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If you are thinking of Travel - Go For It.
Hello everyone, We're midway through our 10-week holiday adventure, and it's been quite a journey so far! From Japan to Finland, Turkey, and now Italy, we've covered quite a bit of ground. Traveling alongside another couple, our time in Turkey stands out, where I took on the role of designated driver
Hello everyone, We're midway through our 10-week holiday adventure, and it's been quite a journey so far! From Japan to Finland, Turkey, and now Italy, we've covered quite a bit of ground. Traveling alongside another couple, our time in Turkey stands out, where I took on the role of designated driver
Mike58
in
Prostate Cancer Network
4 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
8 months ago
Update after GP call
Had my call with the GP that I mentioned in my last posts. That was a bit of a disaster, although not as bad as it could have been. She did not read my notes or blood test results before the call. She asked me about symptoms, but was only concerned about weight gain and dry skin. I had already gone
Had my call with the GP that I mentioned in my last posts. That was a bit of a disaster, although not as bad as it could have been. She did not read my notes or blood test results before the call. She asked me about symptoms, but was only concerned about weight gain and dry skin. I had already gone
Heappestre
in
Thyroid UK
4 months ago
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Guess what? Your body has changed and will never be the same.
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
OldGuysRule
in
Advanced Prostate Cancer
4 months ago
Buprenorphine and antidepressants
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
teakabeagle
in
Restless Legs Syndrome
7 months ago
Long complicated paper on gut microbiome and PCa, human and mouse studies.
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
Graham49
in
Advanced Prostate Cancer
4 months ago
Surgery or radiation, looking for some advices
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Healing1826
in
Advanced Prostate Cancer
4 months ago
some great news….
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
MotherofBarbearians
in
Parents of Children with Kidney Disease
9 months ago
zoladex and bloating
hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on my 5th one now, side effects in beginning were really bad aching like having the flu, extreme tiredness where I have to take naps now! Its effecting my day to day life, last month I’ve been really bloated to the point I
hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on my 5th one now, side effects in beginning were really bad aching like having the flu, extreme tiredness where I have to take naps now! Its effecting my day to day life, last month I’ve been really bloated to the point I
Welch16
in
Endometriosis UK
4 months ago
Tibilone experiences
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Lily1986
in
Endometriosis UK
4 months ago
Should I insist on Whole Pelvic Radiation Therapy (WPRT)?
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Infamous9597
in
Advanced Prostate Cancer
1 month ago
Newbie on PCa, coping on PCa
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
ahmadyusriyahaya
in
Advanced Prostate Cancer
4 months ago
Exercise making it worse?
Hi everyone, I have a question about exercise and endo. So basically I've been pretty much bedbound all of last year with rare weeks of being able to function, but lately I've experience a good couple of months of feeling better and being able to live! (Don't get me wrong still in pain but manageable
Hi everyone, I have a question about exercise and endo. So basically I've been pretty much bedbound all of last year with rare weeks of being able to function, but lately I've experience a good couple of months of feeling better and being able to live! (Don't get me wrong still in pain but manageable
Lavenderpetal
in
Endometriosis UK
7 months ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
4 months ago
PC drug with least side effects
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
Stevegr
in
Advanced Prostate Cancer
4 months ago
Exercise on ADT? You’ll want to hear this.
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
No_stone_unturned
in
Advanced Prostate Cancer
4 months ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
1 month ago
Almost 3 years on ADT + Erleada
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
mynacho
in
Advanced Prostate Cancer
4 months ago
Brachyboost and PSA progression free survival question
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
EvFC
in
Advanced Prostate Cancer
4 months ago
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