Search
Search
About
Log in
Join
Experiences with
Sinemet CR
Posts
Communities
1,339 public posts
Filter results
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
B1 Therapy question
Six months ago, my neurologist diagnosed me with early stage PD. My prominent symptoms included hand tremors and stiffness. I am on a low dosage of sinemet and it has helped to regulate but not eliminate those symptoms.. I was very intrigued by the testimonials in the book, Parkinson's and the B1
Six months ago, my neurologist diagnosed me with early stage PD. My prominent symptoms included hand tremors and stiffness. I am on a low dosage of sinemet and it has helped to regulate but not eliminate those symptoms.. I was very intrigued by the testimonials in the book, Parkinson's and the B1
jalapeno1
in
Cure Parkinson's
1 year ago
Long Covid
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
wairoa36
in
Restless Legs Syndrome
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Allergic reaction to CL?
Im curios on behalf of a good friend.......has anyone experienced or read anything about a reaction to CL ...sinemet....which involves swelling of the face and legs like water retention? your info is greatly appreciated. hang tough.
Im curios on behalf of a good friend.......has anyone experienced or read anything about a reaction to CL ...sinemet....which involves swelling of the face and legs like water retention? your info is greatly appreciated. hang tough.
beehive23
in
Cure Parkinson's
1 year ago
Sinemet and nausea.
I am forced to break my Sinemet 100+25 pill into two parts and to space out the intake for a few hours because a whole one causes me severe nausea. Does anyone out there have the same problem? And how did you solve it?
I am forced to break my Sinemet 100+25 pill into two parts and to space out the intake for a few hours because a whole one causes me severe nausea. Does anyone out there have the same problem? And how did you solve it?
Fed1000
in
Cure Parkinson's
1 year ago
5 years of Sinemet and Dyskinesia
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
CuriousMe12
in
Cure Parkinson's
1 year ago
sinemet
I take 20 sinemet tablets a day. Does anyone else take this many? to what benefit?
I take 20 sinemet tablets a day. Does anyone else take this many? to what benefit?
Parklove
in
Multiple System Atrophy Trust
1 year ago
Levodopa absorption
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
Hidden
in
Cure Parkinson's
1 year ago
Anyone out there trying the Dr. Tass Vibratory therapy with a board or gloves?
Hello, I built a buzz board using an Arduino controller. I have been using it every day for about three weeks for about 1-2 hours a day. I have noticed some positive effects but don’t know where to start cutting my med (Sinemet). It seems I get more “Time on”, and even mental clarity, but it has
Hello, I built a buzz board using an Arduino controller. I have been using it every day for about three weeks for about 1-2 hours a day. I have noticed some positive effects but don’t know where to start cutting my med (Sinemet). It seems I get more “Time on”, and even mental clarity, but it has
Tryguy
in
Cure Parkinson's
1 year ago
Thinning hair when taking Sinemet
My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a year but currently on a low dosage. For many months her hair has been getting thinner and thinner. I have just been advised that this is a reasonably common side effect of taking the drugs. I also understand that if you come
My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a year but currently on a low dosage. For many months her hair has been getting thinner and thinner. I have just been advised that this is a reasonably common side effect of taking the drugs. I also understand that if you come
Wombatz
in
PSP Association
1 year ago
Safinamide
hello I was diagnosed with PD in Nov 2019 and in May 2020 my right hand tremor was getting hard to tolerate as its amplitude had increased and it moved to include my left leg and chin. In May 2020, somewhat anxiously, I started on 1 yellow pill (Sinemet plus) at 8am, 1pm, and 6pm. Within 4-8 weeks
hello I was diagnosed with PD in Nov 2019 and in May 2020 my right hand tremor was getting hard to tolerate as its amplitude had increased and it moved to include my left leg and chin. In May 2020, somewhat anxiously, I started on 1 yellow pill (Sinemet plus) at 8am, 1pm, and 6pm. Within 4-8 weeks
Tomkins
in
Cure Parkinson's
1 year ago
mucuna or sinemet?
why should it be different to take levodopa from mucuna or take it from sinemet? Isn't it the same chemical formula? L-DOPA/Formula : C9H11NO4
why should it be different to take levodopa from mucuna or take it from sinemet? Isn't it the same chemical formula? L-DOPA/Formula : C9H11NO4
michelagvolpe
in
Cure Parkinson's
1 year ago
Parkinson’s and Cat’ Claw
I have PD for 12 years, I have tried about 35 different supplements with unclear results Doing better with Cat’s Claw one spoon daily (included in jar) and WorX stem cell support Was able to decease Sinemet from qid to tid Better sleep Improved constipationp Less tremors
I have PD for 12 years, I have tried about 35 different supplements with unclear results Doing better with Cat’s Claw one spoon daily (included in jar) and WorX stem cell support Was able to decease Sinemet from qid to tid Better sleep Improved constipationp Less tremors
healthyheart7
in
Cure Parkinson's
1 year ago
PD Meds Not Working
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
PeggyDay
in
Cure Parkinson's
1 year ago
Transitioning off pramipexole
I keep reading the absolute hell many people experience transitioning from pramipexole (or some other drug) to gabapentin. The worst seems to be when one is essentially finished with pramipexole but have taken very little gabapentin. My question is this: why can't you transition off pramipexole by
I keep reading the absolute hell many people experience transitioning from pramipexole (or some other drug) to gabapentin. The worst seems to be when one is essentially finished with pramipexole but have taken very little gabapentin. My question is this: why can't you transition off pramipexole by
robertff3401
in
Restless Legs Syndrome
1 year ago
sinemet duration
I’ve been taking sinemet for 14 years, I started at the time of my dx taking 1 pill every 4-5 hours for probably the first 10 years or so and then began taking a little more a little closer together and today I take 1 1/2 pills every 3 hours starting at 6:30 am and taking my last dose of the day at 3
I’ve been taking sinemet for 14 years, I started at the time of my dx taking 1 pill every 4-5 hours for probably the first 10 years or so and then began taking a little more a little closer together and today I take 1 1/2 pills every 3 hours starting at 6:30 am and taking my last dose of the day at 3
Mimi828
in
Cure Parkinson's
1 year ago
Parkinsons? Or not?
My husband Peter has had a cervical spinal cord injury for 11 years now. This badly affects his mobility, upper body and hand function. He suffers from spasticity and very tight muscles. He can walk with aids but uses a wheelchair outdoors. Some months ago he started getting dizziness/lightheadedness
My husband Peter has had a cervical spinal cord injury for 11 years now. This badly affects his mobility, upper body and hand function. He suffers from spasticity and very tight muscles. He can walk with aids but uses a wheelchair outdoors. Some months ago he started getting dizziness/lightheadedness
Mo51
in
Cure Parkinson's
1 year ago
DBS and Sinemet
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
DeanGreen
in
Cure Parkinson's
1 year ago
Two part question about really bad "OFF" time.
My wife is experiencing some horrible symptoms, starting with her mouth. Lots of puckering. lip smacking, tongue tapping and clicking from the pallet, and the tongue feels like it is numb and burning on the sides. She often feels like she can't maneuver her mouth, making swallowing very difficult.
My wife is experiencing some horrible symptoms, starting with her mouth. Lots of puckering. lip smacking, tongue tapping and clicking from the pallet, and the tongue feels like it is numb and burning on the sides. She often feels like she can't maneuver her mouth, making swallowing very difficult.
manoa
in
Cure Parkinson's
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
1
...
4
5
6
...
67
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1182 results
Restless Legs Syndrome
69 results
PSP Association
55 results
View top 10 communities
Sort by
Most Relevant
Newest