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Fever post chemo
I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wednesday. My normal temp is 36.6 and Thursday evening it went up to 37.5 for the first time. Then on Friday it rose all day until it reached 38.12 (Anything over 38C (100.4 for USA) means you have to call it in, so I called
I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wednesday. My normal temp is 36.6 and Thursday evening it went up to 37.5 for the first time. Then on Friday it rose all day until it reached 38.12 (Anything over 38C (100.4 for USA) means you have to call it in, so I called
Marie-54
in
CLL Support
6 years ago
Rituximab Injections
See tomorrow's ( 16 December 2017) very interesting article on development of RTX injections that only need to be administered yearly.
See tomorrow's ( 16 December 2017) very interesting article on development of RTX injections that only need to be administered yearly.
AgedCrone
in
NRAS
6 years ago
Rituximab or Cyclophosphamide
My question is whether anyone on here has experience of
Rituximab
or Cyclophosphamide?, how did you react to the treatment and what benefit did it give you. Thanks in advance Andrew
My question is whether anyone on here has experience of
Rituximab
or Cyclophosphamide?, how did you react to the treatment and what benefit did it give you. Thanks in advance Andrew
Barnesy77
in
Lung Conditions Community Forum
6 years ago
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FCR on Flair trial at Christie Hospital
Previously I had a single Akynzeo tablet before starting the
Rituximab
infusion and a supply of Metoclopramide to take if needed. I had a rash on my body after the first round, the Co- Trimoxazole anti-biotic tablets were replaced by Pentamidine 300 mg via nebuliser for rounds 2&3.
Previously I had a single Akynzeo tablet before starting the
Rituximab
infusion and a supply of Metoclopramide to take if needed. I had a rash on my body after the first round, the Co- Trimoxazole anti-biotic tablets were replaced by Pentamidine 300 mg via nebuliser for rounds 2&3.
Anthonymac
in
CLL Support
6 years ago
What is your real ‘biological age’, and what does this mean for your health?
When it comes time for treatment, our options are strongly influenced by our age - or perhaps our relative level of fitness compared to others our age, rather than how many years we've lived, as this has a strong determining influence on whether we would do better on BR rather than FCR, for example.
When it comes time for treatment, our options are strongly influenced by our age - or perhaps our relative level of fitness compared to others our age, rather than how many years we've lived, as this has a strong determining influence on whether we would do better on BR rather than FCR, for example.
AussieNeil
Partner
in
CLL Support
6 years ago
Hypogonadism and vasculitis + Rituximab
I had my 12 weekly depo injection of testosterone today and have my second infusion of the biosimilar Texan I think it’s called. I had a very weird experience this afternoon where I was out of it & was even talking about stuff that wasn’t happening and the better half calls it rubbish talk. I did ask
I had my 12 weekly depo injection of testosterone today and have my second infusion of the biosimilar Texan I think it’s called. I had a very weird experience this afternoon where I was out of it & was even talking about stuff that wasn’t happening and the better half calls it rubbish talk. I did ask
Balderick
in
Vasculitis UK
6 years ago
Loss of a great man
It is with a heavy heart I write this post. My father passed away on Thursday, Feb 8th. I brought him to the hospital on Monday as he had horrible pains in his ear and throat and was growing weak. His condition deteriorated with slight signs of pneumonia, ear infections and a loss of appetite, speech
It is with a heavy heart I write this post. My father passed away on Thursday, Feb 8th. I brought him to the hospital on Monday as he had horrible pains in his ear and throat and was growing weak. His condition deteriorated with slight signs of pneumonia, ear infections and a loss of appetite, speech
Stevediam
in
CLL Support
6 years ago
Possible CNS involvement with ANCA Vasc
I'll be seeing him next week Thursday to start my first
Rituximab
infusion and then have the second infusion two weeks later. In the mean time, I continue on 40mg Prednisolone and 1g MMF a day. On the bright side, I'll be going home from uni tomorrow for Christmas.
I'll be seeing him next week Thursday to start my first
Rituximab
infusion and then have the second infusion two weeks later. In the mean time, I continue on 40mg Prednisolone and 1g MMF a day. On the bright side, I'll be going home from uni tomorrow for Christmas.
Vo321
in
Vasculitis UK
6 years ago
Eye pain
Hi I have dermatomyositis, treated with
rituximab
10 weekly but am recently- last few months - suffering severe eye pain anyone experiencing similar any treatment suggestions pain is excruciating at night ophthalmologist prescribed eye drops for dry eyes these do not work. Thanks in advance
Hi I have dermatomyositis, treated with
rituximab
10 weekly but am recently- last few months - suffering severe eye pain anyone experiencing similar any treatment suggestions pain is excruciating at night ophthalmologist prescribed eye drops for dry eyes these do not work. Thanks in advance
Rsheppard
in
Myositis UK
6 years ago
Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Korstiaan
in
CLL Support
6 years ago
Lost sense of smell and taste
Gone through all the usual treatments including prednisolone,
rituximab
, and cyclophosphamide of which I’ve had 16 infusions as my disease has proven very resistant. Somewhere along the way my sense of smell has gone.
Gone through all the usual treatments including prednisolone,
rituximab
, and cyclophosphamide of which I’ve had 16 infusions as my disease has proven very resistant. Somewhere along the way my sense of smell has gone.
nicholson27
in
Vasculitis UK
6 years ago
Recent research
Looking at the safety and efficacy of
Rituximab
in refractory SLE. https://academic.oup.com/rheumatology/advance-article-abstract/doi/10.1093/rheumatology/kex395/4688912
Looking at the safety and efficacy of
Rituximab
in refractory SLE. https://academic.oup.com/rheumatology/advance-article-abstract/doi/10.1093/rheumatology/kex395/4688912
Hidden
in
LUPUS UK
6 years ago
Did anyone else see this on the BBC today?
Hello everyone BBC has this piece on their website today . Very interesting for all of us I think you will agree. https://www.bbc.co.uk/news/amp/stories-42920045 5 months since my FCR and my bloods were back to being poor last week - neutropenia again which has set me back and I think may lead to a
Hello everyone BBC has this piece on their website today . Very interesting for all of us I think you will agree. https://www.bbc.co.uk/news/amp/stories-42920045 5 months since my FCR and my bloods were back to being poor last week - neutropenia again which has set me back and I think may lead to a
MattGGibson
in
CLL Support
6 years ago
Increase in Lupus Symptoms
But then after getting
rituximab
infusion i was pretty much back to normal up until now 😞😞 in 2010 i had the infusion and been doing well for 7 year's. I still had random stomach upsets, GI problems, Migraines etc. About a month or two ago i started having joint pain, muscle swelling etc.
But then after getting
rituximab
infusion i was pretty much back to normal up until now 😞😞 in 2010 i had the infusion and been doing well for 7 year's. I still had random stomach upsets, GI problems, Migraines etc. About a month or two ago i started having joint pain, muscle swelling etc.
LifeAsALupie
in
LUPUS UK
6 years ago
Latest research into ANCA associated Vasculitis and Rituximab
It's the report of a clinical trial comparing regular
Rituximab
infusions for AAV with tailored regimes taking into account ANCA and B cell levels. https://ancavasculitisnews.com/2017/12/04/tailored-rituxan-regimens-in-anca-patients-show-no-signficant-impact-on-relapses-in-phase-3-trial/?
It's the report of a clinical trial comparing regular
Rituximab
infusions for AAV with tailored regimes taking into account ANCA and B cell levels. https://ancavasculitisnews.com/2017/12/04/tailored-rituxan-regimens-in-anca-patients-show-no-signficant-impact-on-relapses-in-phase-3-trial/?
Hidden
in
Vasculitis UK
6 years ago
Rituximab
The
Rituximab
saga began in 2004 when two oncologists noticed that
Rituximab
– a B-cell depleting drug often used in cancer – not only cured one of their patient’s cancer but eliminated their chronic fatigue syndrome (ME/CFS) as well.
The
Rituximab
saga began in 2004 when two oncologists noticed that
Rituximab
– a B-cell depleting drug often used in cancer – not only cured one of their patient’s cancer but eliminated their chronic fatigue syndrome (ME/CFS) as well.
readerlist
in
Ramsays Disease
7 years ago
“Yay I’m finally out of hospital!!”
So, while in hospital for 6 weeks, Bev had two 8 hour drips of
Rituximab
- two blood transfusions - countless pills and tests - another Albumin drip - and another iron transfusion - and maybe another iron drip in 2 weeks.
So, while in hospital for 6 weeks, Bev had two 8 hour drips of
Rituximab
- two blood transfusions - countless pills and tests - another Albumin drip - and another iron transfusion - and maybe another iron drip in 2 weeks.
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
6 years ago
Round 4 FCR complete
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
Marie-54
in
CLL Support
6 years ago
Rituximab again
Last Thursday I had my fourth of a two part course of
Rituximab
infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the effects of the the tablets. During the infusion I felt very hot and had to have a fan to cool me but my temperature was normal.
Last Thursday I had my fourth of a two part course of
Rituximab
infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the effects of the the tablets. During the infusion I felt very hot and had to have a fan to cool me but my temperature was normal.
Maureenpearl
in
LUPUS UK
7 years ago
Rituximab - Biological Drugs
I have had RA for 12 years now and my consultant wants to put me on
Rituximab
. I am very concerned about the side effects of this drug, particularly as I have already had a heart attack linked to my RA. Does anyone have experience of this drug, good or bad, or are like me, worried about starting.
I have had RA for 12 years now and my consultant wants to put me on
Rituximab
. I am very concerned about the side effects of this drug, particularly as I have already had a heart attack linked to my RA. Does anyone have experience of this drug, good or bad, or are like me, worried about starting.
7stiff4days
in
NRAS
7 years ago
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