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Supplies
Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very anxious and over thinking everything š I cant find the info where to get the needles etc from. I plan to do SC and I'm very confused with it all!
Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very anxious and over thinking everything š I cant find the info where to get the needles etc from. I plan to do SC and I'm very confused with it all!
RedOne1
in
Pernicious Anaemia Society
2 months ago
Next steps advice, B12D
After completing all relevant blood tests (everything fine apart from low iron and 165 ng/L) I have completed my 6 loading doses 2 weeks ago and generally do feel some improvements, especially on the faster heart rate, that has subsided significantly. Since 2003 this has been my 3rd loading dose program
After completing all relevant blood tests (everything fine apart from low iron and 165 ng/L) I have completed my 6 loading doses 2 weeks ago and generally do feel some improvements, especially on the faster heart rate, that has subsided significantly. Since 2003 this has been my 3rd loading dose program
Sailing63
in
Pernicious Anaemia Society
2 months ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
2 months ago
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Raised AST and ALT levels and methotrexate
Hi, I was diagnosed with RA in December 23 and I have been on 15mg methotrexate weekly and 5mg folic acid once a week. I have just got to my final monthly mxt monitoring and my alt level was raised. As advised by rheumy nurses I stopped mxt for two weeks and have just had repeat monitoring. Alt level
Hi, I was diagnosed with RA in December 23 and I have been on 15mg methotrexate weekly and 5mg folic acid once a week. I have just got to my final monthly mxt monitoring and my alt level was raised. As advised by rheumy nurses I stopped mxt for two weeks and have just had repeat monitoring. Alt level
MelB71
in
NRAS
2 months ago
Dr agrees to test B12 but not blood test...
Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself for a bit. Now he has agreed to do further test (as blood comes back a huge number because I am injecting!). I think the test may be homocysteine
Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself for a bit. Now he has agreed to do further test (as blood comes back a huge number because I am injecting!). I think the test may be homocysteine
auldreekie
in
Pernicious Anaemia Society
2 months ago
Help with Vit.B1 protocol.
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
My husband has been on separate vitamin B capsules,B12,B2,B6( P5P) and Biotin.In Daphnes very informative book she says that the original protocol had been with a low dose B complex .would this be every day,or only on the Monday Wednesday and Friday when taking B1? Should we stop his larger dose and
CRMACK1948
in
Cure Parkinson's
2 months ago
temperature/anxiety and excess urination.
so Iāve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms were clearing up completely. but now the urination frequency has returned with extreme tiredness, anxiety like Iāve never felt before and crying
so Iāve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms were clearing up completely. but now the urination frequency has returned with extreme tiredness, anxiety like Iāve never felt before and crying
Gobbozoid
in
Pernicious Anaemia Society
2 months ago
Apixaban and methylfolate
Hi. Does anyone know if its safe to take methylfolate 400mcg whilst being treated with Apixaban? I ran out of methylfolate before being prescribed Apixaban and I can't find a definite answer. Folic acid isn't any good for me but my folate levels have dropped so need to do something.
Hi. Does anyone know if its safe to take methylfolate 400mcg whilst being treated with Apixaban? I ran out of methylfolate before being prescribed Apixaban and I can't find a definite answer. Folic acid isn't any good for me but my folate levels have dropped so need to do something.
Catlover3
in
Atrial Fibrillation Support
2 months ago
Test results
My latest blood tests have just come back. Iād be grateful for comments from the amazing admins please. At the moment Iām not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. Iām not taking any iron supplements. I take vit
My latest blood tests have just come back. Iād be grateful for comments from the amazing admins please. At the moment Iām not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. Iām not taking any iron supplements. I take vit
Fox123
in
Thyroid UK
2 months ago
understanding test results
recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my levels are out of ref range. I donāt really understand them all. Iām currently 12 weeks pregnant if that changes anything. I feel pretty pants if
recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my levels are out of ref range. I donāt really understand them all. Iām currently 12 weeks pregnant if that changes anything. I feel pretty pants if
Greydonkey
in
Pernicious Anaemia Society
2 months ago
Sealions
Hello everyone āŗļø I would like to supplement my food intake with good vitamins and wondered if anyone on this forum had an opinion on Sealions (no not the mammals ) Vitamins? Thanks Totoro
Hello everyone āŗļø I would like to supplement my food intake with good vitamins and wondered if anyone on this forum had an opinion on Sealions (no not the mammals ) Vitamins? Thanks Totoro
Totoro25
in
Thyroid UK
5 months ago
Just Started Levothyroxine 25mcg, and scared/need advice please,as not feeling good at all after starting the Meds (And Worsened Tinnitus)
Hi All, This is my first post,hope you can help. I had full blood works tested at the start of the year,as i have always suffered anxiety as well as mild depression and OCD,as well as tired often,thinning hair,and mild tinnitus in the right ear etc,and reading many forums i was led to believe i could
Hi All, This is my first post,hope you can help. I had full blood works tested at the start of the year,as i have always suffered anxiety as well as mild depression and OCD,as well as tired often,thinning hair,and mild tinnitus in the right ear etc,and reading many forums i was led to believe i could
Foxy147
in
Thyroid UK
2 months ago
can you have too much folate?
I have more than one supplement with folate in it and wanted to check it is safe to take large amounts.
I have more than one supplement with folate in it and wanted to check it is safe to take large amounts.
Hectorsmum2
in
Thyroid UK
2 months ago
āPlacebo effectā
my doctor just told me itās placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. Iāve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels donāt drop until after 2 years? How do people get their
my doctor just told me itās placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. Iāve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels donāt drop until after 2 years? How do people get their
Ellamae2
in
Pernicious Anaemia Society
2 months ago
Current Trial
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
New Blood Results - help please
Iāve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here firstā¦ For ref, my levo was increased from 125 to 150mcg in February 24. Iāve been feeling
Iāve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here firstā¦ For ref, my levo was increased from 125 to 150mcg in February 24. Iāve been feeling
SleepingDisco
in
Thyroid UK
2 months ago
B12 and anxiety
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
gemmacampbell
in
Pernicious Anaemia Society
2 months ago
Latest blood results help please
Serum folate 9.2ug/L [3.1 - 20.5] B12 420 ng/ L [187.0 - 883.0 ] Ana (Elisa) screen 0.3 [0.0-1.0] Serum urate 322 umol [140.0 - 360.0 ] Serum TSH 1.59 [0.35 - 4.94] HbAlc Alc level - IFCC 41 mmol / mol [<48.0] Serum ferritin 278 ug/L [23.0 - 300.0] These are my latest results, done after my blue
Serum folate 9.2ug/L [3.1 - 20.5] B12 420 ng/ L [187.0 - 883.0 ] Ana (Elisa) screen 0.3 [0.0-1.0] Serum urate 322 umol [140.0 - 360.0 ] Serum TSH 1.59 [0.35 - 4.94] HbAlc Alc level - IFCC 41 mmol / mol [<48.0] Serum ferritin 278 ug/L [23.0 - 300.0] These are my latest results, done after my blue
PurpleOliver
in
Thyroid UK
2 months ago
Supplements
I have just been diagnosed with Osteoporosis T -2.9 in hips and spine at 64 years old. Dr prescribed biophosphates as my risk of fracture is high (statistically in paper). The thought of having drugs with side effects makes me run a mile and so I started my research that brought me here. I was prepared
I have just been diagnosed with Osteoporosis T -2.9 in hips and spine at 64 years old. Dr prescribed biophosphates as my risk of fracture is high (statistically in paper). The thought of having drugs with side effects makes me run a mile and so I started my research that brought me here. I was prepared
Nerea
in
Bone Health and Osteoporosis UK
1 year ago
B12 Deficiency, recently diagnosed, seeking advice.
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Dfthbhjj
in
Pernicious Anaemia Society
2 months ago
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