Search
Search
About
Log in
Join
Experiences with
Radioactive iodine
Posts
Communities
5,534 public posts
Filter results
Iodine avidity in papillary and poorly differentiated thyroid cancer is predicted by immunohistochemical and molecular work-up
Is there any possibility of reducing the uptake of
radioactive
iodine
by other tissue? Classically, salivary glands have been affected by
radioactive
iodine
treatment.)
Is there any possibility of reducing the uptake of
radioactive
iodine
by other tissue? Classically, salivary glands have been affected by
radioactive
iodine
treatment.)
helvella
Thyroid UK
in
Thyroid UK
11 months ago
After Radioactive iodine treatment, what do I put on travel insurance docs?
Hi, Can anyone tell me ... 3 years ago I was diagnosed with Grave's Disease, treated with Carbimazole and then in March 2023 I had
radioactive
iodine
treatment. Over the course of 2023 I had repeated blood tests, and now I take daily levothyroxine.
Hi, Can anyone tell me ... 3 years ago I was diagnosed with Grave's Disease, treated with Carbimazole and then in March 2023 I had
radioactive
iodine
treatment. Over the course of 2023 I had repeated blood tests, and now I take daily levothyroxine.
D99333309
in
Thyroid UK
5 months ago
T3-4-Hypo trial - Netherlands
[/i] [i] Hypothyroidism may not exist from birth/first years of life, or be caused by a pituitary disorder, thyroid surgery, treatment with
radioactive
iodine
or medications.[/i] [i]There are more rules for participation.
[/i] [i] Hypothyroidism may not exist from birth/first years of life, or be caused by a pituitary disorder, thyroid surgery, treatment with
radioactive
iodine
or medications.[/i] [i]There are more rules for participation.
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
why wouldn't the consultant order a scan of a goiter ( I have confirmed Graves Disease?)
When I asked they said it's because the treatment plan is the same regardless in first instance - ie carbimazole - in hope that stops growth/ balances the hormones and so avoid
radioactive
iodine
treatment / surgery. If all goes to plan - sorted.
When I asked they said it's because the treatment plan is the same regardless in first instance - ie carbimazole - in hope that stops growth/ balances the hormones and so avoid
radioactive
iodine
treatment / surgery. If all goes to plan - sorted.
Littlefoot1thyroiduk
in
Thyroid UK
1 year ago
Blood test timing when insulin dependent
I have been underactive ever since RAI over thirty years ago. Unfortunately, due to poor management of thyroxine dosage (consultant didn't know what he was doing and left me to GP) I gained a lot of weight which just wouldn't shift. So I was diagnosed with type 2 diabetes and was prescribed Metformin
I have been underactive ever since RAI over thirty years ago. Unfortunately, due to poor management of thyroxine dosage (consultant didn't know what he was doing and left me to GP) I gained a lot of weight which just wouldn't shift. So I was diagnosed with type 2 diabetes and was prescribed Metformin
LynetteP
in
Thyroid UK
21 hours ago
A recent consultation with a CLL specialist, and confirmation of genetic markers
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
My wife had an appointment with CLL specialist Dr. C. Chen yesterday. We also performed other blood tests. I had a pleasant consultation with Dr. Chen. I was perplexed because of the TP53 mutation, whether it was discovered or not. I posted an earlier post that she has a TP53 mutation. I am sorry for
Sagarcanada
in
CLL Support
1 month ago
Beatsons Glasgow RAI
Sorry, reposting due to stupid autocorrect! Have had total thyroidectomy and removal of lymph glands. Now waiting for appointment for RAI at Beatsons, Glasgow. Can anyone tell me what to expect and what it's like staying as RAI patient in Beatsons?
Sorry, reposting due to stupid autocorrect! Have had total thyroidectomy and removal of lymph glands. Now waiting for appointment for RAI at Beatsons, Glasgow. Can anyone tell me what to expect and what it's like staying as RAI patient in Beatsons?
HelenaJ
in
Thyroid UK
1 month ago
need ammunition to stop Endo reducing my T3
Hello, this is my second post concerning the fact that my Consultant's Registrar wants to lower my T3 from 10mg but keep me on 54 mcg of Levo as my TSH is supressed. I have no thyroid after it was destroyed with RAI.However his Registrar was abrupt, merely telling me that my T3 must be reduced because
Hello, this is my second post concerning the fact that my Consultant's Registrar wants to lower my T3 from 10mg but keep me on 54 mcg of Levo as my TSH is supressed. I have no thyroid after it was destroyed with RAI.However his Registrar was abrupt, merely telling me that my T3 must be reduced because
HilaryWB
in
Thyroid UK
1 month ago
Perplexing results. I wondered if anyone had any thoughts?
I was wondering if any one had any thoughts on my results I’m 14 years post RAI and have been on levothyroxine for 8 years and I seem to be very sensitive to dose change. I don’t have thyroid antibodies just a toxic adenoma. They run my T4 higher around 19- 22 for conversion for T3, my consultant
I was wondering if any one had any thoughts on my results I’m 14 years post RAI and have been on levothyroxine for 8 years and I seem to be very sensitive to dose change. I don’t have thyroid antibodies just a toxic adenoma. They run my T4 higher around 19- 22 for conversion for T3, my consultant
Realfoodieclub
in
Thyroid UK
1 month ago
Graves disease Auto Immune Diet
Hello again. All has settled with tablets. Thyroid levels are normal again, so my Carbimazole dose has been reduced by half to 5 mg per day. I just wondered if anyone had tried any Thyroid diet plans with success. Not necessarily to lose weight, though I've put nearly a stone on with ATD but more
Hello again. All has settled with tablets. Thyroid levels are normal again, so my Carbimazole dose has been reduced by half to 5 mg per day. I just wondered if anyone had tried any Thyroid diet plans with success. Not necessarily to lose weight, though I've put nearly a stone on with ATD but more
Spagbol24
in
Thyroid UK
2 months ago
combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
2 months ago
Devastated
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
I went to my first three month blood test today. I am at Rai 0. I feel great. My WBC and Lymphocytes doubled in 3 months. I am starting V and O on Monday. I am pissed and scared. I had 3 months on Wait and Watch. Chronic was supposed to mean 3 years or 10 years before treatment. My wife and I are driving
Hidden
in
CLL Support
2 months ago
long term carbimazole
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
I currently take 5mg Carbimazole alternate days. I have toxic nodules so stopping meds is not an option. Like many people on here I have been pushed towards RAI or surgery TT. Every time I feel I get near to a decision I learn something new! I am interested in what people have been told about staying
Platypus8
in
Thyroid UK
2 months ago
Carbimazole and severe bloating
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
I've been taking carbimazole now for 3 weeks but have been having extreme painful bloating in my abdomen. Not feeling sick and bowel movements are normal if not less regular. I cancelled my appointment for RAI to opt to try tablets first but this tummy ache is debilitating. Do side effects wear off
Spagbol24
in
Thyroid UK
2 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
2 months ago
constant running nose
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
have had graves for over 10 yrs . Had RAI only wish I had never had this this treatment . On Levo 100mcgs and 75mcgs alternative days . My results have been normal . Have even been able to try T3 to no avail . My problem is constant fatigue have to push myself in the morning as so so tired . Although
annie123
in
Thyroid UK
2 months ago
Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
2 months ago
Graves and Carbimazole update
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
Hello again! I thought I would post an update to share my experience so far with Graves and pose a couple of questions. I had positive Graves antibodies result in September 2023 / low TSH but T3 T4 in range. Radioiodine scan showed increased uptake / hyperthyroidism. Started Carbimazole 5mg per
ElleBee99
in
Thyroid UK
3 months ago
T3 Trial continued
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Rambling9
in
Thyroid UK
3 months ago
Endo finally tested FT3! Thoughts?
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
JUUJOO
in
Thyroid UK
3 months ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
3073 results
Endometriosis UK
521 results
Restless Legs Syndrome
292 results
View top 10 communities
Sort by
Most Relevant
Newest