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NDT suppliers
Would someone please dm with details of NDT suppliers, currently using Levo and it's making me ill. Again.
Would someone please dm with details of NDT suppliers, currently using Levo and it's making me ill. Again.
Jamima
in
Thyroid UK
8 months ago
Asking for advice
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
ventusbella
in
Advanced Prostate Cancer
8 months ago
Radiotherapy for prostate local and retroperitoneal nodes
ADT of lupron and abiraterone has been pretty tolerable so far, almost four months - maybe I got cocky. Started my SBRT 28 fraction 70 Gy radiotherapy four days ago, mild to moderate urinary urgency and some burn started almost immediately. Diarrhea started at night after day four, mild so far. How
ADT of lupron and abiraterone has been pretty tolerable so far, almost four months - maybe I got cocky. Started my SBRT 28 fraction 70 Gy radiotherapy four days ago, mild to moderate urinary urgency and some burn started almost immediately. Diarrhea started at night after day four, mild so far. How
pj1121
in
Advanced Prostate Cancer
8 months ago
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Estrodiol and PC
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
Knittingque
in
Advanced Prostate Cancer
8 months ago
Medical OR chemical castration
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Hi All, Ok I am 79 and still in great physical condition. PR and ADT for 2 years. To date no unusual physical side effects other than zero sex drive. It looks as thought I will be on ADT until I die. PSA increasing monthly so I will try other chemicals. I want to remain in good shape until my number
Stevegr
in
Advanced Prostate Cancer
8 months ago
Blood test
In reply to my previous post on blood test and gap between last dosage and blood test ,started taking Thyroid S NDT on 7th Sept starting with 1/2 tab increasing to 1 tab on 17th Sept 2 tabs on 20th Sept then 3 tabs on 29th Sept but felt brain malfunction and bodily weakness worse on 3 tabs so reduced
In reply to my previous post on blood test and gap between last dosage and blood test ,started taking Thyroid S NDT on 7th Sept starting with 1/2 tab increasing to 1 tab on 17th Sept 2 tabs on 20th Sept then 3 tabs on 29th Sept but felt brain malfunction and bodily weakness worse on 3 tabs so reduced
delboy25
in
Thyroid UK
8 months ago
Blood test
Discontinued Levo 2 mths ago been on NDT since then at 11pm. I have full thyroid blood test next Tue at 9.30am.When do I need to stop taking NDT to get accurate results.
Discontinued Levo 2 mths ago been on NDT since then at 11pm. I have full thyroid blood test next Tue at 9.30am.When do I need to stop taking NDT to get accurate results.
delboy25
in
Thyroid UK
8 months ago
Odd statement found in STAMPEDE trial results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
"Hormone therapy can cause bone problems. But the trial found that abiraterone reduced the risk of serious bone problems by a half." https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-hormone-therapy-with-other-treatments-for-prostate-cancer-stampede-trial-results
Hidden
in
Advanced Prostate Cancer
8 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
8 months ago
How important is missing 2 months of ADT?
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
I'm one month into RT and ADT for 9 months. I chose monthly Eligard. The Urology office made a mistake and came in with a 3-month dose. When I told the nurse I had communicated my 1-month preference prior, she left the room. The Dr. came in, eyeballed the dosage, removed 2/3 and I received it. I was
Eadgbe
in
Prostate Cancer Network
8 months ago
Endocronologist experience
Hi there, I recently had a top end and very experienced endocrinologist tell me that the 1.6mcg of levo per KG in weight was an old fashioned and outdated theory. Is this the case? I have just upped to 100mcg and was just wondering if I’m on the right dose. He seems to think that’s ok for me.
Hi there, I recently had a top end and very experienced endocrinologist tell me that the 1.6mcg of levo per KG in weight was an old fashioned and outdated theory. Is this the case? I have just upped to 100mcg and was just wondering if I’m on the right dose. He seems to think that’s ok for me.
Needlehaystax
in
Thyroid UK
8 months ago
bone mets
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
dnmrk
in
Advanced Prostate Cancer
8 months ago
Managing side effects of ADT
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
I have found that Richard Wassersug has many blog postings related to ways to manage ADT side effect on the LifeOnAdt.com website. I also found the new version of his book has a great section on dealing with relationship issues. It was very helpful in keeping my relationship with Coco on track when
Scout4answers
in
Advanced Prostate Cancer
8 months ago
declining psa #7
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Gm ladies n gents, I’m here to give my results as promised post Rp, rad, and 7 mo of adt. Solely using ivermectin, cbd oil, turmeric, zinc and now testosterone boosters ashwagandha, cordyceps extract and diindolylmethane(dim) which is an estrogen blocker. Psa has dropped to 1.29 down from 1.34 last
Nfler
in
Advanced Prostate Cancer
8 months ago
Bladder dysfunction
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
Tkwham
in
Advanced Prostate Cancer
8 months ago
Treatment - radiation vs. surgery
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
TonyTx
in
Prostate Cancer Network
8 months ago
Private Consultation Findings - thoughts on next steps
Hello everyone. I am looking for some advice and experiences on Dienogest / Zalkya. Diagnosed in 2022 via lap by general gynae and never prescribed anything. Own GP has tried me on contraceptives & meds for pain management, which nearly tipped me over the edge. After a scare with my mental health,
Hello everyone. I am looking for some advice and experiences on Dienogest / Zalkya. Diagnosed in 2022 via lap by general gynae and never prescribed anything. Own GP has tried me on contraceptives & meds for pain management, which nearly tipped me over the edge. After a scare with my mental health,
usernames123
in
Endometriosis UK
8 months ago
Cognition Issues
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
My husband is going into year 7 with PC. He had prostate removed… at Mayo in 2017. All clear margins, contained etc. 6 months he had Biochemical Recurrence. Then radiation and cryptography on one node. Since then he has been intermittently on ADT until he because Castrate resistant about a year ago
JolleySprings
in
Advanced Prostate Cancer
8 months ago
First Post Biopsy Consult
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
I'm grateful to have found this network. I've spent many hours over reading your posts and replies, and learning from you all. Thank you. I'm 59 years old. Both my father and brother were diagnosed with PCa in their late 50s. I did a genome test for my family some years ago and learned I carry the
Mpls
in
Prostate Cancer Network
8 months ago
ADT 's effect on body fat and muscle mass from Life on ADT blog by Richard Wassersug
ADT’s impact on Muscle and Fat October 23, 2023 Standard ADT with either LHRH agonist or antagonist drugs (like Lupron or Firmagon, respectively) cause a loss of lean muscle mass and weight gained as fat. Those are among the most common side effects of ADT. Patients experience this as fatigue for they
ADT’s impact on Muscle and Fat October 23, 2023 Standard ADT with either LHRH agonist or antagonist drugs (like Lupron or Firmagon, respectively) cause a loss of lean muscle mass and weight gained as fat. Those are among the most common side effects of ADT. Patients experience this as fatigue for they
Scout4answers
in
Advanced Prostate Cancer
8 months ago
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