may disagree and want me try other drugs although I've really tried them all already. In a nutshell I'm 37 years old, working as a nurse (currently off sick
Rareity
in
NRAS
4 years ago
Try Caffeine for RLS
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
Bftalbert
in
Restless Legs Syndrome
4 years ago
Alopecia Areata triggered by pregnancy
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Flowerflower
in
Thyroid UK
4 years ago
Features of Sjorgrens Syndrome
Hi all I've just receive a letter from my Rheumy with results from my minor salivary gland biopsy. It simply writes to my doctor results showed features consisteqnt with Sjogren's syndrome I will be discussing the findings with her whenwe see her in clinic. Does this mean I may have a diagnoses or after
Hi all I've just receive a letter from my Rheumy with results from my minor salivary gland biopsy. It simply writes to my doctor results showed features consisteqnt with Sjogren's syndrome I will be discussing the findings with her whenwe see her in clinic. Does this mean I may have a diagnoses or after
Yellow-Petal
in
LUPUS UK
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
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