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Stability of NDT at 5C - stored in the fridge
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
PixieElv
in
Thyroid UK
8 months ago
Eligard and Muscle pain
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
I am 26 months into my ADT and generally tolerating well.I was first on firmagon shots monthly then switched to Lupron Depot 3 monthly but on my last visit 2 weeks ago Nurse gave me Eligard injection .My blood tests came out great PSA still undetectable but I am having severe muscle pain last few days
mynacho
in
Advanced Prostate Cancer
8 months ago
How long to Castrate Resistance: ADT+/- ARSI
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
Further discussion on details of EMBARK study on another HU forum bears restating here (IMO). For high risk BCR (and beyond) ADT combined with ARSI (in this case enzalutamide) is clearly superior to either monotherapy. However, development of castrate resistance between ADT + Enza vs. Enz monotherapy
MateoBeach
in
Advanced Prostate Cancer
8 months ago
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ADT Holiday Coming To An End
After nearly 2 years of undetectable while on ADT holiday my 10/2 PSA result was 0.1. Today, 10/23 my PSA was .19. Seems like a rapid doubling time. Sent result to my MO. Waiting for a response.
After nearly 2 years of undetectable while on ADT holiday my 10/2 PSA result was 0.1. Today, 10/23 my PSA was .19. Seems like a rapid doubling time. Sent result to my MO. Waiting for a response.
6357axbz
in
Advanced Prostate Cancer
8 months ago
Does anyone know if you did lu177 early on, can you still continue ADT?
Father just had PC diagnosis with bone mets...
Father just had PC diagnosis with bone mets...
2jznt54
in
Advanced Prostate Cancer
8 months ago
Update
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Nusch
in
Advanced Prostate Cancer
8 months ago
LEUPRORELIN ACETATE
Any information on results or side effects for this ADT
Any information on results or side effects for this ADT
Stevegr
in
Advanced Prostate Cancer
8 months ago
Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
8 months ago
Do low PSA-producing cells still rely on testosterone to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
novatimo
in
Advanced Prostate Cancer
8 months ago
EMBARK Study: ADT vs Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Advanced Prostate Cancer
8 months ago
EMBARK Study: Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Fight Prostate Cancer
8 months ago
NDT Supplier - from America
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
Delilahmy
in
Thyroid UK
8 months ago
Would I be on thin ice if I tried adaptive ADT this soon?
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
jackwfrench
in
Advanced Prostate Cancer
8 months ago
Sleep while taking Xtandi and Adt
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
JD-guy
in
Advanced Prostate Cancer
8 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
8 months ago
please could I have feedback on my results?
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
Knackeredandcross
in
Thyroid UK
8 months ago
NDT range
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
Ari3
in
Thyroid UK
8 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
8 months ago
what’s 1 grain of NDT in Levo please?
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
PixieElv
in
Thyroid UK
8 months ago
NDT Thiland
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Bigfraz76
in
Thyroid UK
8 months ago
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