FACES and VOICES

[pspchronicles]

This is for all caregivers—past and present, patients, family, friends, and other loved ones. Many of you know I have been banging the PSP-CBD awareness drum for over 10 years. There isn't much that I get over. Other than making artisan ice cream and The Curse of Oak Island, this new Faces and Voices Campaign shares the top spot.

Please read through and visit the web page - pspawareness.com

On the top banner click Faces and Voices

It is time for our faces to be seen, and our voices heard.

FOR IMMEDIATE RELEASE

Coleen Cunningham Foundation’s Support and Advocacy Committee Launches Global "Faces & Voices" Campaign for PSP Awareness

October 15, 2024 - The Coleen Cunningham Foundation (CCF) is proud to announce the launch of the "Faces & Voices" campaign, an initiative aimed at increasing global awareness about Progressive Supranuclear Palsy (PSP). This campaign will feature personal stories from those diagnosed with PSP, caregivers, family members, friends, and medical professionals to illuminate the realities of living with this often-misunderstood neurological condition.

About the Campaign:

- Purpose: To educate the public about PSP, its symptoms, challenges, and the impact on those affected.

- Platform: Utilizing a significant Google AdWords campaign with a monthly investment of $10,000 to maximize reach and engagement.

- Participation: We invite everyone connected to PSP to share their journey. Your story can inspire, educate, and bring comfort to others facing similar challenges.

How to Get Involved:

- Share Your Story: If you or someone you know has been touched by PSP, we encourage you to share your experiences. Your narrative can be a beacon of hope and understanding for others.

- Contact Us: For those interested in contributing or seeking more information, please reach out to the Coleen Cunningham Foundation or our campaign co-chairs:

- Tim Brown - Email:

[e-mail]

- Peter Firmin - Email:

[e-mail]

Why This Matters:

Progressive Supranuclear Palsy is a rare and devastating neurological disorder often mistaken for other conditions due to its similar symptoms to Parkinson’s disease, stroke, or Alzheimer’s. By sharing "Faces & Voices," we aim to:

- Raise Awareness: Educate communities and healthcare providers on the signs and symptoms of PSP.

- Support Research: Increase funding and interest in research for better treatments and ultimately, a cure.

- Build Community: Connect those affected by PSP, reducing isolation and providing a platform for shared experiences and support.

Join Us:

We are not just spreading awareness; we are building a community of support and advocacy. Your involvement can make a significant difference. Let's amplify the voices of those affected by PSP and ensure no one walks this path alone.

For Further Information:

Visit our campaign page at pspawareness.com/.../faces-...... or contact us directly for inquiries or to share your story.

Together, with your stories, we can light the path toward greater understanding, hope, and change for everyone touched by Progressive Supranuclear Palsy.

Thank you,

Laura Louizos

Executive Director

Coleen Cunningham Foundation for PSP Awareness

Support and Resources for Atypical Parkinsonism-PSP, MSA, CBD

pspawareness.com

If you have a Facebook account, check out my page - Tim Brown to view an example of Faces and Voices.

Tim

[easterncedar]

Looks like a terrific initiative, Tim. You continue to inspire.

[Richard33]

Tim,

I sent Ruth's video in - and hopefully they can use it. Keep up the great work....as ever you are busier than the rest of us even though you are the one suffering the wretched PSP. I look forward to seeing the Faces & Voices campaign when it is released.

Richard 🙂

[daddyt in reply to Richard33]

It has officially been launched. Check the website pspawareness.com website and social media daily for the faces and voices of all with a connection to PSP-CBD and MSA.

[Richard33 in reply to daddyt]

Excellent - I will keep an eye out... 🙂

[daddyt in reply to Richard33]

Hi Richard,

You can check out two video presentations on my Facebook page, they appear to receiving a respectable number of views to date - 4.1 K... good exposure and more awareness.

Tim

[Richard33 in reply to daddyt]

Tim,

I looked at the PSP Ice Cream Challenge Facebook page but you must mean another account.....do I look up you personally? Facebook never seems easy to me! 🙄

Richard 🙂

[daddyt in reply to Richard33]

Hi Richard. Type in Tim Brown Ayr, ON, it will bring up my profile.

Tim🙂

[carehope in reply to daddyt]

What great work Tim ! Many thanks to you and the other people at the Colleen Cunningham Foundation . "Faces And Voices" will surely have a positive impact ! With grateful admiration always,

Elise

[AliBee1]

Well done Tim for this campaign. You are an inspiration x