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Experiences with
Radium 223
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Is there any light at the end of tunnel
My little boy is five and has been soiling for nearly two years been on movical senna and currently sodium pricasolfate . We thought we had chracked it in February when he started on the sp . He was clean for nearly two weeks with very few accidents and was using the toilet . We have been having bad
My little boy is five and has been soiling for nearly two years been on movical senna and currently sodium pricasolfate . We thought we had chracked it in February when he started on the sp . He was clean for nearly two weeks with very few accidents and was using the toilet . We have been having bad
Scillycat
in
ERIC
5 years ago
Sodium
Had bloods back today and my GFR has gone up by 1 it's now 21, it's not massive amounts but I'm taking it as a small victory. My Creatinine has gone down from 260 to 250 do again small victory. My sodium however has fallen to 26 had this happened to anyone else, if so what are the possible treatments
Had bloods back today and my GFR has gone up by 1 it's now 21, it's not massive amounts but I'm taking it as a small victory. My Creatinine has gone down from 260 to 250 do again small victory. My sodium however has fallen to 26 had this happened to anyone else, if so what are the possible treatments
Munf
in
Kidney Disease
5 years ago
Prednisone to Blame for ERA 223 Trial Failure?
Further to my recent post: "
Radium
-
223
+ Abiraterone & prednisone/prednisolone" [1] ... "Prednisone to Blame for ERA 223 Trial Failure?"
Further to my recent post: "
Radium
-
223
+ Abiraterone & prednisone/prednisolone" [1] ... "Prednisone to Blame for ERA 223 Trial Failure?"
pjoshea13
in
Advanced Prostate Cancer
5 years ago
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Right pain
Hi my son is 8 and has been on movicol since he was 6months old and he has also been on sodium pic a sulphate for the pass 2 years. We are under the hospital but since Nov every now and again he gets pain in his right side and we end up in hospital. But all tests come back clear just thinking now could
Hi my son is 8 and has been on movicol since he was 6months old and he has also been on sodium pic a sulphate for the pass 2 years. We are under the hospital but since Nov every now and again he gets pain in his right side and we end up in hospital. But all tests come back clear just thinking now could
Acwtmw
in
ERIC
5 years ago
Can’t sleep
I’ve had tinnitus for three years. Can’t sleep at the moment and the sounds I have have no longer been maskable or attenuated for ten days. I have 2 kids and a job, I’m at my wits end with nowhere to turn to. I’ve come off another forum as the negativity made me worse but other than forums what do we
I’ve had tinnitus for three years. Can’t sleep at the moment and the sounds I have have no longer been maskable or attenuated for ten days. I have 2 kids and a job, I’m at my wits end with nowhere to turn to. I’ve come off another forum as the negativity made me worse but other than forums what do we
Tmummy
in
British Tinnitus Association
5 years ago
Fna done
More of an update really if it helps anyone going through a similar experience, I went to see an ent consultant about a goitre at the beginning of june, and I went for an fna two weeks after this appointment, I thought it was going to be 6 weeks so must have got lucky! At the fna appointment firstly
More of an update really if it helps anyone going through a similar experience, I went to see an ent consultant about a goitre at the beginning of june, and I went for an fna two weeks after this appointment, I thought it was going to be 6 weeks so must have got lucky! At the fna appointment firstly
Cazza83
in
Thyroid UK
5 years ago
Update: 9 months into my hypo journey - starting to take control, advice please.
Apologies for the long post!! After an initial post when I joined this forum I’ve just been taking in info and learning about others journeys and now feel able to start to control my own as not really getting anywhere, and think my understanding from being on here has improved my knowledge to enable
Apologies for the long post!! After an initial post when I joined this forum I’ve just been taking in info and learning about others journeys and now feel able to start to control my own as not really getting anywhere, and think my understanding from being on here has improved my knowledge to enable
Michelin
in
Thyroid UK
5 years ago
Today’s the day - the saga continues on..
Hello all! Went back to my primary doctor to talk about the results from the eye doctor. Also had my BP Meds increased, more blood work and urine checked. I know pred masks other things - but they found blood - so they sent it to the lab and I should know by Monday. I’m hoping it’s just a UTI - but
Hello all! Went back to my primary doctor to talk about the results from the eye doctor. Also had my BP Meds increased, more blood work and urine checked. I know pred masks other things - but they found blood - so they sent it to the lab and I should know by Monday. I’m hoping it’s just a UTI - but
Kern1410
in
PMRGCAuk
5 years ago
Advice for a sister who won't listen
Hey all! Me again. This time I'm hoping you guys can help my stubborn younger sister by giving some advice. She hasn't been diagnosed with kidney disease yet (hoping for a no), but her creatinine is high even though she's 23, almost 24 and is like 110lbs with no diabetes, but does get the occasional
Hey all! Me again. This time I'm hoping you guys can help my stubborn younger sister by giving some advice. She hasn't been diagnosed with kidney disease yet (hoping for a no), but her creatinine is high even though she's 23, almost 24 and is like 110lbs with no diabetes, but does get the occasional
Radtastiical
in
Early CKD Support
5 years ago
Overwhelmed
Hey everyone. I’ve been reading some of these posts and feel it’s time to share my story. I am 28 and over the past year my gfr has gone from 30 to 16. I am just starting the process with the hospital to get a transplant. I have IGAN and feel really alone. My nephrologist doesn’t have the best bed side
Hey everyone. I’ve been reading some of these posts and feel it’s time to share my story. I am 28 and over the past year my gfr has gone from 30 to 16. I am just starting the process with the hospital to get a transplant. I have IGAN and feel really alone. My nephrologist doesn’t have the best bed side
PurplePill
in
Kidney Transplant
5 years ago
It is cold
It is cold but sunny, okay maybe not cold but cool, my toes are cold. I should walk downstairs and put some slippers on my feet. Nah, probably not, just to lazy to walk downstairs. Such is the life of a twenty year retired veteran of Relapsing Remitting ms (RRms) Life is good, is it not? Let’s
It is cold but sunny, okay maybe not cold but cool, my toes are cold. I should walk downstairs and put some slippers on my feet. Nah, probably not, just to lazy to walk downstairs. Such is the life of a twenty year retired veteran of Relapsing Remitting ms (RRms) Life is good, is it not? Let’s
RoyceNewton
in
My MSAA Community
5 years ago
Struggling with pains
Hi All. I hope everyone is on sunny mood and well. I’m almost one year since being diagnosed. I stopped alcohol, drugs and on low sodium but feeling lots of pains mainly anxiety, fears and physical pains. I’m eating fish, chicken breast, lots of veggies and fruits. My total Bilirubin was 1.9; AST
Hi All. I hope everyone is on sunny mood and well. I’m almost one year since being diagnosed. I stopped alcohol, drugs and on low sodium but feeling lots of pains mainly anxiety, fears and physical pains. I’m eating fish, chicken breast, lots of veggies and fruits. My total Bilirubin was 1.9; AST
Beefeater
in
British Liver Trust
5 years ago
CKF 3 Plant based diet
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
nsm5813
in
Early CKD Support
5 years ago
Ra-223 Treatment for Bone Metastases in Castrate-Resistant Prostate Cancer
Of these, only
radium
-
223
(Ra-223) specifically targets bone metastases, delays development of skeletal-related events, and improves survival. This review discusses key data from the ALSYMPCA trial, which contributed to the approval of Ra-223.
Of these, only
radium
-
223
(Ra-223) specifically targets bone metastases, delays development of skeletal-related events, and improves survival. This review discusses key data from the ALSYMPCA trial, which contributed to the approval of Ra-223.
pjoshea13
in
Advanced Prostate Cancer
5 years ago
I'm new, any help would be great for on my Sodium issue. :)
Hi, I am 29, I am being referred for an Ultrasound on my Liver in 5 weeks time, after an Caridic MRI showed something on my Liver. I take 'Lansoprazole' (have needed after I had a few cardiac Ablation) I also take 'Gaviscon' when needed, but I noticed both have a warning for 'Liver' I tried googling
Hi, I am 29, I am being referred for an Ultrasound on my Liver in 5 weeks time, after an Caridic MRI showed something on my Liver. I take 'Lansoprazole' (have needed after I had a few cardiac Ablation) I also take 'Gaviscon' when needed, but I noticed both have a warning for 'Liver' I tried googling
Before_the_dawn
in
British Liver Trust
5 years ago
Got my test results back. B12 >2000
Hey everybody. Been a frequent poster here for the last month since I was diagnosed with low b12 (159) and anemia. Been supplementing for a little under a month with injections (12 so far) and daily oral b12 (sublingual and tablet). I've been having issues with my ears ringing very loudly since
Hey everybody. Been a frequent poster here for the last month since I was diagnosed with low b12 (159) and anemia. Been supplementing for a little under a month with injections (12 so far) and daily oral b12 (sublingual and tablet). I've been having issues with my ears ringing very loudly since
lownskater52
in
Pernicious Anaemia Society
5 years ago
Still dealing
Hi yall been a while since i have been on here.. im in a much better place with my anxiety 2 yrs ago i was agoraphobic, i am still fighting anxiety but am able to live, i now have a job at a nursing home and am able to do things with my family, work is stressful so i am taking my valium everyday which
Hi yall been a while since i have been on here.. im in a much better place with my anxiety 2 yrs ago i was agoraphobic, i am still fighting anxiety but am able to live, i now have a job at a nursing home and am able to do things with my family, work is stressful so i am taking my valium everyday which
Wyominganxiety
in
Anxiety Support
5 years ago
Radium-223 + Abiraterone & prednisone/prednisolone
The study was unblinded prematurely, on Nov 17, 2017, after more fractures and deaths were noted in the
radium
-
223
group than in the placebo group (in an unplanned ad-hoc analysis), but all patients had completed
radium
-
223
or placebo before this date.
The study was unblinded prematurely, on Nov 17, 2017, after more fractures and deaths were noted in the
radium
-
223
group than in the placebo group (in an unplanned ad-hoc analysis), but all patients had completed
radium
-
223
or placebo before this date.
pjoshea13
in
Advanced Prostate Cancer
5 years ago
According to a Briova Pharmacist, Sodium Phosphate IS allowed while taking Ibrance!
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
Godbeforme
in
SHARE Metastatic Breast Cancer
5 years ago
Psychiatrist fired daughter as patient over thyroid! (Or maybe because of her pushy mom regarding thyroid...)
We are in the US. We had a follow up appointment with the psychiatrist last week for my teen daughter. He has made no medication adjustments in over 5 months...just wants to keep things as they are. Her mood has been *more* stable, but she still has some periods of hypomania, and the depression isn't
We are in the US. We had a follow up appointment with the psychiatrist last week for my teen daughter. He has made no medication adjustments in over 5 months...just wants to keep things as they are. Her mood has been *more* stable, but she still has some periods of hypomania, and the depression isn't
soupybp
in
Thyroid UK
5 years ago
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