Log in
22,381 members β€’ 17,771 posts

Increase in Lupus Symptoms

I was diagnosed in 2006 and for 2-3 year's it was quite rough. But then after getting rituximab infusion i was pretty much back to normal up until now 😞😞 in 2010 i had the infusion and been doing well for 7 year's. I still had random stomach upsets, GI problems, Migraines etc. About a month or two ago i started having joint pain, muscle swelling etc. I went to Arizona as planned for Thanksgiving. My dad died in June and i wanted to spend more time with mom. I am back on prednisone per my begging or it(totally NOT desperate)πŸ˜‚πŸ˜‚πŸ˜–πŸ˜– it seems o be helping. I have a Primary Appointment today so i will update again tonight.

3 Replies
oldest β€’ newest

Hello LifeAsALupie,

I guess it is not surprising that you might have experienced an upswing in your symptoms as you seem to have had a pretty hard time lately. Hope things begin to get better for you soon x

1 like

Hi LifeAsALupie.

I am sorry to hear about the passing of your father.

How did your appointment go?

We published a factsheet on 'LUPUS: The Joints and Muscles' which you can read here: lupusuk.org.uk/wp-content/u...

90% to 95% of people with lupus will experience muscle and/or joint pain. We published an article on our blog about pain management which contains helpful tips and information: lupusuk.org.uk/pain-managem...


My flare up has subsided and then i was having more issues that didn't add up. My Rheumatology ran a bunch of tests and my FSH levels were very high so i will be seeing the Ob GYN to run more tests and find out the next steps. I will be putting my 2 weeks notice in at work as i cannot deal with the standing anymore.


You may also like...