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Rinvoq
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Breaking both elbows was a big setback
When I saw the orthopedic doctor after the breaks he recommended that I stop my
Rinvoq
, which was starting to show good results after 2 months. I had been through a miserable year with my RA , trying different meds that were not working for me, so I was not eager to stop
Rinvoq
.
When I saw the orthopedic doctor after the breaks he recommended that I stop my
Rinvoq
, which was starting to show good results after 2 months. I had been through a miserable year with my RA , trying different meds that were not working for me, so I was not eager to stop
Rinvoq
.
ElizabethW
in
NRAS
2 years ago
How are my fellow Rinvoq users doing?
So my fellow
Rinvoq
takers how has it been for you? I would really love to hear from you
So my fellow
Rinvoq
takers how has it been for you? I would really love to hear from you
Knit12
in
NRAS
2 years ago
Advice on Rinvoq
I now qualify for a JAK inhibitor and have been recommended
Rinvoq
by my consultant. Has anyone else had experience of this medication please?
I now qualify for a JAK inhibitor and have been recommended
Rinvoq
by my consultant. Has anyone else had experience of this medication please?
Keeppos
in
NRAS
2 years ago
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Anybody had a problem after 4th Covid Vaccine?
I stopped my drugs
Rinvoq
the day before, day of and day after on guidance of my rheumatologist. I didn’t have this problem with no 3, so just wondered if anybody else was the same. I have drops that I get anyway for my eyes so using them every half hour to help.
I stopped my drugs
Rinvoq
the day before, day of and day after on guidance of my rheumatologist. I didn’t have this problem with no 3, so just wondered if anybody else was the same. I have drops that I get anyway for my eyes so using them every half hour to help.
Knit12
in
NRAS
2 years ago
Rinvoq 5 days
I think
Rinvoq
might work for me. I just hope I don't start getting horrible side effects a couple of weeks in like I did with Xeljanz. I tried Simponi for 6 months which did not help much.
I think
Rinvoq
might work for me. I just hope I don't start getting horrible side effects a couple of weeks in like I did with Xeljanz. I tried Simponi for 6 months which did not help much.
ElizabethW
in
NRAS
3 years ago
Got shingles 8 weeks into Rinvoq?
Got diarrhea right away with
Rinvoq
& then shingles, 8 weeks in. Rheumy & RPh can’t decide if I should go back on
Rinvoq
after shingles clear or change to biologic drug. What to do?
Got diarrhea right away with
Rinvoq
& then shingles, 8 weeks in. Rheumy & RPh can’t decide if I should go back on
Rinvoq
after shingles clear or change to biologic drug. What to do?
Hisue
in
NRAS
3 years ago
really appreciate some advice
Had my 3rd jab after a lot of confusion .Should i stop my methotrexate and
rinvoq
for two weeks to help my immune system build some antibodies against covid or just stop my methotrxate I would really appreciate some advice as to what other RA patients are doing
Had my 3rd jab after a lot of confusion .Should i stop my methotrexate and
rinvoq
for two weeks to help my immune system build some antibodies against covid or just stop my methotrxate I would really appreciate some advice as to what other RA patients are doing
Whippet123
in
NRAS
3 years ago
My husband had a stroke but is doing very well
Since my
rinvoq
has been kicking in, I am able to do a lot more for myself and for him, so we are doing OK and are getting through this.
Since my
rinvoq
has been kicking in, I am able to do a lot more for myself and for him, so we are doing OK and are getting through this.
ElizabethW
in
NRAS
3 years ago
Baricitinib a fail, going to try Rinvoq
I had a telephone appointment with my rheumatoligist, and he is going to switch me to
Rinvoq
.
I had a telephone appointment with my rheumatoligist, and he is going to switch me to
Rinvoq
.
ElizabethW
in
NRAS
3 years ago
Today I cried again….
My dr instructed me to stop my meds (
Rinvoq
) for 7 days . All ok until Friday when the beast came back to say hello. Today the beast made me cry when I returned from the beach with my little dog.
My dr instructed me to stop my meds (
Rinvoq
) for 7 days . All ok until Friday when the beast came back to say hello. Today the beast made me cry when I returned from the beach with my little dog.
Hidden
in
NRAS
3 years ago
In Scotland and getting my 3rd Covid Vaccine
Finally after my 10th drug in 2 years I have the new drug
Rinvoq
that is working for me. I have been on it 5 weeks and it has been amazing and I feel like I may get my life back. I really hope by taking the third dose it does not ruin my recovery.
Finally after my 10th drug in 2 years I have the new drug
Rinvoq
that is working for me. I have been on it 5 weeks and it has been amazing and I feel like I may get my life back. I really hope by taking the third dose it does not ruin my recovery.
Knit12
in
NRAS
3 years ago
Rinvoq, any updates from users?
Hello there, I am due to start
Rinvoq
next week as Ilmardi was unsuccessful for me ☹️ Just after some updates/experiences from anyone currently taking it, I can see a few posts from months ago but from people in my position.
Hello there, I am due to start
Rinvoq
next week as Ilmardi was unsuccessful for me ☹️ Just after some updates/experiences from anyone currently taking it, I can see a few posts from months ago but from people in my position.
Hidden
in
NRAS
3 years ago
Advice/opinions please…
I started
Rinvoq
in June. I understood that once started I would be able to reduce my Methotrexate. I’ve not wanted to be on this drug for a long time and to be honest, even if I hasn’t started
Rinvoq
I wanted to come off it anyway.
I started
Rinvoq
in June. I understood that once started I would be able to reduce my Methotrexate. I’ve not wanted to be on this drug for a long time and to be honest, even if I hasn’t started
Rinvoq
I wanted to come off it anyway.
Sar9
in
NRAS
3 years ago
Lots of Meds and no better.
Rheumy nurse says have to stick with it as if
rinvoq
doesn't work nothing left to try. My period seems to make it worse. Anyone any ideas of what to do? I'm trying to get a counselor as it's getting me down, getting to see gp to do something about periods is a joke.
Rheumy nurse says have to stick with it as if
rinvoq
doesn't work nothing left to try. My period seems to make it worse. Anyone any ideas of what to do? I'm trying to get a counselor as it's getting me down, getting to see gp to do something about periods is a joke.
wilbertjellyfish
in
NRAS
3 years ago
Hiya im very pleased ive been offered a new drug Upaducitinib (rinvoq). Just asking for comments if anyone else has tried it ,as its a newbe
Rinvoq
Rinvoq
Ninnin67
in
NRAS
3 years ago
Rinvoq
Has anybody tried the new
Rinvoq
drug yet for rheumatoid.
Has anybody tried the new
Rinvoq
drug yet for rheumatoid.
Lilahloo
in
NRAS
3 years ago
Rinvoq (upadacitinib)
I have been on
Rinvoq
going on 5 weeks now, it’s a new tablet, the rheumatoid nurse said it will start working in 3 weeks, but so far nothing happening. I hope it’s not another treatment that doesn’t work. So I am writing to see if anyone else is taking this, and how are they getting on.
I have been on
Rinvoq
going on 5 weeks now, it’s a new tablet, the rheumatoid nurse said it will start working in 3 weeks, but so far nothing happening. I hope it’s not another treatment that doesn’t work. So I am writing to see if anyone else is taking this, and how are they getting on.
auldreekie2
in
NRAS
3 years ago
Rinvoq vs methotrexate...?
My rheumatology team are thinking
Rinvoq
, they’ve wanted to get me on a biologic for a while but I just don’t meet the criteria for funding. But they would be able to give me
Rinvoq
. I don’t know much about it... is anyone else on it?
My rheumatology team are thinking
Rinvoq
, they’ve wanted to get me on a biologic for a while but I just don’t meet the criteria for funding. But they would be able to give me
Rinvoq
. I don’t know much about it... is anyone else on it?
Sar9
in
NRAS
3 years ago
Most Inflammatory Disease Patients on Immunosuppressants Mount a Response to the COVID-19 Vaccine (But Can Vary a Lot by Medication)
People taking JAK inhibitor medications (which include Xeljanz, Olumiant, and
Rinvoq
) also had a modest reduction in antibody levels — a 4.5-fold decrease compared to healthy controls.
People taking JAK inhibitor medications (which include Xeljanz, Olumiant, and
Rinvoq
) also had a modest reduction in antibody levels — a 4.5-fold decrease compared to healthy controls.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
Your doctor should provide guidance for your unique situation (and may advise against any medication changes based on your disease status, such as if you’re having a flare), but these medications include: Methotrexate JAK inhibitors (ex: Xeljanz, Olumiant,
Rinvoq
) Abatacept (Orencia), injectable or
Your doctor should provide guidance for your unique situation (and may advise against any medication changes based on your disease status, such as if you’re having a flare), but these medications include: Methotrexate JAK inhibitors (ex: Xeljanz, Olumiant,
Rinvoq
) Abatacept (Orencia), injectable or
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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