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Eltrombopag - advice?
I am now on
revolade
(eltrombopag) started with the higher dose which seen my platelets go sky high then came down to lower dose and my platelets have came down to 26. For anyone that is on this did it take you a while to find the right dose to suit you and to keep platelets at a good level. X
I am now on
revolade
(eltrombopag) started with the higher dose which seen my platelets go sky high then came down to lower dose and my platelets have came down to 26. For anyone that is on this did it take you a while to find the right dose to suit you and to keep platelets at a good level. X
mustbethefeelingx
in
ITP Support Association
4 years ago
Revolade started taking from 11th oct 2019
Is anyone taking
revolade
known as eltrombag Promacta
Revolade
Eltrombag
Is anyone taking
revolade
known as eltrombag Promacta
Revolade
Eltrombag
Platelet4000
in
ITP Support Association
5 years ago
ITP Since Childhood
On
Revolade
50mg for 21 days and Dapsone 100mg. Still platelets shows as 7K. How much time will medicines take to increase the count. What things I should avoid. Always worried for bleeding. Please suggest who are in similar situations. Thanks
On
Revolade
50mg for 21 days and Dapsone 100mg. Still platelets shows as 7K. How much time will medicines take to increase the count. What things I should avoid. Always worried for bleeding. Please suggest who are in similar situations. Thanks
Ajohn42
in
ITP Support Association
5 years ago
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Decision Time
The options are ether, Eltrombopag {
Revolade
Tablets} or Nplate {Romiplostim}. If you are or have tried either of these, I would be grateful if you would let me know what your experience is/was like. In particular I would like to know what the side-effects are/were. Thank you. Rafiq
The options are ether, Eltrombopag {
Revolade
Tablets} or Nplate {Romiplostim}. If you are or have tried either of these, I would be grateful if you would let me know what your experience is/was like. In particular I would like to know what the side-effects are/were. Thank you. Rafiq
Rafiq
in
ITP Support Association
5 years ago
Any Vancouverites / Canadians with ITP?
I also understand that NPlate and
Revolade
are not covered through universal healthcare so that'll require me to make some arrangements (but I think I can handle that)
I also understand that NPlate and
Revolade
are not covered through universal healthcare so that'll require me to make some arrangements (but I think I can handle that)
conquerator2
in
ITP Support Association
6 years ago
Platelets & me
Despite this, we're currently trying
Revolade
/ Promacta and I am at 130k after one week of 50mg/day dose and feeling great.
Despite this, we're currently trying
Revolade
/ Promacta and I am at 130k after one week of 50mg/day dose and feeling great.
conquerator2
in
ITP Support Association
6 years ago
Chronic itp
low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she is having blood stools later she is also diagonised with piles she became very very serious she was un ucu she was given IVIG, wysolone steriods,
revolade
low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she is having blood stools later she is also diagonised with piles she became very very serious she was un ucu she was given IVIG, wysolone steriods,
revolade
sreea_dey90
in
ITP Support Association
6 years ago
7 weeks on revolade/promacta and no change, ITP 6 year old
Has anyone had any experience with
revolade
taking more than 7-8 weeks to work or if it didn't work by now then most likely it wont in the future? thanks.
Has anyone had any experience with
revolade
taking more than 7-8 weeks to work or if it didn't work by now then most likely it wont in the future? thanks.
kyriacouathos
in
ITP Support Association
6 years ago
Remission on eltrombopag
Has anyone here experienced a remission while taking eltrombopag (
revolade
, promacta). I was put on the drug a year ago after some very low platelet counts (single figures), My initial dose was 50mg a day and I responded very quickly with counts over 350 after 2 weeks.
Has anyone here experienced a remission while taking eltrombopag (
revolade
, promacta). I was put on the drug a year ago after some very low platelet counts (single figures), My initial dose was 50mg a day and I responded very quickly with counts over 350 after 2 weeks.
prudencepayes
in
ITP Support Association
6 years ago
Eltrombopag 25 mg with Azran 50mg and Prednislone
Revolade
/ Eltrombopag 25 mg with Azran 50mg and Prednislone/Wyslone 5mg for the past 3 months and my Platelets level are stable around 100. Taking Eltrombopag 25mg at an interval of once in 3 days.
Revolade
/ Eltrombopag 25 mg with Azran 50mg and Prednislone/Wyslone 5mg for the past 3 months and my Platelets level are stable around 100. Taking Eltrombopag 25mg at an interval of once in 3 days.
RONALD-DASON-P
in
ITP Support Association
6 years ago
Critical condition of ITP pateint.
Revolade
failed. Thrombomax injections failed.Dexamethazone failed. Pls advise what can i do? Platteletes count 11000. HB 7.6 and still falling. Spleen size 14 cm. In bone marrow report, Displasia clearly seen. Should i go to Rituxin (Rituximab). Plz help
Revolade
failed. Thrombomax injections failed.Dexamethazone failed. Pls advise what can i do? Platteletes count 11000. HB 7.6 and still falling. Spleen size 14 cm. In bone marrow report, Displasia clearly seen. Should i go to Rituxin (Rituximab). Plz help
salman2030
in
ITP Support Association
6 years ago
Revolade is going ineffective in ITP
My sister has been on
Revolade
for 2 months approx, my count goes up and down so much.
My sister has been on
Revolade
for 2 months approx, my count goes up and down so much.
salman2030
in
ITP Support Association
6 years ago
Next line of treatment for chronic ITP - Revolade being considered. Sorry for long post.
Other that what is in the patient leaflet, is there anything else I should know before starting
Revolade
? Many thanks and regards
Other that what is in the patient leaflet, is there anything else I should know before starting
Revolade
? Many thanks and regards
LynnCox
in
ITP Support Association
6 years ago
Coverage for revolade
So I was going to ask him if I could try
revolade
but there are two problems. One I have an enlarged heart and I am taking heart meds and two my insurance won’t cover it and it’s 2300 a month which is more than I make a month. Is it covered in the uk?
So I was going to ask him if I could try
revolade
but there are two problems. One I have an enlarged heart and I am taking heart meds and two my insurance won’t cover it and it’s 2300 a month which is more than I make a month. Is it covered in the uk?
wjoyful
in
ITP Support Association
6 years ago
New ITP Patient Coming to the UK :) Help Please
On
Revolade
now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the UK (London) for it. It's a really good job, I worked super hard to get it, and they do offer very good private health insurance.
On
Revolade
now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the UK (London) for it. It's a really good job, I worked super hard to get it, and they do offer very good private health insurance.
BellaMo
in
ITP Support Association
6 years ago
ITP and hair loss (alopecia)
I'm 60 years old, have been suffering from ITP for several years and was put on Eltrombopag (
revolade
, promacta) about 4 months ago.
I'm 60 years old, have been suffering from ITP for several years and was put on Eltrombopag (
revolade
, promacta) about 4 months ago.
prudencepayes
in
ITP Support Association
6 years ago
Promacta/Revolade not working now
Hi All, I had tried
Revolade
in India 4 yrs back once(for 15 days) and 2 yr back once(15 days). Both times, my count had raised to 50k first time and 80k 2nd time. In between every month I used to take 2-3 days during my periods.
Hi All, I had tried
Revolade
in India 4 yrs back once(for 15 days) and 2 yr back once(15 days). Both times, my count had raised to 50k first time and 80k 2nd time. In between every month I used to take 2-3 days during my periods.
ITPAffecty
in
ITP Support Association
7 years ago
Travelling to high altitude area
My history is : >5 counts. ( tried steroids ,
revolade
etc, ) not an active bleeder Kindly advice and share your experience.
My history is : >5 counts. ( tried steroids ,
revolade
etc, ) not an active bleeder Kindly advice and share your experience.
AWSAR
in
ITP Support Association
7 years ago
Revolade for Children- Side effects?
My son who is 5 years old has had ITP for over a year and half now and the doctor keeps pushing us on why we are not signing up for
Revolade
. He says that the majority of his child patients are taking it and it helps them lead a normal life.
My son who is 5 years old has had ITP for over a year and half now and the doctor keeps pushing us on why we are not signing up for
Revolade
. He says that the majority of his child patients are taking it and it helps them lead a normal life.
bhakargs
in
ITP Support Association
7 years ago
Can the platelets count still increase or there is no chance?
Hi,my father had platelets count disorder since almost 6 months and few times it dropped down to less than 10,000.My father had been eating
Revolade
tablets which helped increase the platelets but still count was fluctuating.Doctors found out the spleen size was above normal size so they figured out
Hi,my father had platelets count disorder since almost 6 months and few times it dropped down to less than 10,000.My father had been eating
Revolade
tablets which helped increase the platelets but still count was fluctuating.Doctors found out the spleen size was above normal size so they figured out
shanistrano
in
ITP Support Association
7 years ago
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