Search
Search
About
Log in
Join
Experiences with
Primary ciliary dyskinesia (PCD)
Posts
Communities
738 public posts
Filter results
What's in ER C/L vs. IR C/L?
We have tried using 25/100 ER in combo with 25/100 IR in an effort to increase time between doses and it consistently leads to negative symptoms that don't occur when I'm just taking the IR. Symtoms are mild headache, mild nausea, fatigue, my brain feels swollen and anxiety. It reminds me when I was
We have tried using 25/100 ER in combo with 25/100 IR in an effort to increase time between doses and it consistently leads to negative symptoms that don't occur when I'm just taking the IR. Symtoms are mild headache, mild nausea, fatigue, my brain feels swollen and anxiety. It reminds me when I was
Jockboy17
in
Cure Parkinson's
11 months ago
Started my grandmother on TTFD
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
philipmurray
in
Cure Parkinson's
1 year ago
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
nednedned
in
Cure Parkinson's
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Antibiotics for UTI symptoms
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
Mint_all_day
in
Endometriosis UK
2 months ago
Switch to Mucuna
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
JayPwP
in
Cure Parkinson's
1 year ago
Recurrant water infections
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Tojack
in
Women's Health
4 months ago
Active recruitment for stem cell trial
Hope biosciences is actively recruiting for PD04, a Randomized, Double-Blind, Single Center, Phase 2, Efficacy and Safety study of allogeneic HB-adMSCs vs Placebo, for the Treatment of Patients with Parkinson's disease.If you or someone you love suffers from #ParkinsonsDisease please follow the link
Hope biosciences is actively recruiting for PD04, a Randomized, Double-Blind, Single Center, Phase 2, Efficacy and Safety study of allogeneic HB-adMSCs vs Placebo, for the Treatment of Patients with Parkinson's disease.If you or someone you love suffers from #ParkinsonsDisease please follow the link
Farooqji
in
Cure Parkinson's
1 year ago
How can I be sure the renewal of my Rx is correct/
Last week I picked up my refill of C/L 25-100, and the difference in performance seems to be more than just the normal progression of the disease. Tremors more prevalent and pronounced, longer periods of dyskenesia,marked increase in lethargy, etc. I checked the manufacturer's recall website, and
Last week I picked up my refill of C/L 25-100, and the difference in performance seems to be more than just the normal progression of the disease. Tremors more prevalent and pronounced, longer periods of dyskenesia,marked increase in lethargy, etc. I checked the manufacturer's recall website, and
willowone123
in
Cure Parkinson's
1 year ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
5 months ago
bladder/urinary tract endo
Hi all, has anyone got confirmed bladder endometriosis? I'm interested to hear about symptoms and whether you saw your gynaecologist or/and a urologist. Thanks!
Hi all, has anyone got confirmed bladder endometriosis? I'm interested to hear about symptoms and whether you saw your gynaecologist or/and a urologist. Thanks!
PopcornPJ
in
Endometriosis UK
6 months ago
The PSP & CBD Ice Cream Challenge 2023 Holdout
The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us have found ourselves in front of the refrigerator/freezer after we've gone to bed? Those midnight or later stomach grumblings won't let you sleep until they're satisfied. As so often depicted on TV commercials and television
The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us have found ourselves in front of the refrigerator/freezer after we've gone to bed? Those midnight or later stomach grumblings won't let you sleep until they're satisfied. As so often depicted on TV commercials and television
daddyt
in
PSP Association
1 year ago
Is it tremor or dyskinesia?
Is it tremor or dyskinesia? Healthline says: “The main difference is that tremor is rhythmic in its movement, particularly around one joint. Dyskinesia is not only involuntary, but it's also
usually
disordered. Tremor associated with Parkinson's is usually suppressible with movement and activity
Is it tremor or dyskinesia? Healthline says: “The main difference is that tremor is rhythmic in its movement, particularly around one joint. Dyskinesia is not only involuntary, but it's also
usually
disordered. Tremor associated with Parkinson's is usually suppressible with movement and activity
Gcf51
in
Cure Parkinson's
1 year ago
5 years of Sinemet and Dyskinesia
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
CuriousMe12
in
Cure Parkinson's
1 year ago
Hiprex and D Mannose
I have had long term UTIs arising post radiation therapy. I also have bile salts malabsorption which causes bowel issues so it’s not always easy to keep myself as clean as I would like and I have been told this is likely to be the cause of the repeated UTIs Up until recently for approx 6 years
I have had long term UTIs arising post radiation therapy. I also have bile salts malabsorption which causes bowel issues so it’s not always easy to keep myself as clean as I would like and I have been told this is likely to be the cause of the repeated UTIs Up until recently for approx 6 years
janfarrugia
in
Women's Health
7 months ago
UTI issues
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Hi all, Is it quite common to see blood in the urine with a UTI? My doctor says so but Googling has me believe it’s a kidney infection and I’m on the wrong antibiotics. I’ve had a UTI in the past and had the burning and pain but no visible blood? Thanks
Kimbad1990
in
Women's Health
8 months ago
AAN 2023: Amneal’s IPX203 shows promise for Parkinson’s disease patients
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa + levodopa, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510). The OLE study involved 419 participants who completed
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa + levodopa, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510). The OLE study involved 419 participants who completed
Farooqji
in
Cure Parkinson's
1 year ago
PD and B1
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
Hidden
in
Cure Parkinson's
1 year ago
Daily pill could halt effects of Parkinson’s, scientists suggest
Samsara Therapeutics, a biopharmaceutical company whose labs are in Oxford, has created a treatment geared at boosting a process known as “autophagy”. This is the system for how cells clean themselves and stop toxic material from building up. Technology moguls including Amazon's Jeff Bezos, PayPal founder
Samsara Therapeutics, a biopharmaceutical company whose labs are in Oxford, has created a treatment geared at boosting a process known as “autophagy”. This is the system for how cells clean themselves and stop toxic material from building up. Technology moguls including Amazon's Jeff Bezos, PayPal founder
Farooqji
in
Cure Parkinson's
1 year ago
Opicapone helps prolong plasma levodopa levels in patients with Parkinson’s
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
Farooqji
in
Cure Parkinson's
1 year ago
The role of istradefylline in the Parkinson's disease armamentarium
https://pubmed.ncbi.nlm.nih.gov/37029952 Expert opinion: Istradefylline is safe and well tolerated. Its efficacy was pronounced, when patients were on a lower chronic oral levodopa regimen. Levodopa causes a homocysteine elevation, which reflects an impaired methylation potential. As a result, an up
https://pubmed.ncbi.nlm.nih.gov/37029952 Expert opinion: Istradefylline is safe and well tolerated. Its efficacy was pronounced, when patients were on a lower chronic oral levodopa regimen. Levodopa causes a homocysteine elevation, which reflects an impaired methylation potential. As a result, an up
Hidden
in
Cure Parkinson's
1 year ago
1
...
3
4
5
...
37
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
485 results
Endometriosis UK
77 results
Thyroid UK
34 results
View top 10 communities
Sort by
Most Relevant
Newest