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Rituximab
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Newly diagnosed GPA without renal involvement. Sorry it’s long.
If anyone cares to share positive
Rituximab
experiences that would be lovely.
If anyone cares to share positive
Rituximab
experiences that would be lovely.
SusanEleven
in
Vasculitis UK
1 year ago
Rituximab finally but ..
Was finally approved this week for Ritibumax. Its been a very long 5 months waiting for them to tick the box and for me to get to the front of another invisible NHS queue. Problem is they want me to stop the Benepali this week and then I have 5 weeks before the first infusion. The nurses are calling
Was finally approved this week for Ritibumax. Its been a very long 5 months waiting for them to tick the box and for me to get to the front of another invisible NHS queue. Problem is they want me to stop the Benepali this week and then I have 5 weeks before the first infusion. The nurses are calling
RootsToots
in
NRAS
1 year ago
Rituximab infusion - side effects?!
Hi everyone, I am awaiting a
rituximab
infusion and i was just wondering how anyone whos had it reacted? How did you feel the next couple of days after? I am a medical student with exams coming up so I just want to pre-empt how much time I am going to need to rest! Do you need time off after it?
Hi everyone, I am awaiting a
rituximab
infusion and i was just wondering how anyone whos had it reacted? How did you feel the next couple of days after? I am a medical student with exams coming up so I just want to pre-empt how much time I am going to need to rest! Do you need time off after it?
nada28
in
LUPUS UK
1 year ago
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Advice please
on
Rituximab
(last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case.
on
Rituximab
(last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case.
Evie3
in
NRAS
1 year ago
POST 3 - CAR-T cell therapy
Since my last post things have been ticking over with regular blood tests, Clinic appointments and my bridging treatment which consists of weekly infusions of
Rituximab
and continuing with Venetoclax, 300mg daily. Apart from a reaction to the first infusion of
Rituximab
all has gone smoothly.
Since my last post things have been ticking over with regular blood tests, Clinic appointments and my bridging treatment which consists of weekly infusions of
Rituximab
and continuing with Venetoclax, 300mg daily. Apart from a reaction to the first infusion of
Rituximab
all has gone smoothly.
casanova
in
CLL Support
1 year ago
Rituximab
Have been told though that a blood test has flagged up positive for the virus that causes glandular fever and they want me to have
rituximab
IV treatment in outpatients at Bham. Has anybody else had similar treatment or presence of this virus?
Have been told though that a blood test has flagged up positive for the virus that causes glandular fever and they want me to have
rituximab
IV treatment in outpatients at Bham. Has anybody else had similar treatment or presence of this virus?
Platelets2022
in
Leukaemia CARE
1 year ago
Covid vaccine and rituximab
Hi All Can someone tell me please what is the time frame after having a covid jab that
rituximab
can be given? Many thanks
Hi All Can someone tell me please what is the time frame after having a covid jab that
rituximab
can be given? Many thanks
Galaxy2
in
Vasculitis UK
1 year ago
immunosuppressants and Covid vaccine
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (
rituximab
) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (
rituximab
) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
MsAmyM
in
Kidney Disease
8 months ago
alternative therapies
In September 22 I started Venetoclax ramp up along with 6 x monthly infusions of
Rituximab
. I have also been having regular IVIG infusions.
In September 22 I started Venetoclax ramp up along with 6 x monthly infusions of
Rituximab
. I have also been having regular IVIG infusions.
MareeM
in
CLL Support
11 months ago
Denied Covid-19 Vaccination
~ Hubby explained he has
Rituximab
for RA. The 2 false nail clad, false eyelash wearing, heavily made up, very young HCAs looked at each other & said, “What’s that?”
~ Hubby explained he has
Rituximab
for RA. The 2 false nail clad, false eyelash wearing, heavily made up, very young HCAs looked at each other & said, “What’s that?”
Turquoise-1
in
LUPUS UK
1 year ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/
rituximab
) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+
Rituximab
) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/
rituximab
) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+
Rituximab
) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Partner
in
CLL Support
10 months ago
My chemo experience
I started with fludarabine and
rituximab
which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects.
I started with fludarabine and
rituximab
which wasn't great. I had feelings of hot and cold, spots before my eyes, vertigo and blacking out. My haematologist was there in minutes, lowered my dose and I was able to complete the course over 6 hours without further adverse effects.
kiwiCanuck
in
CLL Support
1 year ago
Brain shrinking
He has had steroids, IVIG, plasma exchange and
rituximab
and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
He has had steroids, IVIG, plasma exchange and
rituximab
and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
Kw55
in
Encephalitis Society
1 year ago
Antineutrophilic cytoplasmic antibody (ANCA) Vasculitis
Treatment for vasculitis includes using steroids along with other medication the suppress the immune system, such as cyclophosphamide or
rituximab
. I am not coughing up blood like one of the symptoms. But I cough a lot, very thick clear mucus.
Treatment for vasculitis includes using steroids along with other medication the suppress the immune system, such as cyclophosphamide or
rituximab
. I am not coughing up blood like one of the symptoms. But I cough a lot, very thick clear mucus.
EllaNore
in
Pernicious Anaemia Society
1 year ago
Covid 19 and Rituximab
I have had
Rituximab
at beginning of the year, the covid symptoms I have mostly are coughing up light green phlegm maybe once a day. I contacted my GP and others in the begining but not one reply from them which I find shocking. Anyway many thanks for reading about my situation. Take care SfS
I have had
Rituximab
at beginning of the year, the covid symptoms I have mostly are coughing up light green phlegm maybe once a day. I contacted my GP and others in the begining but not one reply from them which I find shocking. Anyway many thanks for reading about my situation. Take care SfS
sorefeetsoldier
in
Vasculitis UK
1 year ago
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments,
rituximab
and belimumab, may be more effective than using
rituximab
alone in patients who have not responded well to other treatment.
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments,
rituximab
and belimumab, may be more effective than using
rituximab
alone in patients who have not responded well to other treatment.
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
My CLL Specialist seemed concerned. I need help understanding test results.
I was treated for AIHA in January 2022 with
rituximab
which got me back running. I have lost a lot of my fitness since then. My recent results (my interpretation) indicate disease progression. I could use some help figuring out what my test results mean.
I was treated for AIHA in January 2022 with
rituximab
which got me back running. I have lost a lot of my fitness since then. My recent results (my interpretation) indicate disease progression. I could use some help figuring out what my test results mean.
SantaZia
in
CLL Support
1 year ago
HAPPY NEW YEAR
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids,
Rituximab
, Mycophenolate Mofetil and plenty more besides.
The topics covered include fatigue, how ITP is treated, ITP in Children, teens and adults, treatments including steroids,
Rituximab
, Mycophenolate Mofetil and plenty more besides.
Anthonyh7
in
ITP Support Association
5 months ago
Change to Rituximab
I have now been offered
Rituximab
and, looking at all the side effects I've scared myself silly. I'm not needle phobic when it's the auto-inject pens but an infusion is something else. Please could you share your experiences of this drug positive or negative.
I have now been offered
Rituximab
and, looking at all the side effects I've scared myself silly. I'm not needle phobic when it's the auto-inject pens but an infusion is something else. Please could you share your experiences of this drug positive or negative.
Gnarli
in
NRAS
1 year ago
Upset
He says my blood pressure needs to be more stable or I cannot go back on the ocrevus, he also suggested
rituximab
.
He says my blood pressure needs to be more stable or I cannot go back on the ocrevus, he also suggested
rituximab
.
Jhayespt
in
My MSAA Community
11 months ago
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