Advice on Rinvoq

[Keeppos]

Hello. I will be starting Rinvoq next week and am worried about taking the medication and all the possible risk factors. I was diagnosed with anti-CCP positive RA in July 2020 so this disease is all quite new to me. I started on Methotrexate which made me feel so nauseous and affected my liver function so had to come off. I have been taking Sulfasalazine since October 2020 which now does not seem to be doing enough as I keep getting regular flare ups in various places. I now qualify for a JAK inhibitor and have been recommended Rinvoq by my consultant. Has anyone else had experience of this medication please?

[allanah]

Haven't used that one but my meds changed my life! Just think if we didn't have them you could get joint problems etc so we are lucky. Two things , one if you look on the tool bar above put in your questions on the search bar and you will probably have a long day reading everyone's experiences! This can be a good or bad thing as we all react differently.

Two, go on nras.org.co.uk there's tons if advice on drugs on tips for newly diagnosed etc and its free.

Good luck with the new drug, this could be " the one!"

😍

[Keeppos in reply to allanah]

Thank you for your reply and advice. Yes you are right, we are lucky there is medication and I really hope this will be the one ☝️ All the best 😊

[allanah in reply to Keeppos]

Good luck xxxx happy 2022!

[oldtimer]

There were some other people asking about this one earlier so you should find some previous posts if you use the search box. It's always worth entering the generic name too upadacitinib.

[Keeppos in reply to oldtimer]

Thank you for your advice, I will try that 😊

[Wraf22]

Hi Keeppos,

What a bitch that the Sulfasalazine has not worked for you, as for the Methotrexate I have heeted from a few people that it can be a swine. What I really wanted to say was it can be a up and down journey to get what works for you. You will get there don’t settle for just ok, be positive in driving your care forward. Remember we are all here for you. Take care

[Keeppos in reply to Wraf22]

Thank you for your positive words, this really gets me down at times. I feel at the moment am I ever going to find the right drug that will help me and doesn’t cause other problems. It certainly is a journey, my consultant told me that too. Best Wishes

[wilbertjellyfish]

I was on rinvocoq for 2-3 months. No side effects but it didn't really work either. I stopped it because I got covid but it wasn't working either. It was my 4th biologic.It's definitely an advantage that it's a tablet not an injection.

Hope it works for you I'm still waiting on what will work for me.

[Keeppos in reply to wilbertjellyfish]

Thank you for your reply. Sorry to hear it didn’t work for you and I hope you find something soon that works well for you. What a journey this is 🥱

[liveinwoods]

I wish I could take it but it was going to cost me over $15,000 a year and that was too much for me. I hope it works for you.

[Keeppos in reply to liveinwoods]

Thank you, I’m keeping my fingers crossed 🤞

[Hidden]

Hello

If you need further information about RA and different medications, you can contact the National Rheumatoid Arthritis Society (NRAS) on 0800 298 7650. We also have a website nras.org.uk which has information and resources which you may find useful.

[Gracie2019]

I started Rinvoq daily tabs a little over a year ago. The manufacturer Abbvie offers financial assistance grants where I am able to receive this expensive medication at no cost to me. There is an application on their website.

Since my inflammatory RA diagnosis in 2016, Rinvoq is the first medication (after I tried all the standards plus Humira) that has worked for me, with no noticeable side effects. I feel like I am once again living a near-normal life, and hope and pray this drug will continue to work well for me, and also for you.