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Sickle Cell Trait is a disease.
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
Omie11
in
Sickle Cell Society
8 years ago
BS not reducing with insulin.
I am 54 yes . with diabetes since 11 yes. With insulin since 3 yrs.Was tskinl Insuman combo 15 and 12 units . control was good 102/ 165. Fell down 6 moths back . fractured tibia fibula . nursing homecsaid sugar was 330 . prescribed novarapid 30 + 30 +30, sugar not at all down. Now changed to actrapid
I am 54 yes . with diabetes since 11 yes. With insulin since 3 yrs.Was tskinl Insuman combo 15 and 12 units . control was good 102/ 165. Fell down 6 moths back . fractured tibia fibula . nursing homecsaid sugar was 330 . prescribed novarapid 30 + 30 +30, sugar not at all down. Now changed to actrapid
padminisrinivas
in
Diabetes India
8 years ago
Low EGFR
Hi guys, I'm new to this kidney blog but have come on here as I am at a bit lost with it all. My EGFR is usually around the 40 mark with Creatinine around 160. Unfortunately I also have a couple of fractured vertebrae from my osteoporosis so I have recently been taking Amitriptylin for the pain. Now
Hi guys, I'm new to this kidney blog but have come on here as I am at a bit lost with it all. My EGFR is usually around the 40 mark with Creatinine around 160. Unfortunately I also have a couple of fractured vertebrae from my osteoporosis so I have recently been taking Amitriptylin for the pain. Now
Hidden
in
Early CKD Support
8 years ago
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My labs are MCH is 26.2. My RDW is 15.1.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
AjahY
in
Pernicious Anaemia Society
8 years ago
Rising haematocrit levels
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Margo18
in
MPN Voice
8 years ago
Hemoglobin c trait...SCT..SCA...what do I have
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
Diamondlyfe16
in
Sickle Cell Society
8 years ago
Sickle Cell Trait - HELP
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
mssara
in
Sickle Cell Society
8 years ago
Symptoms and the trait
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Advice on S.C.D and S.C.T
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
cazzera
in
Sickle Cell Society
8 years ago
The Sickle Cell Journey
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
Tone124
in
Sickle Cell Society
8 years ago
mum in hospital with kidney failure...new member
Hi I hope you don't mind me writing on here as its about my mum and her recent episode of illness that has left her in hospital. mum has had heart failure and kidney disease for many years on top of a number of smaller ailments. last week we thought we had lost her as she was taken to hospital by
Hi I hope you don't mind me writing on here as its about my mum and her recent episode of illness that has left her in hospital. mum has had heart failure and kidney disease for many years on top of a number of smaller ailments. last week we thought we had lost her as she was taken to hospital by
snowygirl
in
Early CKD Support
8 years ago
Vitamin B complex
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
Kenbowns
in
Pernicious Anaemia Society
8 years ago
Liver Transplant - 2 Years On
New to the site & only found it because I was looking for some travel advice (found that ). I had my transplant on 18 Aug 2014 and am now feeling a whole lot better than I did before the op. The first year was 'different' - taking all those medications, keeping a close eye on diet and coping with a
New to the site & only found it because I was looking for some travel advice (found that ). I had my transplant on 18 Aug 2014 and am now feeling a whole lot better than I did before the op. The first year was 'different' - taking all those medications, keeping a close eye on diet and coping with a
Hidden
in
British Liver Trust
8 years ago
Chronic kidney disease and vitamin d deficiency
Ckd 3 has anyone been on vitamin d medication for severe deficiency ? I've been taking 20,000 once a week now for a year but my gfr has gone from 50 to 40 !! Is this the medication , diet or just decline? I also have endometriosis and adymyosis so concerned they may be damaging my kidneys!
Ckd 3 has anyone been on vitamin d medication for severe deficiency ? I've been taking 20,000 once a week now for a year but my gfr has gone from 50 to 40 !! Is this the medication , diet or just decline? I also have endometriosis and adymyosis so concerned they may be damaging my kidneys!
meg06
in
Early CKD Support
8 years ago
Expert advice needed
I am suffering from diabetes for the last 3 years. I take Lantus insulin (10 units ) daily, Diamicron XR MEX 500 and Janumet 50/500. Still my blood sugar levels don't come down to normal.
I am suffering from diabetes for the last 3 years. I take Lantus insulin (10 units ) daily, Diamicron XR MEX 500 and Janumet 50/500. Still my blood sugar levels don't come down to normal.
shyamal75
in
Diabetes India
8 years ago
Kidney transplant
hi,. I'm a 19 years old with a GFR of 22%, I have chronic disease anemia and hypertension. I was told months ago I'd be getting a pre emotive transplant and I got a letter aaying ive been referred to the transplant team. Does anyone know where this goes from here. And how long it might be before I
hi,. I'm a 19 years old with a GFR of 22%, I have chronic disease anemia and hypertension. I was told months ago I'd be getting a pre emotive transplant and I got a letter aaying ive been referred to the transplant team. Does anyone know where this goes from here. And how long it might be before I
Beanbag5
in
Early CKD Support
8 years ago
Keith from King's
Hi, I'm Keith Jarman from just outside Gravesend in Kent. I've been on Kidney Failure pathway for 6 years. Have tried APD, CAPD, HD, Transplant (failed), and back to HD. At one stage I was due to go 'home' but the transplant intervened. Now hoping to undergo re-training for home HD. The advice is to
Hi, I'm Keith Jarman from just outside Gravesend in Kent. I've been on Kidney Failure pathway for 6 years. Have tried APD, CAPD, HD, Transplant (failed), and back to HD. At one stage I was due to go 'home' but the transplant intervened. Now hoping to undergo re-training for home HD. The advice is to
kayjay19
in
Dialysis Support
8 years ago
uncontrolle diabetic
i take a apidra insulin 22 units lantus 30 units metformin 1000 twice jalra 50 mg and glimepiride 6 mg still my sugar level is high
i take a apidra insulin 22 units lantus 30 units metformin 1000 twice jalra 50 mg and glimepiride 6 mg still my sugar level is high
Hidden
in
Diabetes India
8 years ago
Not understanding
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
Maurethiahollins
in
Sickle Cell Society
8 years ago
Keeping track of what I eat can you help
I've been following the advice of my specialist you know list of eats and dont eats but as my gfr dived nearly 3% to 39.47 I think I need to go further into my diet tracking nutrients etc you know protien carbs etc can you help with recipies and apps that can help me keep track?
I've been following the advice of my specialist you know list of eats and dont eats but as my gfr dived nearly 3% to 39.47 I think I need to go further into my diet tracking nutrients etc you know protien carbs etc can you help with recipies and apps that can help me keep track?
joke
in
Early CKD Support
8 years ago
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