Experiences with

Progressive supranuclear palsy (PSP)

Hi are there any other support groups/information groups for people with Progressive supranuclear palsy (PSP)? Something for family members ? I looked at the admin but there is no new posts for years?

Hello Sir/Madam, Please find the patient details I have submitted to participate in research and treatment of progressive supranuclear palsy. 1 PSP – Progressive supranuclear palsy 4 Year 2 Falling back side, imbalance, anxiety, body tends to move back while walking, dementia 3.5 Year Choking

Supranuclear Palsy (PSP).

Saw this blog entry, so well put. https://pspawareness.com/blogs/psp-q-a/navigating-progressive-supranuclear-palsy-embracing-individual-journeys

Our dad had a neurological degenerative disease called Progressive Supranuclear Palsy (PSP). We had not heard of this until our dad was finally diagnosed with it in late 2023. His journey with this horrible illness was not an easy one. His first symptoms were slight behavioural changes.

REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually.

This 2021 study showed positive results in people with PSP, a neurodegenerative disease : https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(23)00065-2/fulltext Here is a very relevant quote from the study : ' Efficacy analyses were performed on the intention-to-treat (ITT) analysis

– Progressive supranuclear palsy 3 Year 2 Falling back side, imbalance, anxiety, body tends to move back while walking, dementia 2.5 Year Choking, gagging or gasping for air. causing cough 1 Year 3 Legs spreads if walk too much (500 meter) 4 slurred speech, less visibility 5 UTI

My dad was diagnosed in Aug 2022 and we have been pretty lucky with his condition. He has been on Lupron shots and Erleada and his last PSA test was at .03 in October which is good. My concern is the last week he’s been really tired and is starting to get some pain again. My question is can things

First I'd like to thank everyone on this site who provides advice and help for all of us asking questions. So here is my next one: I just had my 2nd Pluvicto infusion and my hip and upper femur (where there is active cancer and 6 months removed from my hip surgery I have posted about before) have almost

Hello everyone! I hope you are doing well. I wanted to post an update about my father's current situation. After PSA started to raise, the MO added Abiraterone 1000 mg. a day with 10 mg prednisolone to his treatment regimen with Zoladex (once every 3 month) and Zoledronic acid (once every month). Abiraterone

My PSA is rising quickly, and my anemia is getting very bad. The PC is crowding out the red blood cell bone marrow. I'm unable to take Xandi due to serious side effects and I doubt if it would do anything anyway. Orgovyx and Zytiga gave this 87-year-old about one year and six months so far. However,

Would anyone that has had a prostate biopsy care to share their experience? It seems this procedure is often advised but I found the following from a patient online: A 12 or 18 core blind biopsy, holy prostate! One million dangerous prostate blind biopsies are performed in the USA each year and they

I have just completed 8 of 12 biweekly treatments and have happily watched my PSA drop steadily from 15 to 0.33. The weakening effects of the chemo have dampened my enthusiasm for working out, even walking. I read that docetaxel is the second most toxic chemo and can't disagree. My question, though,

friends,At what PSA level to have PSMA PETCT if your PSA doubling time is less than a month and beginning of CRPC. PSA is 0.224 now.thanks.

4+3 RALP in May 2020. Clean margins, no hot lymph-nods. excellent outcome, no ED or incontenance . 18 months later PSA rose to .15 so I did salvage radiation and the PSA was at .006 a few months ago. Meanwhile I find out I have a free testosterone level of 5 pg/mL I’ve mentioned the low T my urologist

DR or Insurance both are not providing PSMA PET SCAN. BONE SCAN RESULT : Narrative EXAM: NM BONE SCAN WHOLE BODY CLINICAL INDICATION: clinical eval. Metastatic prostate cancer. TECHNIQUE: Approximately 2-4 hours following intravenous administration of 27.1 mCi of Tc99m-MDP, whole body delayed

The validity of tests using fingerprick blood samples has long been questioned. Some claiming they are unusably awful. Others claiming tests are as good as those done on venous blood. It is good to see a paper which has researched the questions. Unfortunately, while they did include TSH, they did not

Hello - I had another consultation on Nov 1 with Dr. Eugene Kwon at the Mayo Clinic. This was a few weeks after completing 18 weeks of chemo using taxetere plus carboplatin. A PSMA PET CT scan at the Mayo showed that the chemo reduced the prostate cancer in the abdomen, although PSA remains above

Hi everyone, My 69 year old father is preparing for his forst PSA January 8th after RP early October. His stats are in my BIO. Given the positive margins, EPE and possible Cribriform pattern, I would like to come into this appointment with as much information and as empowered as possible to be