Experiences with

Progressive supranuclear palsy (PSP)

fbclid=IwZXh0bgNhZW0CMTEAAR1heRaHu8-eQBix_lfs_CzewyOFW0ITvpxbdNvdcXZ0QnatZNUguyTKIpc_aem_GvoH3deysr5e8umL7fp4jA https://pspawareness.com/blogs/psp-q-a/understanding-bathroom-challenges-in-progressive-supranuclear-palsy-psp?

Hi are there any other support groups/information groups for people with Progressive supranuclear palsy (PSP)? Something for family members ? I looked at the admin but there is no new posts for years?

Hello Sir/Madam, Please find the patient details I have submitted to participate in research and treatment of progressive supranuclear palsy. 1 PSP – Progressive supranuclear palsy 4 Year 2 Falling back side, imbalance, anxiety, body tends to move back while walking, dementia 3.5 Year Choking

Supranuclear Palsy (PSP).

Saw this blog entry, so well put. https://pspawareness.com/blogs/psp-q-a/navigating-progressive-supranuclear-palsy-embracing-individual-journeys

Our dad had a neurological degenerative disease called Progressive Supranuclear Palsy (PSP). We had not heard of this until our dad was finally diagnosed with it in late 2023. His journey with this horrible illness was not an easy one. His first symptoms were slight behavioural changes.

The Faces and Voices Campaign at CCF is more than just a collection of tales; it's a beacon of hope and a call to action for those affected by atypical Parkinsonism, including conditions like PSP (Progressive Supranuclear Palsy), MSA (Multiple System Atrophy), CBD (Corticobasal Degeneration) and DLB

REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually.

This 2021 study showed positive results in people with PSP, a neurodegenerative disease : https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(23)00065-2/fulltext Here is a very relevant quote from the study : ' Efficacy analyses were performed on the intention-to-treat (ITT) analysis

I received a text from the WIFE of a buddy. She said he has been diagnosed with advanced PC. She had no real particulars other than it was in his spine, pelvic area and lymph nodes, bladder, etc. The really scary part of the text was she sounded upbeat because the doctor was very optimistic- just

abiraterone+predni failed after 2 yrs 10 months. Had SBRT and VMAT 33 sessions one year ago to swat L1 lesion .. pSA gradually rising ,now at 6.7. what can I do as a next step to fight the beast. Any recoms? Anyone have the same situation?

Just the things are messy rn. And if i get accepted, i try and get overwhelmed and sick. For everyone telling me to get a work as if it's the magical cure for everything

After PCa reoccurence, after Proton therapy in 2009, started Doublet therapy.. Firmagon & Nubeqa in August 2024 and PSA just tested January 16th, is .75. Wondering when I should have 2nd PSMA-Pet scan to check on bone & lymph node mets which lit up scan in August 2024?Thanks for any input.

I had RP nine years ago, salvage radiation 4 years ago, my psa test results have been less than .02 after treatment with radiation. Current side effects minor incontinence, maybe one leak per day, and one small passing blood in urine event during the past year due to radiation damage to the bladder

My dad (72) was diagnosed in 02/24 with multiple bone mets, Gleason 9 an initial PSA of around 4000. He had triplet therapy with Docetaxel, Lupron and Nubeqa. His nadir was 26.1 in September 2024. His PSMA in November 2024 showed moderate to high activity in his prostate and in one area on his spine.

Got a battery of tests going on to understand why my immune system is not as good as our blog’s humor guy (starts with a J) In reviewing some of the ancient history I found that my PSA was 1.14 in January, 22. In late July, 22 I had a brain MRI but my legs blew up a week later to twice their size

First off, a status of my situation: I am hormone sensitive and have been doing BAT myself using different testosterones at times. Been doing BAT for 16 months. Recently had a one month PSA spike ( 1.4 to 6.3) along with uric acid/ kidney stone/gout. I attribute the PSA and uric acid spike to one

Hi Everyone, Firstly want to say thanks for all the responses to my last post regarding my husbands dreadful side effects of Doxcetaxel. Each reply was encouraging and informative. After 3 infusions with Doxcetaxel and horrendous side effects, my husbands psa has climbed to 900 which is alarming. The

Been a while since I posted, Long story short. Radiation 2019/2020. Psa was lower than a snakes guts. then it started to rise and was advised by urologist to have salvage surgery. Our friend TA advised against this. Sorry TA but to keep my Sheriff happy went through with it on 15 february 2023. I ended

I have an aggressive and somewhat rare form of metastatic prostate (super low PSA, high CEA). Being treated at Duke. I went off Pluvicto after two doses. Duke is putting me into their CHAMP trial. https://clinicaltrials.gov/study/NCT04709276 Has anyone out there participated in this trial? Thanks