It seems like my symptoms are progressing at what I feel is an alarming rate. i have had a knee repacement 8/29/24. currently, i take Crexont.(seems to be a rytary look alike, a timed release capsule that reduced the amount of times I had to take meds ) from 5x/day with rytary to 3x/day with crexmont.
i feel like each day i am getting worse. when i got up in middle of nite to use bathroom, i can barely stand and need to use the walls to get me into the bathroom.. the rate i am going, i feel as it is only a matter of time before i am in a wheelchair . during the day, i struggle to get out of a chair and I really feel spacy when I talk and have such a difficult time speaking. balance has also deteriorated.
Has anyone experienced what they feel is fast disease progression?
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Jmellano
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I agree that operations make things worse; my usual schedule of carbodopa was not followed in the hospital where I recently had a hip replacement and I c ame home with a uti infection which has been a nightmare due to more meds to take. I am trying to get the med schedule going but they are not working.I have gone from being independent, to having to hold onto the wall to get around and relying on my brother to take me everywhere and the meds are making me nauseous now; I talked to my dr. and she is going to change my meds to extended release carbolevo. I hope to the this helps; I am 70 years old and my neurologist has wanted me to do deepstimulation and I am desparate and am looking into it too.
It would seem knee replacement related and my thought around that is once you are fully recovered from that PD symptoms may return to more normal levels. Meds, surgery, illness all seem to adversely impact...and then, voila, things seem to return to a more manageable place, I hope this is the case fur you.
I feel it is one or all of your drugs - talk to your neuro and reassess your meds. My PWP went thru that with Sifrol and Entacapone - he has been off both now for almost a year and has reduced his Madopar IR and is better than ever! Balance, speech, posture, gait, comprehension all much better.
Hi Jmellano, I am sorry to hear about your progressively worsening symptoms. As you probably know, age is comorbid with PD, i.e. our muscles become weaker as we get older anyway and since you recently had knee replacement a few days of a sedentary lifestyle doesn't help. I remember my 83 yr old mother having to climb 4 flights of steps to get to her apartment. I thought the exercise would help build some muscle, but it just wore her out. I suggest a bit of testosterone (T) and creatine could help build muscle. I am NOT a medical doctor so BE SURE to ask your neurologist about using T. One side effects of T in females (and males) is that you are "hornier" than usual. T is also rough on the liver, so liver enzymes need to be checked periodically. I take T and am more motivated to "work out".
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thnx much 
Suggestions For Reducing 'Off' Time 
How Much Rytary??
Switching from sinemet to rytary
“Wearing off” symptoms??
