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elevated TSH since PD diagnoses
Since being diagnosed 2 years ago, my thyroid meds have been decreased 3 times. My most recent blood test had a jump in TSH from 2 to 14 which states I am once again under-medicated, but clinically I feel fine. Has anyone else had these fluctuations in blood results from an underactive thyroid? If
Since being diagnosed 2 years ago, my thyroid meds have been decreased 3 times. My most recent blood test had a jump in TSH from 2 to 14 which states I am once again under-medicated, but clinically I feel fine. Has anyone else had these fluctuations in blood results from an underactive thyroid? If
Missy0202
in
Cure Parkinson's
3 years ago
Increasing Sinemet and Nourianz
Basically my mom has been on the same sinemet dose since diagnosed with Parkinson’s in 2016 (1 sinemet every four hours and 1 azilect). So my moms doctor has prescribed nourianz and increased her sinemet from 1 tablet (25-100) every four hours to 1 1/2 tablet every four hours. Has anyone had success
Basically my mom has been on the same sinemet dose since diagnosed with Parkinson’s in 2016 (1 sinemet every four hours and 1 azilect). So my moms doctor has prescribed nourianz and increased her sinemet from 1 tablet (25-100) every four hours to 1 1/2 tablet every four hours. Has anyone had success
jcavana
in
Cure Parkinson's
3 years ago
An Update and a Question
Hi Everyone , Just another update , I am off Ropinerole completely now and have been for 3 weeks but now the big battle …coming off Sinemet which I have just started !! My new GP has told me that my Serum Ferritin levels are at 22 or at l least were at the beginning of June , he says I don’t need to
Hi Everyone , Just another update , I am off Ropinerole completely now and have been for 3 weeks but now the big battle …coming off Sinemet which I have just started !! My new GP has told me that my Serum Ferritin levels are at 22 or at l least were at the beginning of June , he says I don’t need to
Catlady4921
in
Restless Legs Syndrome
3 years ago
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PLEASE HELP! ARE YOU ON RYTARY AND YOUR MEDICATION SOMETIMES DOES NOT " KICK IN" IN THE MORNINGS?
Hi Kindly respond to this post if you use sinemet tablet as a bridge to make the Rytary work. If you do this, how much sinemet do you use? Will this method disrupt the functioning of Rytary as a slow release medication designed to work up to 3hours or more, on the long run leading to motor fluctuations
Hi Kindly respond to this post if you use sinemet tablet as a bridge to make the Rytary work. If you do this, how much sinemet do you use? Will this method disrupt the functioning of Rytary as a slow release medication designed to work up to 3hours or more, on the long run leading to motor fluctuations
OREOLU
in
Cure Parkinson's
3 years ago
macuna puriens capsules dosing advice please
hi im looking into buying some macuna capsules what are the dose strengths i should be looking for? im on 125 mg sinemet
hi im looking into buying some macuna capsules what are the dose strengths i should be looking for? im on 125 mg sinemet
Todd-pw
in
Cure Parkinson's
3 years ago
Nausea and vomiting
Does anyone else experience nausea and vomiting after taking their Sinemet?. I can’t figure out what triggers it and cannot predict when it happens. Had to leave a dinner party Saturday night after hanging over the toilet. It is so embarrassing.
Does anyone else experience nausea and vomiting after taking their Sinemet?. I can’t figure out what triggers it and cannot predict when it happens. Had to leave a dinner party Saturday night after hanging over the toilet. It is so embarrassing.
MyGolf
in
Cure Parkinson's
3 years ago
Dyskinesia Question
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
Wilso77
in
Cure Parkinson's
3 years ago
Is there an alternative treatment to Sinemet ?
My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone appointment that dizziness is always caused by low blood pressure, but last week he went to his gp because it was so bad. He had his BP checked sitting
My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone appointment that dizziness is always caused by low blood pressure, but last week he went to his gp because it was so bad. He had his BP checked sitting
Redjune1
in
Multiple System Atrophy Trust
3 years ago
Mucuna puriens 1000mg
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
Lin1950
in
Cure Parkinson's
3 years ago
gut problems and medication effectiveness
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
Todd-pw
in
Cure Parkinson's
3 years ago
MRigFUS in Switzerland - 9 months update
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
Markbit
in
Cure Parkinson's
3 years ago
Typical med progression?
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
genesurf
in
Cure Parkinson's
3 years ago
Testosterone and PD
I have learned many helpful things on this forum, so in the hope that it will prove helpful to others I thought I would share my positive experience with testosterone replacement therapy (TRT). Obviously, TRT is relevant primarily to male PWPs and their caregivers, but there may be equivalent hormone
I have learned many helpful things on this forum, so in the hope that it will prove helpful to others I thought I would share my positive experience with testosterone replacement therapy (TRT). Obviously, TRT is relevant primarily to male PWPs and their caregivers, but there may be equivalent hormone
hmm777
in
Cure Parkinson's
3 years ago
Selegiline and Zandopa
My neurologist prescribed me selegiline a month ago and It helped me with tremor and movement. I also take Zandopa and sinemet. Yesterday 1.5 hours after taking zandopa, I started having severe headache, and my blood pressure raised to 225. I also vomited 4 times. It calmed down after an hour and blood
My neurologist prescribed me selegiline a month ago and It helped me with tremor and movement. I also take Zandopa and sinemet. Yesterday 1.5 hours after taking zandopa, I started having severe headache, and my blood pressure raised to 225. I also vomited 4 times. It calmed down after an hour and blood
LauraYu
in
Cure Parkinson's
3 years ago
Exercising and walking when your muscles are stiff
I noticed the medicine I take (4 x
Sinemet
CR
25/100) seems to ware off a lot faster when I'm active. Maybe I just need get my neurologist to increase the dosage some or switched to immediate release version of Sinemet. Any thoughts or suggestions? ~ Shawn
I noticed the medicine I take (4 x
Sinemet
CR
25/100) seems to ware off a lot faster when I'm active. Maybe I just need get my neurologist to increase the dosage some or switched to immediate release version of Sinemet. Any thoughts or suggestions? ~ Shawn
Doohat
in
Cure Parkinson's
3 years ago
Dizziness
My husband is newly diagnosed with MSA and is on Sinemet x3 daily. So far the medication doesn’t seem to be helping, he’s been on it just over four weeks. Also, the symptom that seems to cause the most problems is dizziness which he has all the time. Is the Sinemet likely to help that or should he see
My husband is newly diagnosed with MSA and is on Sinemet x3 daily. So far the medication doesn’t seem to be helping, he’s been on it just over four weeks. Also, the symptom that seems to cause the most problems is dizziness which he has all the time. Is the Sinemet likely to help that or should he see
Redjune1
in
Multiple System Atrophy Trust
3 years ago
Help Needed! Selegiline?
I am on Sinemet/ Zandopa 4 times a day, including 3 times during the day and 1 before bedtime. It works well for me so far, during Sinemet on- time, I am pretty much symptom free ( although it only lasts for about 2 hours). I also take it right before bedtime, so I can have few hours of comfortable sleep
I am on Sinemet/ Zandopa 4 times a day, including 3 times during the day and 1 before bedtime. It works well for me so far, during Sinemet on- time, I am pretty much symptom free ( although it only lasts for about 2 hours). I also take it right before bedtime, so I can have few hours of comfortable sleep
LauraYu
in
Cure Parkinson's
3 years ago
Supplement recommendations
My father was diagnosed 4 years ago with PD.... 2 years before me. His symptoms are very different from mine. Both of us are LRRK2 positive. He is taking Sinemet 25/100 4 x a day. His apathy is by far the most bothersome non motor symptom... well at least to the family it is..... He will not exercise
My father was diagnosed 4 years ago with PD.... 2 years before me. His symptoms are very different from mine. Both of us are LRRK2 positive. He is taking Sinemet 25/100 4 x a day. His apathy is by far the most bothersome non motor symptom... well at least to the family it is..... He will not exercise
Missy0202
in
Cure Parkinson's
3 years ago
Stutter Step
If this has been addressed before, I missed the post. Does anyone else experience stutter step, (uncontrollable, unpredictable quick steps) which makes it hard to keep balance. My husband is almost 3 years post diagnosis and started stutter step recently a couple of months ago. When it happens,
If this has been addressed before, I missed the post. Does anyone else experience stutter step, (uncontrollable, unpredictable quick steps) which makes it hard to keep balance. My husband is almost 3 years post diagnosis and started stutter step recently a couple of months ago. When it happens,
Lookingforhealing
in
Cure Parkinson's
3 years ago
Surprise, surprise. "When should you start medication therapy for Parkinson's disease?" as per THE PARKINSON'S FOUNDATION.
"The most important factor in initiating medications for an individual patient is whether Parkinson’s symptoms are affecting quality of life, (read; interfering with...) or alternatively whether symptoms are affecting work performance." Read; not automatically at the time of diagnosis. https://www.parkinson.org
"The most important factor in initiating medications for an individual patient is whether Parkinson’s symptoms are affecting quality of life, (read; interfering with...) or alternatively whether symptoms are affecting work performance." Read; not automatically at the time of diagnosis. https://www.parkinson.org
MBAnderson
in
Cure Parkinson's
3 years ago
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