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First post! Advice on bloods please and any tips on managing fatigue
Hi all - what a wonderful community! I've been lurking a few days but would appreciate some advice on my blood test results please (F53). It's a bit of a long history but I thought it may be useful for others and for when I have updates - blood results below if you want to skip it. I noticed a small
Hi all - what a wonderful community! I've been lurking a few days but would appreciate some advice on my blood test results please (F53). It's a bit of a long history but I thought it may be useful for others and for when I have updates - blood results below if you want to skip it. I noticed a small
annie2374
in
Thyroid UK
7 days ago
another excellent B12 article by B. Wolffenbuttel
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
PlatypusProfit8077
in
Pernicious Anaemia Society
7 days ago
Back pain
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Kma123
in
Pernicious Anaemia Society
7 days ago
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Gummies - BE CAREFUL
There is a huge range of substances now available in the form of gummies. And gummies are made to taste nice. And this disguises that they contain active ingredients with serious effects. They themselves seem entirely innocuous. Possibly there is more concern over any sugars and sweeteners than what
There is a huge range of substances now available in the form of gummies. And gummies are made to taste nice. And this disguises that they contain active ingredients with serious effects. They themselves seem entirely innocuous. Possibly there is more concern over any sugars and sweeteners than what
helvella
Thyroid UK
in
Thyroid UK
8 days ago
Supplements before blood test?
Hi all - now that I am finally medicated and also had loading doses of B12 (and I paid for vit D3) injections, figuring out supplements I need to take alongside figuring out what is triggering my hyperthyroidism - I wanted to check which I should NOT take prior to the blood test I have finally got to
Hi all - now that I am finally medicated and also had loading doses of B12 (and I paid for vit D3) injections, figuring out supplements I need to take alongside figuring out what is triggering my hyperthyroidism - I wanted to check which I should NOT take prior to the blood test I have finally got to
eatingbiscuits
in
Thyroid UK
8 days ago
Am I wrong?,
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
Popcorn12345
in
Pernicious Anaemia Society
8 days ago
Symptom flare up after working out (?!) advice please
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
DocAJB
in
Pernicious Anaemia Society
9 days ago
PA to have treatment?
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
Em19911
in
Pernicious Anaemia Society
9 days ago
Enter The Dragon
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Narwhal10
in
Pernicious Anaemia Society
9 days ago
B12 5mg, is it worth it?
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
VMITCHELL78
in
Pernicious Anaemia Society
9 days ago
Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
Technoid
in
Pernicious Anaemia Society
9 days ago
B12 Toxicity
Our Doctor recently did a B12 and Ferritin blood test and is now demanding that we stop self injecting with immediate effect to prevent B12 toxicity….. Has anyone ever heard of this and if not, how do we deal with this? My husband has megaloblastic anaeamia and stopping the injections could have fatal
Our Doctor recently did a B12 and Ferritin blood test and is now demanding that we stop self injecting with immediate effect to prevent B12 toxicity….. Has anyone ever heard of this and if not, how do we deal with this? My husband has megaloblastic anaeamia and stopping the injections could have fatal
Granny2024
in
Pernicious Anaemia Society
9 days ago
List of drugs by their metastatic prostate cancer cancer fighting properties
I asked ChatGPT to put the following drugs in order of their metastatic prostate cancer cancer fighting properties: Metformin, statins, mebendazole, vitamin C, doxycline, Silymarin and Esomeprazole (Nexium). Here is the answer from ChatGPT: Determining the order of these drugs based on their potential
I asked ChatGPT to put the following drugs in order of their metastatic prostate cancer cancer fighting properties: Metformin, statins, mebendazole, vitamin C, doxycline, Silymarin and Esomeprazole (Nexium). Here is the answer from ChatGPT: Determining the order of these drugs based on their potential
Seasid
in
Advanced Prostate Cancer
9 days ago
Adrenal support - early days of T3
Hi I have recently started on Liothyronine - followed advice to start slowly and all seems to be going well. I am also on very regular B12 injections. I have a question about supporting adrenal glands. I had (may still have…) low morning cortisol, was given a Short Synacthen test which I passed but
Hi I have recently started on Liothyronine - followed advice to start slowly and all seems to be going well. I am also on very regular B12 injections. I have a question about supporting adrenal glands. I had (may still have…) low morning cortisol, was given a Short Synacthen test which I passed but
GW1000
in
Thyroid UK
9 days ago
Frequently asked about topics - the evidence
Our online community is a way you can get support from others who share your experiences. To support our online community, we’ve summarised the topic areas that people have the most questions about and where it can be hard to understand what the evidence says. We’ve provided the current up to date expert
Our online community is a way you can get support from others who share your experiences. To support our online community, we’ve summarised the topic areas that people have the most questions about and where it can be hard to understand what the evidence says. We’ve provided the current up to date expert
ROSModerator
Partner
in
Bone Health and Osteoporosis UK
9 days ago
b12 advice
Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate deficiency. I had loading doses and then injections in 2017 and my levels were at the lowest of 198, folate was really low aswell then but then they checked my levels a few months later (1803) and obviously they would be high
Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate deficiency. I had loading doses and then injections in 2017 and my levels were at the lowest of 198, folate was really low aswell then but then they checked my levels a few months later (1803) and obviously they would be high
Em19911
in
Pernicious Anaemia Society
10 days ago
Iron infusion
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
Charlie27612
in
Pernicious Anaemia Society
10 days ago
worse after b12 injection
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
B12stuff
in
Pernicious Anaemia Society
10 days ago
How does it feel to have too much B12?
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
Krysagnes
in
Pernicious Anaemia Society
10 days ago
appointment with doc
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
Gcart
in
Thyroid UK
10 days ago
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