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Rituximab
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Macular degeneration
I was diagnosed with WG over 15 years ago and receive 6 monthly infusions of
Rituximab
. Has anyone else been diagnosed with this please. All replies gratefully received.
I was diagnosed with WG over 15 years ago and receive 6 monthly infusions of
Rituximab
. Has anyone else been diagnosed with this please. All replies gratefully received.
Essex-jill
in
Vasculitis UK
9 years ago
Ibrutinib - 8 months on
It's been a while since my last post so, as I am making real progress, here are my latest thoughts. To recap, Dr Schuh in Oxford put me on Ibrutinib 8 months ago as a named patient as was the process then. I am FCR refractory and 11Q deletion. I also have bi-lateral pleural effusions. Initially,
It's been a while since my last post so, as I am making real progress, here are my latest thoughts. To recap, Dr Schuh in Oxford put me on Ibrutinib 8 months ago as a named patient as was the process then. I am FCR refractory and 11Q deletion. I also have bi-lateral pleural effusions. Initially,
Haileybury
in
CLL Support
9 years ago
Can Rituximab be used if you are ANCA negative?
Rituximab
would be attractive but would be difficult if he is still ANCA negative". I have only been ANCA tested when dx in April 2013 which was -ve, and will be retested next week, but it sounds as if still negative, then
Rituximab
will not be possible?
Rituximab
would be attractive but would be difficult if he is still ANCA negative". I have only been ANCA tested when dx in April 2013 which was -ve, and will be retested next week, but it sounds as if still negative, then
Rituximab
will not be possible?
JontyW
in
Vasculitis UK
9 years ago
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has anyone been on orencia anti-tnf
humira before embrel and that did not work at all and the same can be said of cimzia, I have been doing a bit of research and the 2 that have not worked are in a different anti-tnf group adalimumab-humira certolizumab-cimzia in the same group as these 2 are golimumab-simponi infliximab-remicade
rituximab
-mabthera
humira before embrel and that did not work at all and the same can be said of cimzia, I have been doing a bit of research and the 2 that have not worked are in a different anti-tnf group adalimumab-humira certolizumab-cimzia in the same group as these 2 are golimumab-simponi infliximab-remicade
rituximab
-mabthera
pjplant
in
NRAS
9 years ago
Reassurance please :( Rituximab, bloods and bence jones protein test????
Im about to have my first infusion of
Rituximab
and have had lots of bloods taken to check that all is ok to commence...... anyway, I was told that I needed a second blood test for bence jones protein???
Im about to have my first infusion of
Rituximab
and have had lots of bloods taken to check that all is ok to commence...... anyway, I was told that I needed a second blood test for bence jones protein???
beckybooboo
in
NRAS
9 years ago
Starting FCR in 10 days
Hi Everyone I begin FCR on Tuesday 19th May. I've had lots of helpful advice from the hospital, such as the need to drink 2-3 litres of water a day prior to and during the treatment, but just wanted to know if anyone has any additional advice on preparing for FCR both physically and emotionally. Despite
Hi Everyone I begin FCR on Tuesday 19th May. I've had lots of helpful advice from the hospital, such as the need to drink 2-3 litres of water a day prior to and during the treatment, but just wanted to know if anyone has any additional advice on preparing for FCR both physically and emotionally. Despite
Markdce
in
CLL Support
9 years ago
Flair trial v FCR
I will ask the consultant next time I see here but in the meantime I thought I would ask here The registrar at my last visit s aid when treatment is needed we can offer me the above. On a trial you monitored a lot more closely I would assume but how would it compare to having FCR ? I am thinking
I will ask the consultant next time I see here but in the meantime I thought I would ask here The registrar at my last visit s aid when treatment is needed we can offer me the above. On a trial you monitored a lot more closely I would assume but how would it compare to having FCR ? I am thinking
Hidden
in
CLL Support
9 years ago
1 year on after FCR
Hi guys, havent been around much lately so thought i would pop in and say hello. Just been for my 1year post chemo check-up. I have had some issues with low CD4 and as im allergic to Co-Trim i have to have a pentamadine inhaler which i hate. Well the fantastic news is that my bloods are all bang on the
Hi guys, havent been around much lately so thought i would pop in and say hello. Just been for my 1year post chemo check-up. I have had some issues with low CD4 and as im allergic to Co-Trim i have to have a pentamadine inhaler which i hate. Well the fantastic news is that my bloods are all bang on the
grizzlebear
in
CLL Support
9 years ago
Assessing Response With Novel Agents in CLL - OncLive Peer Exchange
Kipps, MD, UCSD; Shuo Ma, MD, PhD, Northwestern http://www.onclive.com/peer-exchange/non-hodgkins-lymphoma/Assessing-the-Utility-of-MRD-Measures-Versus-CT-Scans The discussion covers: - Inhibition of
Rituximab
by Ibrutinib - ABT-199 (Venetoclax) - ABT-199's remarkable ability to get complete remission
Kipps, MD, UCSD; Shuo Ma, MD, PhD, Northwestern http://www.onclive.com/peer-exchange/non-hodgkins-lymphoma/Assessing-the-Utility-of-MRD-Measures-Versus-CT-Scans The discussion covers: - Inhibition of
Rituximab
by Ibrutinib - ABT-199 (Venetoclax) - ABT-199's remarkable ability to get complete remission
AussieNeil
Administrator
in
CLL Support
9 years ago
BLOOD COUNTS
Starting FCR next week and wondering just how BAD my blood count is - I have just taken sight of this today so being a bit vague about things just want to know whereabouts I would fall - I was on watch and wait for about 8 years WITHOUT knowing it UNTIL I was officially diagnosed just over a month ago
Starting FCR next week and wondering just how BAD my blood count is - I have just taken sight of this today so being a bit vague about things just want to know whereabouts I would fall - I was on watch and wait for about 8 years WITHOUT knowing it UNTIL I was officially diagnosed just over a month ago
Strong-happy2
in
CLL Support
9 years ago
Transformation...
Wanted to let you all know how I was getting on, unfortunately its been confirmed that my CLL has transformed into Richter's syndrome, to say I was devastated was an understatement, biopsy result confirmed my worst fears, I started on an intensive chemo DHAP and
Rituximab
on the 11th March had to stay
Wanted to let you all know how I was getting on, unfortunately its been confirmed that my CLL has transformed into Richter's syndrome, to say I was devastated was an understatement, biopsy result confirmed my worst fears, I started on an intensive chemo DHAP and
Rituximab
on the 11th March had to stay
JanetG
in
CLL Support
9 years ago
Pointers for starting FCR
Hi Guys n Gals Firstly, just going to be starting FCR next week and having read through this site have found it very informative. What for the actual treatment should I do? - I am going to be in a ward and overnight stay for the first cycle of "R" and then I get out the next day - I think for day one
Hi Guys n Gals Firstly, just going to be starting FCR next week and having read through this site have found it very informative. What for the actual treatment should I do? - I am going to be in a ward and overnight stay for the first cycle of "R" and then I get out the next day - I think for day one
Strong-happy2
in
CLL Support
9 years ago
Do FCR trials ever end early when the results are very favorable?
Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a WBC of 28.5k after a routine physical and was totally asymptomatic. Just turned 50 also at the time a few months before which was a little ironic. Anyway, other prognosticators like Del 13q, IGVH mutated, low Bm2, and 1
Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a WBC of 28.5k after a routine physical and was totally asymptomatic. Just turned 50 also at the time a few months before which was a little ironic. Anyway, other prognosticators like Del 13q, IGVH mutated, low Bm2, and 1
CClaver27
in
CLL Support
9 years ago
FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)
Apologies forgot to ask about my
Rituximab
dose, as I happily sit there whilst that is done for me (I’ll ask next time). Nausea and sickness were well controlled for the round 4 FCR now I’ve learned the warning signs, and have the biscuits handy.
Apologies forgot to ask about my
Rituximab
dose, as I happily sit there whilst that is done for me (I’ll ask next time). Nausea and sickness were well controlled for the round 4 FCR now I’ve learned the warning signs, and have the biscuits handy.
Ernest2
in
CLL Support
9 years ago
As Expected!!!
I have to go to hospital as a day patient the transfer takes around 4 hours & I think it will be probably be a biological one, have to go on Thursday to discuss with the Rheumatology doctor, so dont know which one yet but am suspecting
Rituximab
? Is anyone on any of these biologicals?
I have to go to hospital as a day patient the transfer takes around 4 hours & I think it will be probably be a biological one, have to go on Thursday to discuss with the Rheumatology doctor, so dont know which one yet but am suspecting
Rituximab
? Is anyone on any of these biologicals?
141960
in
NRAS
9 years ago
Rituximab for SLE inflammation on the brain, please help not sure whether to accept???
Has anyone gone through having inflammation on the brain and/or taking
rituximab
. Thank you so much for your time.
Has anyone gone through having inflammation on the brain and/or taking
rituximab
. Thank you so much for your time.
KerrieB
in
LUPUS UK
9 years ago
Roferon/Rituximab/Campath anyone?
Looking for info about these drugs in the managment of systemic Behcet's with particular flaring of uveitis in eyes. Anyone had any joy with them? I have history of depression and psychological issues relating to steroid use and realise some of these drugs can trigger depression. Thanks, Guevara
Looking for info about these drugs in the managment of systemic Behcet's with particular flaring of uveitis in eyes. Anyone had any joy with them? I have history of depression and psychological issues relating to steroid use and realise some of these drugs can trigger depression. Thanks, Guevara
GUEVARA
in
Behçet's UK
9 years ago
So the latest is
So onto
Rituximab
, methotrexate, leflunomide , loads if blood tests this week. Kidney/ bladder scan non physical problems which means they will do a cystoscopy and I have a fatty liver ftom the reaction to drugs !!!!
So onto
Rituximab
, methotrexate, leflunomide , loads if blood tests this week. Kidney/ bladder scan non physical problems which means they will do a cystoscopy and I have a fatty liver ftom the reaction to drugs !!!!
allanah
in
NRAS
9 years ago
Low White Cells
I had 3 rounds of Bendamustine &
Rituximab
followed each time by hospitalisation for neutropaenic fever. I was so ill and very low white cells, my consultant gave me a rest of 8 weeks and then I had a long acting GCSF followed by one round of
Rituximab
only, one month ago.
I had 3 rounds of Bendamustine &
Rituximab
followed each time by hospitalisation for neutropaenic fever. I was so ill and very low white cells, my consultant gave me a rest of 8 weeks and then I had a long acting GCSF followed by one round of
Rituximab
only, one month ago.
jaypax
in
CLL Support
9 years ago
COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
PaulaS
Volunteer
in
CLL Support
9 years ago
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