Experiences with

Rytary

Today I am experimenting replacing 1 of each 3 Rytary pils with 800mg of Mucuna and so far I feel great!

I’ve been using Rytary 145 mg with 1 25/100 , I take Em release first, then 2 hours later the Rytary, it would give me about two hours- 3 on time and then another 25/100 and then in 2 hours 145 Rytary.

Hi Doc, I gave the Rytary idea a go. To refresh, take 45 rytary at bedtime to hopefully give me a base to then add sinemet ir thru the day. It didn't go well. In fact, the rytary just made me feel awful in my head and gut so I aborted.

Knowing that Rytary is given three times a day means I should tell them the tremor gets worse eight hours after the last dose? And what about dyskinesia. I've been on Rytary for seven years. Shouldn't I be having side effects from Rytary by now? Is it time to add another agonist?

My movement disorder specialist switched me from Rytary 48.75/195 (2 capsules 6X daily) to CREXONT 87.5/350 (2 capsules 3X daily, in order to see if it gave me more ON time.

In the meantime I have been on Rytary 3 95s every 3 hours. I have just developed dystonia (very painful) in my upper shoulder and neck. Dr just gave me a steroid shot, didn’t seem to help. I can’t walk if I miss the three Rytary. I’m even going to the chiropractor. Don’t know if that will help.

I'm wondering if it is to get people on it and used to it before Rytary has a generic version ( not sure when that will be). Am I being too skeptical?

A doctor in Mayo clinic switched me to rytary. It is expensive , do you think switching worth it?

Supposed to be better than Rytary 🤔 My doctor has prescribed it for me but still awaiting insurance authorization. https://crexont.com/

Recently my Neurologist wrote me a prescription for Rytary, however it's not covered by my drug plan and was going to cost me $883.00 per month, so I cancelled it. I'm in my 10th year with the diagnosis and it's getting pretty difficult to minimize the off times with just the C/L IR.

My MDS feels like I probably need to add an additional dose a day- I currently take 390 mg of Rytary ER 5 times per day. Anyone else ever or currently experiencing this? Thanks for your help.

(seems to be a rytary look alike, a timed release capsule that reduced the amount of times I had to take meds ) from 5x/day with rytary to 3x/day with crexmont. i feel like each day i am getting worse.

The quetiapam /rytary helps me fall asleep and get back to sleep if I wake up, and the Klonopin helps me with anxiety. I also see a counselor who specializes in PD and get regular and vigorous exercise.

I am always super careful about not eating for at least an hour after taking my Rytary C/L ER, but if my digestive system is the least bit sluggish (I usually take Miralax daily, due to sporadic constipation), then I will have 2-3 days of rarely feeling “on”; I will do well to feel anywhere close to

I am always super careful about not eating for at least an hour after taking my Rytary C/L ER, but if my digestive system is the least bit sluggish (I usually take Miralax daily, due to sporadic constipation), then I will have 2-3 days of rarely feeling “on”; I will do well to feel anywhere close to

But my doc at the time changed me to Rytary. I’m in the same practice, but my favorite dr. Retired my second one quit, and I have now a movement specialist who gives me different strengths of Rytary and lets me work it out. Any suggestions of what I should do? Thanks

He gave me a prescription for Rytary. After taking it for a few months, it does NOT help me! It was worse...improve Libodopa/carpadopa...it tightens me and I cannot think, read, focus on anything. Rytary made my paranoid, anxious, no control!

I am currently on Rytary. My concern is that one of the side effects is anxiety, although a low percentage is report this. >3%

I am currently on Rytary. My concern is that one of the side effects is anxiety, although a low percentage is report this. >3%

In December '23, i started Rytary. Made me compulsive (i couldn't stop doing whatever i focused on, cleaning, crafting, etc.), and my already fragile sleep took a hit. Made me feel crazy! Lowering the initial dose (which had been calculated per the Rytary calculator) didn't help.