Search
Search
About
Log in
Join
Experiences with
Promacta
Posts
Communities
51 public posts
Filter results
Ibrutinib and odd side effects
In 2013 and part of 2014 I was on NPlate and then
Promacta
for ITP which really didn’t do very much for my problem. I got very sick with CLL and entered a clinical trial in June 2014 with Zydelig/idealisib and ofatumumab.
In 2013 and part of 2014 I was on NPlate and then
Promacta
for ITP which really didn’t do very much for my problem. I got very sick with CLL and entered a clinical trial in June 2014 with Zydelig/idealisib and ofatumumab.
KevinCLLITP
in
CLL Support
5 years ago
Response with Promacta
I wonder if there is anyone out here who went on remission with
Promacta
? What’s the dose and what has been your experience with
Promacta
?
I wonder if there is anyone out here who went on remission with
Promacta
? What’s the dose and what has been your experience with
Promacta
?
JBSS
in
ITP Support Association
5 years ago
promacta with danazol had me going up
I thought
promacta
was my holy grail , its not … 9 thousand for 30 pills USD … help …………… jimmy
I thought
promacta
was my holy grail , its not … 9 thousand for 30 pills USD … help …………… jimmy
exxxon
in
ITP Support Association
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PROMACTA IS THE BEST TREATMENT
promacta
has me up to 65k and all sores and brusies are gone .. hope it lasts ???????????????.. nasty disease it is .. good luck to all and maybe a cure someday ???????????????????
promacta
has me up to 65k and all sores and brusies are gone .. hope it lasts ???????????????.. nasty disease it is .. good luck to all and maybe a cure someday ???????????????????
exxxon
in
ITP Support Association
5 years ago
Nplate clots
I found 4 others that had the same thing on Nplate and one on
promacta
. The Drs stopped each of their treatments. Has this happened to others and why the clots at the numbers the Drs wanted me to run?
I found 4 others that had the same thing on Nplate and one on
promacta
. The Drs stopped each of their treatments. Has this happened to others and why the clots at the numbers the Drs wanted me to run?
Jazzbo77
in
ITP Support Association
5 years ago
dropped 5k yesterday to 55 k ??
going completely off the prednisone and praying the
promacta
will keep me in the safe zone ??? steroids are dangerous and only on
promacta
for 3 weeks ??? don't know why doctor didn't put me on
promacta
4 months ago ??? if
promacta
fails what else is there ?? spleen removal ??
going completely off the prednisone and praying the
promacta
will keep me in the safe zone ??? steroids are dangerous and only on
promacta
for 3 weeks ??? don't know why doctor didn't put me on
promacta
4 months ago ??? if
promacta
fails what else is there ?? spleen removal ??
exxxon
in
ITP Support Association
5 years ago
PROMACTA ?? anyone on it ???
anyone on
promacta
????????? on it for 2 weeks now and get a platlelet count tomorrow ….. will let all know tomorrow .. doctor says it's the best with little side effects ??
anyone on
promacta
????????? on it for 2 weeks now and get a platlelet count tomorrow ….. will let all know tomorrow .. doctor says it's the best with little side effects ??
exxxon
in
ITP Support Association
5 years ago
a couple beers is ok or not with the promacta ???
trying to not drink the nite coffee and drink a beer but don't know I it will hurt the platelets levels .. anyone ??? jimmy
trying to not drink the nite coffee and drink a beer but don't know I it will hurt the platelets levels .. anyone ??? jimmy
exxxon
in
ITP Support Association
5 years ago
Medication question
Is there anyone out there currently on
Promacta
?
Is there anyone out there currently on
Promacta
?
MyDede
in
ITP Support Association
6 years ago
Platelets & me
Despite this, we're currently trying Revolade /
Promacta
and I am at 130k after one week of 50mg/day dose and feeling great.
Despite this, we're currently trying Revolade /
Promacta
and I am at 130k after one week of 50mg/day dose and feeling great.
conquerator2
in
ITP Support Association
6 years ago
7 weeks on revolade/promacta and no change, ITP 6 year old
Hi my 6 year old son is on revolade/
promacta
for 7 weeks now, 75mg daily and his count hasn't increased. He is steady at 10k-15k each week. No side affects as I can tell, liver tests are OK. Doctor wants to continue for at least 12 weeks before we give up.
Hi my 6 year old son is on revolade/
promacta
for 7 weeks now, 75mg daily and his count hasn't increased. He is steady at 10k-15k each week. No side affects as I can tell, liver tests are OK. Doctor wants to continue for at least 12 weeks before we give up.
kyriacouathos
in
ITP Support Association
6 years ago
Remission on eltrombopag
Has anyone here experienced a remission while taking eltrombopag (revolade,
promacta
). I was put on the drug a year ago after some very low platelet counts (single figures), My initial dose was 50mg a day and I responded very quickly with counts over 350 after 2 weeks.
Has anyone here experienced a remission while taking eltrombopag (revolade,
promacta
). I was put on the drug a year ago after some very low platelet counts (single figures), My initial dose was 50mg a day and I responded very quickly with counts over 350 after 2 weeks.
prudencepayes
in
ITP Support Association
6 years ago
Frustration
Was on
Promacta
75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can anyone relate?
Was on
Promacta
75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can anyone relate?
Shooshpsu
in
ITP Support Association
6 years ago
promacta achy joints
They started me on
Promacta
25 mg, I thought I would die at night with the pain of achy joints.It has gotten a bit better, however I got the flu and my count went up to 226! The dr. had me cut the pill in half. My count is now 70. She said keep taking 1/2 pill.
They started me on
Promacta
25 mg, I thought I would die at night with the pain of achy joints.It has gotten a bit better, however I got the flu and my count went up to 226! The dr. had me cut the pill in half. My count is now 70. She said keep taking 1/2 pill.
Seafood
in
ITP Support Association
6 years ago
Cure ITP by homeopathic balancing of the immune system
I want to share what I am taking and doing Western Medicine: 25mg of
Promacta
three times a week.
I want to share what I am taking and doing Western Medicine: 25mg of
Promacta
three times a week.
CDmom
in
ITP Support Association
6 years ago
Loss of a great man
He was taking 30mg of prednisone during this time along with 100mg of
promacta
to treat his newly diagnosed ITP and raise his platelets.
He was taking 30mg of prednisone during this time along with 100mg of
promacta
to treat his newly diagnosed ITP and raise his platelets.
Stevediam
in
CLL Support
7 years ago
11 year old son ITP
He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg
Promacta
. His platelets range from 10,000 - 65,000. When he has episodes of bleeding he is treated with IVIG.
He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg
Promacta
. His platelets range from 10,000 - 65,000. When he has episodes of bleeding he is treated with IVIG.
Bishoprena
in
ITP Support Association
7 years ago
Does taking Synthroid one hour after and Promacta decrease Promcatas effectiveness?
Hi, Does anyone have experience with taking Synthroid and
Promacta
? I am wondering if taking Synthroid 1 hour after
Promacta
decreases Promactas effectiveness? Thanks
Hi, Does anyone have experience with taking Synthroid and
Promacta
? I am wondering if taking Synthroid 1 hour after
Promacta
decreases Promactas effectiveness? Thanks
CDmom
in
ITP Support Association
7 years ago
Promacta for CLL/ITP
Looking for thoughts, suggestions, experiences on
promacta
and if I should suggest to start nplate or not?
Looking for thoughts, suggestions, experiences on
promacta
and if I should suggest to start nplate or not?
Stevediam
in
CLL Support
7 years ago
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
Hi All, I am at 311,000 platelets on 50mg
promacta
since 11/23 before that on 75mg
Promacta
. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :).
Hi All, I am at 311,000 platelets on 50mg
promacta
since 11/23 before that on 75mg
Promacta
. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :).
CDmom
in
ITP Support Association
7 years ago
1
2
3
Next page
Filter results
Clear filters
Posted in
All communities
ITP Support Association
46 results
CLL Support
4 results
Hughes Syndrome APS Forum
1 result
Sort by
Most Relevant
Newest