Experiences with

Sarcoidosis

A new culprit — hydrogen sulfide — has been found for the deadly infectious disease tuberculosis. Hydrogen sulfide gas is known for its rotten egg smell, yet it has normal physiological roles in the human body to communicate among cells. When tuberculosis bacteria invade the lung, however, the amounts

to find a diagnosis for some time I had an MRI scan which showed lesions on the brain about two years ago I was diagnosed with MS my mum had MS and then I had that diagnosis taken away I was told I had lupus and then that taken away due to bloodwork my only bloodwork that I have is high ACEI see a sarcoidosis

Does anyone know anything about this condition and if there is any connection between AF and sarcoidosis?

Highlights • Chest deformities in Osteogenesis Imperfecta patients affect pulmonary function. • We present the rib cage deformities related to pulmonary function. • There are significant relations between ribs shape and spirometric parameters. • There is no relationship between thoracic spine shape

said .. he stated to me that I do not have neuro sarcoidosis and mex I didn’t need But had said he will do another brain scan pet scan a ect but I have to come off the steroids To be able to see it!

These include the following -Graves Disease, Rheumatoid Arthritis, POTS, MCAD, Sjogren's, Scleroderma, Hashimoto Disease, Ankylosing Spondylitis, Fibromyalgia, Lupus, Sarcoidosis, Hepatitis, Raynauld's Syndrome, Diabetes, Mold Illness, Celiac, CROHN’S, Ulcerative Colitis, Pemphigus, SPS, MS, PBC, Antiphospolipid

What is your lung condition (I have sarcoidosis) and what does your electric concentrator in the house look like. Do you have portable oxygen to take out of the house?

I’ve took 6 frolic acid tablets on Friday which was supposed to be my Methotrexate day. I’ve only just realised. Friday methotrexate x 6. Sunday Frolic Acid x1. I’ve taken 6 methotrexate now. Should this pose a problem? Although different packets both tablets look the same and didn’t realise

Are there any sarcoidosis sufferers?

I have had sarcoidosis for 45 years and brochiectasis for 20 yeas. I do postural breathing 3 times a day and it is getting harder. Is there a brochiectasis self help group in the London area? Not a lung group as that covers too many conditions. Cliff Kent Beckenham Kent

I had to put down that I have Sarcoidosis, bec as use my disease isn’t included. I have Acute Hypersensitivity Pneumonitis. My breathing is getting worse every day and I was hoping to find someone else who has this disease that I could talk to. Anyone out there?

I am only 23 years old and very scared- my previous doctor incorrectly diagnosed me with sarcoidosis last year and put me on steroids- this is the first time I have actually gotten a proper diagnosis. My doctor said it would take a year before I really feel better- is this true?

looking forward too getting started (again) had too stop due too legs swelling up and being told I had cancer thank god it was just sarcoidosis and some very slight lung damage but I’m feeling good now and wanna lose this weight(17st11) already lost stone and half with dieting alone(Keto) but i seem

I saw a respiratory consultant several months ago who said I had all the signs of Sarcoidosis but I was too old. I am 79. I have read the literature about Sarcoidosis and I agree it does state it's mainly younger people who get it but it also includes older people as well.

What is this? It raises up like Dermatographia but the rash leaves and I’m left with a really red mark? For few days It doesn’t itch or hurt at all and the weals raise up after scratches or pressure... also most noticeable after hot shower.

I’m sue, 67 and I have Sarcoidosis. I’d like to get in touch with other sufferers especially those in the West Midlands re: Consultant. I’m struggling at the moment but enjoy respites from this horrible disease. My hobbies are reading, writing, theatre and cinema and my gorgeous grandchildren.

Does anyone else out there have Cardiac Sarcoidosis and any experiences to share?

I also have a lot of undiagnosed symptoms that, according to my research, are explained by Cardiac Sarcoidosis that I am able to control myself with Prednisone, Nitroglycerin and Lyrica.

Struggling with daily living due to numerous chronic diseases i.e sarcoidosis, bronchechtiasis, fibromyalgia,arthritis,etc,etc. The list is endless.

specialist and he told me that I don’t have sarcoidosis even though I have higher rates levels to be honest with you I don’t think anything is Doctors there any good because they have been continuously taking my money given me all these diagnosis with out actually write them in a letter tell me what