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Rosai-Dorfman disease
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Selegiline - Noticeably improved symptoms
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
My new neurologist started me on Selegiline 10 mg/day. In two weeks I reduced my Sinemet from two pills per day to one. My tremor is much calmer and I feel more clear. So far no negative side effects and I take the first 5 mg on an empty stomach.
Armyman
in
Cure Parkinson's
7 months ago
Fibroscan Result - False?
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Confused2024
in
British Liver Trust
7 months ago
Ramipril
Briefly, I was prescribed this by my consultant to help with the pumping function/blood flow through my left ventricle. It has definitely helped as shown by a follow echocardiogram, and my consultant pleased. However, I was warned by my GP that it might give me a cough.. and it most certainly has!
Briefly, I was prescribed this by my consultant to help with the pumping function/blood flow through my left ventricle. It has definitely helped as shown by a follow echocardiogram, and my consultant pleased. However, I was warned by my GP that it might give me a cough.. and it most certainly has!
Wightbaby
in
Atrial Fibrillation Support
3 months ago
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Now in Persistent Atrial Fibrillation
I was diagnosed with PAF about 23 years ago, and have managed it with medication, at present on 300mg of Flecainide daily, along with Bisoprolol 2.5mg and Apixaban 10mg, For the last 6 months I've been in AF for weeks and then a couple of day I'm in rhythm. I don't want an ablation. Would I receive
I was diagnosed with PAF about 23 years ago, and have managed it with medication, at present on 300mg of Flecainide daily, along with Bisoprolol 2.5mg and Apixaban 10mg, For the last 6 months I've been in AF for weeks and then a couple of day I'm in rhythm. I don't want an ablation. Would I receive
Bee-Honest
in
Atrial Fibrillation Support
3 months ago
persistent A/F
Hi I have recently been in continuous a/f for 7 weeks with HR of on average 130 but peaking at 200 or so. I have seen a cardiologist who has increased Bisoprolol from 1.25 to 5 daily and introduced flecanide( since Monday).I also take warfarin. I feel dreadful! Very out of breath very tired and my
Hi I have recently been in continuous a/f for 7 weeks with HR of on average 130 but peaking at 200 or so. I have seen a cardiologist who has increased Bisoprolol from 1.25 to 5 daily and introduced flecanide( since Monday).I also take warfarin. I feel dreadful! Very out of breath very tired and my
123Elizabeth
in
Atrial Fibrillation Support
3 months ago
Cholesterol Issues Question
Hi, I recently had a routine physical (first time in a few years) and my cholesterol was through the roof LDL 188 Overall 260 I had a few questions as I am in full panic mode. 1) I had a few beers the night before the test and buffalo chicken pizza (11 hours before test) following a week of hot
Hi, I recently had a routine physical (first time in a few years) and my cholesterol was through the roof LDL 188 Overall 260 I had a few questions as I am in full panic mode. 1) I had a few beers the night before the test and buffalo chicken pizza (11 hours before test) following a week of hot
Bostonj
in
Anxiety Support
3 months ago
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome?
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Shewulf
Administrator
in
LDN Research Trust
4 months ago
lupus or fibromyalgia
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
Pricey110
in
Fibromyalgia Action UK
4 months ago
fibromyalgia or lupus
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
Pricey110
in
LUPUS UK
4 months ago
DC Cardioversion
So, had a private consultation with a Cardiologist yesterday to investigate my AF and subsequent shortness of breath. I had previously had 2 separate lung function tests and seen a respiratory consultant twice as well. The net result was that my lungs were normal, and a low key level of emphysema was
So, had a private consultation with a Cardiologist yesterday to investigate my AF and subsequent shortness of breath. I had previously had 2 separate lung function tests and seen a respiratory consultant twice as well. The net result was that my lungs were normal, and a low key level of emphysema was
Dastardly
in
Atrial Fibrillation Support
3 months ago
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
4 months ago
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis in subclinical hypothyroidism.
Have to admit, it is quite hard to read and I have not managed the entirety yet! But it does appear to read that even subclinical hypothyroidism might be important in itself - due to the increased TSH. [i]
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis
Have to admit, it is quite hard to read and I have not managed the entirety yet! But it does appear to read that even subclinical hypothyroidism might be important in itself - due to the increased TSH. [i]
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Taste alteration
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Gemmax
in
British Liver Trust
7 months ago
Creatine and Whey protein
I was diagnosed with Parkinson's in July 2020. In the last year I have lost weight by around 3.5 kg I went to a nutritionist because of the weight loss and, in particular, the loss of muscle mass.In addition to a diet and the recommendation to continue going to the gym twice a week for bodybuilding,
I was diagnosed with Parkinson's in July 2020. In the last year I have lost weight by around 3.5 kg I went to a nutritionist because of the weight loss and, in particular, the loss of muscle mass.In addition to a diet and the recommendation to continue going to the gym twice a week for bodybuilding,
Crepe
in
Cure Parkinson's
7 months ago
delay..
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
heart rate drop
Good evening, i had an ablation back in Jan-23 after being diagnosed with PAF in Oct-22. My avg resting bpm was always between mid high 50s-low 60s as I had exercised regular for all my adult life. I learnt its not uncommon to gain an 10-15 extra beats post ablation and my avg resting bpm did jump
Good evening, i had an ablation back in Jan-23 after being diagnosed with PAF in Oct-22. My avg resting bpm was always between mid high 50s-low 60s as I had exercised regular for all my adult life. I learnt its not uncommon to gain an 10-15 extra beats post ablation and my avg resting bpm did jump
Flutterby100
in
Atrial Fibrillation Support
3 months ago
New here saying hello!
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
ajcooper4
in
Atrial Fibrillation Support
3 months ago
My Update on Breathing and 02 SATs...
Thank you all that replied to my post - My SATS are not to blame for my Breathlessness - But something is and it's being sorted. I went to see my GP and my 02 SATs are normal for me, They go to 89 and even lower, but not consistently. I normally am 92 at the moment - but as I say can go lower. I
Thank you all that replied to my post - My SATS are not to blame for my Breathlessness - But something is and it's being sorted. I went to see my GP and my 02 SATs are normal for me, They go to 89 and even lower, but not consistently. I normally am 92 at the moment - but as I say can go lower. I
Ern007
in
Lung Conditions Community Forum
3 months ago
New Ablation Date
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Lefthook
in
Atrial Fibrillation Support
3 months ago
2 Kardia mobile devices
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
Bobsterguy
in
Atrial Fibrillation Support
3 months ago
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