Is there any light at the end of tunnel

[Scillycat]

My little boy is five and has been soiling for nearly two years been on movical senna and currently sodium pricasolfate . We thought we had chracked it in February when he started on the sp . He was clean for nearly two weeks with very few accidents and was using the toilet . We have been having bad patch at the moment . He is currently on 4ml which he has in the evening and goes first thing .

As anyone got and ideas thy have helped and work to get him to use the toilet I know he can do it he just doesn’t care at the moment and school are not being very supportive at the moment. I have tried everything x

To us

[Helen36]

Hello - my little girl has just turned 6 and the same. The turning point for us has been sodium picsulphate too. We had an initial amazing couple of weeks when she first started on it and then it went downhill... the continence nurse encouraged us to keep on increasing the dose. We are now up to 9ml and the journey to get there was horrible, so much explosive poo, some in the middle of the night but we are back to being clean again. I think her poo tube was just really heavily loaded with masses of slow moving poo. It is pretty explosive everyday still but her movements are predictable now. We had a small blip when we tried to reduce it down to 8.5ml and she soiled again, so we are back to 9ml!

My daughter is the same about the toilet but I think I am now coming to terms with the fact that when it seems like she doesn’t care and is sat there obviously soiling and won’t move to the loo, actually what she is trying to do is stop the soiling happening (which is why she gets aggressive) and knows if she moves it comes out. Or she just has absolutely no idea some has leaked...

[Misty10 in reply to Helen36]

Has your lg got any feeling down below.my lg has lost it and until the bowel goes back to normal size hope the feeling comes back.just wondered.

[Helen36 in reply to Misty10]

I’m not really sure. She has some feeling but only really when the sodium picosulphate dose is high enough to make it a very urgent feeling when she needs to poo. Until we got this right she certainly lacked feeling of leaking unless it was actually coming out and then she would sort of squeeze her knees up to her chest to try and stop it coming but it was too late

[Misty10 in reply to Helen36]

Sounds exactly like my lg so frustrating for them constantly pooing. Bless them