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Retinal photocoagulation
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Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
Impending macular hole
Hi, I’m extremely worried, my 21 year old daughter has been diagnosed with impending macular hole in the left eye. They’ve said they’re very concerned as it’s very very rare for someone of this age to have this. The retinol eye specialist is assessing my daughters eye X-rays in the morning and letting
Hi, I’m extremely worried, my 21 year old daughter has been diagnosed with impending macular hole in the left eye. They’ve said they’re very concerned as it’s very very rare for someone of this age to have this. The retinol eye specialist is assessing my daughters eye X-rays in the morning and letting
Miltch
in
Macular Society
3 years ago
Covid -19, still a big risk for some.
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Richard-Allen
in
British Liver Trust
3 years ago
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Kidney issues post liver transplant
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
TBSW
in
British Liver Trust
3 years ago
Experience with Tacrolimus with or without Azathioprine
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Sandy1212
in
LUPUS UK
3 years ago
Has anyone used cordyceps as an adjunctive treatment for kidney disease?
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Falkenhayn
in
Kidney Transplant Patient Support
3 years ago
Down to 10mg Pred instantly!
Hello again, Just seen a rheumatologist for the first time, having been diagnosed with PMR in early January this year. Went from 15mg pred to 12.5mg by March. She has put me down instantly to 10mg, which she says I should be on after six months, then reduce by 1mg every six weeks. This I think, is
Hello again, Just seen a rheumatologist for the first time, having been diagnosed with PMR in early January this year. Went from 15mg pred to 12.5mg by March. She has put me down instantly to 10mg, which she says I should be on after six months, then reduce by 1mg every six weeks. This I think, is
Silver-Babe
in
PMRGCAuk
3 years ago
ACA & Anti CENP B
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Northerner1
in
LUPUS UK
3 years ago
What dosage of calcium supplement is recommended when on prednisolone?
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
Pr0jection
in
PMRGCAuk
3 years ago
Chronic Constipation
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
TaffyTwoshoes27
in
Kidney Dialysis
3 years ago
Statins with ckd4?
I've been advised to take 20mg of statins but I am worried about the effect on my kidneys (CKD 4). Has anyone taken them? I know that my renal team wouldn't let me have them if I was in any danger and I understand that I am more at risk for heart failure or attack but would like your experiences with
I've been advised to take 20mg of statins but I am worried about the effect on my kidneys (CKD 4). Has anyone taken them? I know that my renal team wouldn't let me have them if I was in any danger and I understand that I am more at risk for heart failure or attack but would like your experiences with
googie68
in
Early CKD Support
3 years ago
Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Cystinosis and Fanconi syndrome
Hi, I asked this question a while ago but I thought I would try again since it’s been a while to see if there was anyone else in this community who has these illnesses. Cystinosis and Fanconi syndrome I was diagnosed when I was around 2 years old,. basically the cystine cells attack the vital organs
Hi, I asked this question a while ago but I thought I would try again since it’s been a while to see if there was anyone else in this community who has these illnesses. Cystinosis and Fanconi syndrome I was diagnosed when I was around 2 years old,. basically the cystine cells attack the vital organs
Rmatthew
in
Kidney Dialysis
3 years ago
Sore scalp
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
1football
in
British Liver Trust
4 years ago
CAPD and PAIN
Hi My First post here, sorry if I screw up. I had a standard CAPD line inserted and then all training and a Baxter machine to receive APD. But the line never worked very well. The doctors decided that it was because I am so tall (6'2" is not that unusual?) Anyway the faulty line was removed and a
Hi My First post here, sorry if I screw up. I had a standard CAPD line inserted and then all training and a Baxter machine to receive APD. But the line never worked very well. The doctors decided that it was because I am so tall (6'2" is not that unusual?) Anyway the faulty line was removed and a
GeoffJ
in
Kidney Dialysis
4 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
4 years ago
Immune suppressants?
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
MarthaRock
in
British Liver Trust
4 years ago
Temgesic or Subutex
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
Mickmaur
in
Restless Legs Syndrome
4 years ago
Kidney Biopsy and igA nephropathy (UPDATE POST-BIOPSY)
Hi. I am due for a kidney biopsy next week and wasn't given much tips on what to prepare or not do post biopsy other than stay in bed for 6hrs. Doctor told me that I might have igAn based on my proteinuria and high hematuria. I am very concerned as I am only 24 years old and a female trying to start
Hi. I am due for a kidney biopsy next week and wasn't given much tips on what to prepare or not do post biopsy other than stay in bed for 6hrs. Doctor told me that I might have igAn based on my proteinuria and high hematuria. I am very concerned as I am only 24 years old and a female trying to start
agirlwithhope95
in
Early CKD Support
4 years ago
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