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Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
1 month ago
Preventing IBS diarrhea before plane travel
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
MrsSJO
in
IBS Network
7 months ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
1 month ago
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thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
1 year ago
I didn't realise this could happen. ......
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
Hidden
in
Headway
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
Are my eyes yellow?
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
Hidden
in
British Liver Trust
9 months ago
Laxido orange...
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
John_70
in
IBS Network
1 year ago
Radium-223 and [177Lu]Lu-PSMA
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
westjl2
in
Advanced Prostate Cancer
3 months ago
ketchup
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
catsup
in
Advanced Prostate Cancer
3 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
3 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
3 months ago
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
3 months ago
General blood test - do I need to worry (not that it helps!)
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Bluey-1
in
PMRGCAuk
1 year ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Good News From Nephrologist Today!
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Kidney Disease
1 year ago
Just need to have a rant about this horrendous condition 😡
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
Floss-12
in
IBS Network
10 months ago
Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
4 months ago
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