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Sialic acid storage disorders
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Anhedonia
Anhedonia is an inability to feel positive emotions. It can be characterized by feeling of being numb or only negative emotions. It is a common symptom of many mental health disorders. One is depression. I realized that I have anhedonia when the most I could feel was numb and couldn't really feel or
Anhedonia is an inability to feel positive emotions. It can be characterized by feeling of being numb or only negative emotions. It is a common symptom of many mental health disorders. One is depression. I realized that I have anhedonia when the most I could feel was numb and couldn't really feel or
Brooklyn99
in
Anxiety and Depression Support
2 years ago
Omega 3
Hi all, hope everyone is feeling well. My husband has CLL and has been taking Ibrutinib for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
Hi all, hope everyone is feeling well. My husband has CLL and has been taking Ibrutinib for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
shellsb
in
CLL Support
2 years ago
life with depression and a terminal illness.
So after a diagnosis early last year this feb 2022 went terminal as it ended up in end stage failure. As if that isn’t enough toss in depression I developed on top of the anxiety and C-PTSD and to sick to be able to take any meds for the depression.
So after a diagnosis early last year this feb 2022 went terminal as it ended up in end stage failure. As if that isn’t enough toss in depression I developed on top of the anxiety and C-PTSD and to sick to be able to take any meds for the depression.
FrankMarsh19
in
Anxiety and Depression Support
2 years ago
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Loss of Bone density
I have just received a low bone density diagnosis due to the 8 months of prednisone, I suppose. I am devastated as I have followed all the recommendations for diet, pills, including alendronate, and do numerous weight bearing activities. Can bone density ever improve naturally? Or is this forever?
I have just received a low bone density diagnosis due to the 8 months of prednisone, I suppose. I am devastated as I have followed all the recommendations for diet, pills, including alendronate, and do numerous weight bearing activities. Can bone density ever improve naturally? Or is this forever?
Strelitzia
in
PMRGCAuk
2 years ago
Autism
I wrote to doctor list of neurological issues since TBI as wanted to see neurologist ,he called me back to say he believes my symptoms correlate more with autism so put me forward for assesment ,females present a lot differently in autism so fly under the radar as was previously believed that only males
I wrote to doctor list of neurological issues since TBI as wanted to see neurologist ,he called me back to say he believes my symptoms correlate more with autism so put me forward for assesment ,females present a lot differently in autism so fly under the radar as was previously believed that only males
Timbukt
in
Headway
2 years ago
What is my fracture risk?
I was diagnosed with osteoporosis last November and prescribed Alendronic Acid. I was slow to begin taking it, wanting to understand the risks and benefits etc. But I wasn't told what my risk of fracture is? The report I was sent shows T scores and Z scores but not the risk of fracture.Has anyone else
I was diagnosed with osteoporosis last November and prescribed Alendronic Acid. I was slow to begin taking it, wanting to understand the risks and benefits etc. But I wasn't told what my risk of fracture is? The report I was sent shows T scores and Z scores but not the risk of fracture.Has anyone else
Zadock
in
Bone Health and Osteoporosis UK
2 years ago
Clonazepam for freezing gait?
My husband's CBD has progressed to the point where he can hardly walk at all, even holding on to me. Getting him down the hall to the toilet and back to his lift chair is challenging. He drags his left foot and every few steps he freezes and can't continue for several seconds. I'm wondering if clonazepam
My husband's CBD has progressed to the point where he can hardly walk at all, even holding on to me. Getting him down the hall to the toilet and back to his lift chair is challenging. He drags his left foot and every few steps he freezes and can't continue for several seconds. I'm wondering if clonazepam
Perrywrinkle
in
PSP Association
2 years ago
RLS or sleep myoclonus?
I suspect I may have RLS. I meet all the criteria re: urge to move, worse at bedtime, etc. But I can’t say I have “creepy-crawly” or “fizzy” sensations. For me it’s like I can feel this tension building up in a muscle and I need to stretch or twitch to relieve the feeling. I also get a lot of involuntary
I suspect I may have RLS. I meet all the criteria re: urge to move, worse at bedtime, etc. But I can’t say I have “creepy-crawly” or “fizzy” sensations. For me it’s like I can feel this tension building up in a muscle and I need to stretch or twitch to relieve the feeling. I also get a lot of involuntary
cdragin
in
Restless Legs Syndrome
2 years ago
Trelstar
My urologist changed my eligard injections to Trelstar without my knowledge. It was given subq instead of IM as prescribed. Is that a problem?
My urologist changed my eligard injections to Trelstar without my knowledge. It was given subq instead of IM as prescribed. Is that a problem?
Altamontt
in
Advanced Prostate Cancer
2 years ago
Alendronic Acid
I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my weekly intake of Alendronic acid, but I first of all contacted my GP. She has responded by saying that I should stay on it for five years. I have been on it for 15 months. What are your thoughts on stopping Alendronic Acid.
I have reduced my Prednisolone to 3 ml a day, I was thinking of stopping my weekly intake of Alendronic acid, but I first of all contacted my GP. She has responded by saying that I should stay on it for five years. I have been on it for 15 months. What are your thoughts on stopping Alendronic Acid.
Gardenbay
in
PMRGCAuk
2 years ago
A bit of cheer when we need it.
A bit off topic, but I'm so chuffed at having self published my third book! I'm not bothered about sales, just a few reviews and the sense of achievement through all my dark days of bad consultations, taper/flare yoyos, etc. Stuck at 10 mgs Pred currently and still resisting MTX & Zoledronic acid
A bit off topic, but I'm so chuffed at having self published my third book! I'm not bothered about sales, just a few reviews and the sense of achievement through all my dark days of bad consultations, taper/flare yoyos, etc. Stuck at 10 mgs Pred currently and still resisting MTX & Zoledronic acid
strawclutching
in
PMRGCAuk
2 years ago
Housing anxiety and mental health system?
I've been dx with GAD MDD and PTSD. I had crisis starting in 2018 went for help. Disaster, system and treatment (mistreatment some cases) made things worse. Anyone else had bad time? Sorry if triggered anyone.
I've been dx with GAD MDD and PTSD. I had crisis starting in 2018 went for help. Disaster, system and treatment (mistreatment some cases) made things worse. Anyone else had bad time? Sorry if triggered anyone.
PeaceNeed
in
Anxiety and Depression Support
2 years ago
Dr Berg: "The REAL Cause of Alzheimer's Is NOT Amyloid Plaque in the Brain"
Dr Berg has over EIGHT MILLION subscribers on YouTube. His background is chiropractic but his videos very rarely talk about anything that is 'chiro' He always has very interesting (and unde 10 minutes!) health video. I know that ALZ is 'not' PD... But they are very much related in as much they are
Dr Berg has over EIGHT MILLION subscribers on YouTube. His background is chiropractic but his videos very rarely talk about anything that is 'chiro' He always has very interesting (and unde 10 minutes!) health video. I know that ALZ is 'not' PD... But they are very much related in as much they are
PDWarrior1900
in
Cure Parkinson's
2 years ago
Anxiety and panic attacks
Since I was a child, I've suffered on and off from anxiety and panic attacks. In 2005 I finally saw a psychiatrist who prescribed 20mg paroxetine which I could cut in half if I felt good, then go back up to 20mg if needed. That's exactly what I did early in November. The anxiety got worse. It's now been
Since I was a child, I've suffered on and off from anxiety and panic attacks. In 2005 I finally saw a psychiatrist who prescribed 20mg paroxetine which I could cut in half if I felt good, then go back up to 20mg if needed. That's exactly what I did early in November. The anxiety got worse. It's now been
CAGgmb
in
Anxiety and Depression Support
2 years ago
Increased aminoacids ... Could this be my gut issue
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
Waiting_for_godo
in
IBS Network
2 years ago
putting things off has becoming a habit.
I am unhappy with myself for putting off things I know I should be doing. Like organizing my stuff and studying. I think its my adhd which is getting things like this. I want to talk to my doctor but the last medication I had made me angry alot. I don't want him to prescribe that. he is a mental health
I am unhappy with myself for putting off things I know I should be doing. Like organizing my stuff and studying. I think its my adhd which is getting things like this. I want to talk to my doctor but the last medication I had made me angry alot. I don't want him to prescribe that. he is a mental health
mhg22
in
Anxiety and Depression Support
2 years ago
Use of ED ring
Hi All, I'm a new member to this group so I apologise if this question is a common one. Due to health reasons (hypertension and side effects from meds) I have suffered from ED on and off for years for which I used Cialis (20mg) which was usually effective. However, couple of years ago I was diagnosed
Hi All, I'm a new member to this group so I apologise if this question is a common one. Due to health reasons (hypertension and side effects from meds) I have suffered from ED on and off for years for which I used Cialis (20mg) which was usually effective. However, couple of years ago I was diagnosed
Hidden
in
Erectile Dysfunction Support
2 years ago
Getting a good night's sleep
Many people living with chronic pain report difficulties with sleep. Pain makes getting comfortable in bed harder and can delay falling asleep. It can also reduce sleep continuity, which means increasing the amount of times you wake at night and waking you earlier than usual in the morning. Understandably
Many people living with chronic pain report difficulties with sleep. Pain makes getting comfortable in bed harder and can delay falling asleep. It can also reduce sleep continuity, which means increasing the amount of times you wake at night and waking you earlier than usual in the morning. Understandably
PainConcernProjects
Pain Concern
in
Pain Concern
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
EPguy
in
MPN Voice
2 years ago
Low Sulfur Diet?
Low Sulfur Diet?
2022/12/07 - 22:14 So I was reading this Martha's Quest blog post: Desulfovibrio bacteria, Parkinson's and diet https://www.marthasquest.com/post/desulfovibrio-bacteria-parkinson-s-and-diet She was talking about Desulfovibrio Bacteria being associated with Parkinson’s Disease
Low Sulfur Diet?
2022/12/07 - 22:14 So I was reading this Martha's Quest blog post: Desulfovibrio bacteria, Parkinson's and diet https://www.marthasquest.com/post/desulfovibrio-bacteria-parkinson-s-and-diet She was talking about Desulfovibrio Bacteria being associated with Parkinson’s Disease
Bolt_Upright
in
Cure Parkinson's
2 years ago
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